Hi everyone . I’m a 32 year old male and started getting severe mid to lower back pain about a year ago which remains til this day. A deep burning sensation in the back that is worse at rest. This pain has been debilitating ever since. During first few months would feel pins and needles hands feet , legs would fall asleep more than usual. I took many MRIS of spine and all reports were negative aside from a few minor things. No loss of strength. Fast forward about 6-7 months as I lay on the... Read more ..read more

Good afternoon Everyone. I'm so glad this forum exists. It's so important to anyone with ALS, My close friend who I've been a caregiver for, has had ALS for many years. Some folks like him are progress slowly. He used to work for the ALS Foundation as a pharmacudical chemist and did some great work for the cause. He is about to completly lose his speech and I really need to get him some eye recognition software. What's the very best eye tracking devices out there ..read more

I feel Ike my arms and legs are bruising and I’m not aware of bumping into things. I thought it was the Radicava but stopped taking and still have dark bruises. Is anyone else experiencing this or taking any vitamins that help ..read more

Hi, Just to clarify i have read up on the 'Read before posting' thread but Iam still having issues and have become worried about my gradual progressive symptoms. Iam well aware given my age that a diagnosis of ALS/MND is extremely rare, but I have become extremely anxious and its badly effecting my quality of life. I also admire the courage of those affected by MND or who have loved ones effected and appreciate the generosity it takes to reply to those worried about symptoms who are not... Read more ..read more

Hello, I am a 33 years old male. I was always very active and healthy. I played my whole life soccer and I've been a powerlifter for many years. From march 2022, I had an ongoing injury which required me to take a lot of cortisone. During that time I lost a lot of muscle mass and gained weight. I lost more muscle mass than you should lose, even if you are unactive. I had to take cortisone until october 2022. In march 2023, I really started to notice that I still had ongoing atrophy and a... Read more ..read more

Hi! I am 41 yr old female. This month I have had a normal Nero clinical exam and all normal blood tests. In March I had normal mri of head and spine. My symptoms have been going on everyday for the last 3 months. Some days sensations are worse than others. I have some foot, hand, calf cramps. Twitching everyday pretty much 24/7. A lot in my calves. Some of the twitches I can’t see only feel. I also get twitches all through my body, my arms, back, lip, chest, even in my butt, some of the... Read more ..read more

I have strict npo for about 6 weeks now. My swallow reflexes are too slow so drinking or sipping water is too risky, I choke on the smallest of sips. I am not dehydrated since my wife is ensuring I get at least two liters daily through the PEG tube feedings. My salivation used to be rather significant, but not drooling. Now my parched mouth occurs in as much as 30 minutes following sipping and spitting those sips. I suppose I am not alone. I am hoping someone has a workable solution... Read more ..read more

Hi, I’ve been referred to a neurologist, diagnosed with Pseudobulbar affect, than came twitching right leg for months , now both legs, have lost 15 pounds suddenly,muscle stiffness but no limb weakness so would one think als could be ruled out ?Thanks ..read more

Hi everyone and thank you in advance for your time. I’m 26 and since 4 months i’m really anxious about SLA. It started with twitches all over my body (legs, arms, stomach, back sometimes, eyes, lips…). I can’t live anymore and I think about it 24/24. The worst thing for me is my speech. I feel like it’s difficult to speak and articulate some words with « S » and « L ». I asked to my parents, friends, and girlfriends if they noticed changes but they Said absolutely not. I feel like each... Read more ..read more

Good afternoon, I need help and possible answers. I appreciate you taking your time in your effort to reply and read my comment. Starting about two weeks ago, I noticed in the mornings when I wake up my legs, hamstrings and quads are beyond tight. I’ve also known that my forms are beyond tight and so as well, I have been experiencing muscle twitching all over particulate in my legs back of my arms and back on my shoulders. From time to time I have trouble pronouncing words twitching is... Read more ..read more