I'm curious about the average timelines for diagnosis. I personally had what I consider a quick diagnosis-- I got an unrelated MRI that found lesions, then had to get follow up scans and a lumbar. From my first MRI to my official diagnosis, it took a couple months. I am specifically interested in how long it took for you to go from initial MRI to an official diagnosis. Was your diagnosis quicker, or did it take longer? (Let me know what country you are in, too!) submitted by /u/TooManySclerosis [visit reddit] [comments ..read more

I don’t know if it’s just because I don’t feel good. I also found out through my four MRIs that I have severe spinal stenosis so that isn’t helping at all, but I have noticed that my mood have been all over the place and I am very kind, loving funny, strong faith-based woman and I have been for lack of a better words, a fucking bitch lately and I’m even sorry to say those words, but that is the truth and I don’t know if it’s attributed to multiple sclerosis? Not to sound stupid but again thrown another question out here does anyone else deal with this not mad about having the disease but just ..read more

So it’s happening. I got the call today to let me know my loading doses of Kesimpta will be with me next Wednesday. These last couple of months have been hard from my latest relapse, I’m still suffering from numbness and fatigue but am just about getting through what I need to do in the days. I’m worried though that these injections are going to kick my arse and I’m not going to be able to do much. I’m on my own and I’m trying to be positive. I know taking the day is the best option for me and my future but it is scary. Any advice on how I can make this process go as smoothly as possible woul ..read more

So I(25F) have been on Tysabri for the past year and I had a sudden onset of mild optic neuritis ( blurring in both eyes ) yesterday. Is it common to have attacks while on medication? Is it advisable to change medication? The previous attack of optic neuritis was in the right eye whoch resulted in complete blindness for 2 months, but at that time I wasn’t on any medications. submitted by /u/ArtnDrive [visit reddit] [comments ..read more

Hi all I had my first dose of Copaxone today and I’ve felt fine in all honesty, my body has been achy and a mild headache but not the flu feeling most people get thankfully. However one thing, the leg I injected into has been stiff as a board and hurting like hell. I found it hard to walk on for a few hours after injecting (4:00pm and it’s just stopped now at 9:30pm). Any advice for that one ? Did anyone else have this ? I don’t think I did anything wrong as the MS nurse showed me how to inject etc but for the life of me I can’t figure out why my leg hurt so much and it wasn’t the injection a ..read more

Hey Fam! I hope y'all doing well. Quick question, Does anyone have any other treatments they are doing for their MS besides Physical therapy???? Please let me know! submitted by /u/Brilliant-Position94 [visit reddit] [comments ..read more

Hey everybody. I'm a recently diagnosed guy who just started my Kesimpta loading doses last Saturday at 9 pm. The first dose wasn't too bad, but did kick my ass for a few hours the next morning. I am scheduled to do my second dose tomorrow, but with it being Mothers Day on Sunday I've got stuff going on then. So I am curious if others have either adjusted the time of day they did the shot, so keep it to the same day but maybe take it in the morning instead? Not sure how precise it needs to be. If it wouldn't screw things up too badly I'd be up for just taking it this (Friday) night at 9 pm, b ..read more

Please recommend where I can get some as mine is about to finish submitted by /u/Diligent-Fix6897 [visit reddit] [comments ..read more

Anyone else get fevers after their BRIUMVI treatment? I feel like I wasn’t prepared for how bad I felt after my first loading dose. Then my neurologist said it may not happen with the second dose. Well it did…. and honestly it was the most miserable I felt in a long time :( submitted by /u/briorbrian [visit reddit] [comments ..read more

In advance TLDR upcoming tests for MS and I’m scared of either positive or negative results because obviously I don’t want a positive result but also I’m afraid of having it and testing not picking it up Last summer I was getting ready for work when out of nowhere and very suddenly, my vision went crazy. Like extreme double vision to the point I couldn’t see to text and walking was even a bit of a challenge, but it did improve if I covered one eye. I’m not prone to freaking out about anything but it was so scary I was crying and I haven’t cried in years. With effort I was able to make out eno ..read more