Steven Branfman will talk about his son Jared who passed away in 2005 after fighting a 2 year battle with Spinal Cancer. Since then, the Branfman family has raised over 6 million dollars for Pediatric Cancer research.
Help and Hope Happen Here
by Mark Levine
4d ago
Jared Branfman was diagnosed with Spinal Cancer in 2003, when he was 21 years old and an Adolescent and Young Adult patient. After a two year battle, his disease spread to his brain and he unfortunately passed away in September of 2005.  On today's podcast, his father Steven will talk about the life that Jared led, which while all too short, was full of accomplishments. Steven will highlight his family's passion for bicycling which began while Jared was 4 years old. A year before Jared's passing the Branfman's became involved in the Pan Mass Challenge which is a bicycle event that is cons ..read more
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Brian and Angie Perry will talk about their son Ethan who passed away after a battle against T Cell Lymphoblastic Lymphoma on March 25 0f 2021 when he was just 12 years old. Ethan's cancer was a rare offshoot of Non Hodgkins Lymphoma.
Help and Hope Happen Here
by Mark Levine
1w ago
Brian and Angie Perry's son Ethan was diagnosed with T Cell Lymphoblastic Lymphoma on July 30th of 2020, just after he turned 12 years old. At the very end of 2020 and into 2021 Ethan's cancer, which normally has a very good cure rate, began to spread rapidly and he very unfortunately passed away on March 25th of 2021.  Brian and Angie will talk about their beloved son, the Caring Band that he wore during his treatment, and what they are doing now and will be doing in the future to help other Pediatric Cancer patients and their families.  ..read more
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Kathy Derr, the co- founder of the Non- Profit A KID AGAIN, and Susan Gilbert whose family became members of this Non-Profit in November of 2020, will talk about the wonderful work that this organization has done as it has helped more than 200,000 people.
Help and Hope Happen Here
by Mark Levine
1w ago
Kathy Derr lost her son Christopher to an inoperable brain tumor in the early 1990's and in 1995 co-founded the Non-Profit A KID AGAIN. Along with Susan Gilbert whose family joined this non-profit in November of 2020 after Susan's daughter Ali was diagnosed with Leukemia in July of that year, they will talk about the wonderful work that this non profit does, as it has helped more than 200,000 people since its inception, including more than 12,000 in the past year. This Non-Profit focuses on Family Adventure Days, as it tries to promote normalcy even for a short time to kids who have been diagn ..read more
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Laura Bray will talk about the critical Pediatric Cancer drug shortages that take place far too many times when kids are undergoing their cancer treatments. Laura will discuss her Angels For Change Non-Profit, which is helping to reduce this problem.
Help and Hope Happen Here
by Mark Levine
2w ago
When Laura Bray's daughter Abby was undergoing treatment for Acute Lymphoblastic Leukemia she needed a drug called Erwinaze, which was in short supply. Laura came to find out that  Pediatric Cancer drug shortages were happening far too many times. She got to work, solved Abby's problem in 10 days and then started her ANGELS FOR CHANGE Non Profit. This Non- Profit has been working over the past several years to help solve this shortage issue as 75 percent of the 20 most common drugs used for Pediatric Cancer patients have been through shortages over the past 5 years. The average time that ..read more
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Dr. Archie Bleyer will talk about his 10 years as the Chair of the Children's Cancer group in the 1990's and his subsequent advocacy for the many Adolescents and Young Adults in the age group of 18-39 that are diagnosed with cancer.
Help and Hope Happen Here
by Mark Levine
2w ago
Dr. Archie Bleyer is a well known and highly respected member of the Cancer Community.  On today's podcast Dr. Bleyer will talk about his 10 years as the Chair of the Children's Cancer Group in the 1990's and some of the accomplishments that he oversaw during this time period. Dr. Bleyer will then discuss his focus that began over 20 years ago on the issues that the "forgotten" age group of 18-39 Adolescents and Young Adults that are diagnosed with different forms of cancer each year have to deal with. In the United States, there are 90,000 AYA's that fall into this category.  ..read more
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Tiffany Mcconathy's daughter Nora passed away from a Brain and Spinal Cord tumor called ETMR when she was 14 months old in February of 2022. Tiffany will also discuss how Covid negatively impacted Nora at the end of her far too short life.
Help and Hope Happen Here
by Mark Levine
2w ago
After noticing a weakness on the left side of her face, Tiffany Mcconathy and her husband Jeremy took their 9 month old daughter Nora to her Pediatrician in September of 2021. Nora's 1st diagnosis was Bell's Palsy. Six weeks later as Nora was feeling worse, Nora went back to the doctor and this time they were going to put tubes in her ears. Tiffany then insisted on an MRI and finally the 3rd of 4th doctor that Tiffany had spoken with agreed to it. What followed was a diagnosis of a very rare Brain and Spinal Cord tumor called ETMR. 5 months later Nora passed away as the doctors decided not to ..read more
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Oscar Ortiz will talk about his beloved son Sebastian who passed away from Rhadomayosarcoma after a difficult 14 month fight against this form of Pediatric Cancer in December of 2016.
Help and Hope Happen Here
by Mark Levine
3w ago
Oscar Ortiz's son Sebastian was diagnosed with Rhabdomayosarcoma as a sophomore in high school in October of 2015. On today's podcast, you will hear Oscar talk with much emotion and passion about his son, who fought his battle in every way possible before passing away in December of 2016.  Oscar will talk about the amazing way that Sebastian dealt with his cancer diagnosis with grace and courage, as Sebastian hmself  was the one that told his friends and family that he was not going to survive. Oscar will also discuss the Toyota Tacoma  that he bought for Sebastian just weeks be ..read more
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Marc Girolimetti's daughter Ava was diagnosed with Acute Lymphoblastic Leukemia and became one of the 1st patients at Boston Children's Hospital to receive Cart T Cell Therapy. Ava has now been cancer free for 32 months.
Help and Hope Happen Here
by Mark Levine
3w ago
In 2016 shortly before her 7th birthday Ava Girolimetti was diagnosed with Acute Lymphoblastic Leukemia. After a relapse in early January of 2019, she became one of the first patients at Boston Children's Hospital to receive Cart T Cell Therapy. This therapy was thankfully successful and Ava has now been cancer free for 32 months. Ava's father Marc will talk about Ava's ordeal, and will also talk about Ava's love for the Boston Bruins and the special relationship that developed  with the Bruins organization and especially with Bruins Hall of Famer John Bucyk.  ..read more
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Susan and Gregory Jacobson will talk about Gregory's battle with Rhabdomayosarcoma which started when he was a senior in high school in 2015, his relapse in 2017, and the great news that his scans have been clear for the past 5 years.
Help and Hope Happen Here
by Mark Levine
1M ago
Gregory Jacobson is now 5 years past his relapse of the Pediatric Cancer Rhabdomayosarcoma, which he was originally diagnosed with as a senior in high school in 2015.  Both Gregory and his mother Susan will talk about what Gregory went through and the great news that he is in the process of completing his Bachelors Degree at Bridgewater State University.  They will also discuss the Bubba Strong Charitable Foundation, which has a mission to help the families of children that have been diagnosed with some form of Pediatric Cancer.  ..read more
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Michael Pruitt will talk about his son Rylan who passed away from the very rare Pediatric Brain Cancer Medullomayoblastoma in March of this year when he was 6 years old. Michael will talk about Rylan's heroic fight on today's podcast.
Help and Hope Happen Here
by Mark Levine
1M ago
The Pediatric Brain Cancer Medullomayoblastoma is not the same cancer as the much more common Medulloblastoma. On today's podcast Michael Pruitt will talk about his son Rylan who was diagnosed with this cancer when he was 5 years old in the spring of 2021, and passed away from it at the age of 6, on March 10th of this year. Before Rylan's diagnosis, only 51 cases of this cancer had been diagnosed with only 1 known survivor.  Michael will also talk about the Rylan Strong Network that he founded, which has a major component of trying to enact legislation that will make certain that insuranc ..read more
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