Amanda Hope Rainbow Angels is a pediatric cancer organization based out of Arizona but they have many programs for kids outside of Arizona.  In this episode we talk to Stephanie, Family Relations Coordinator and Victoria, Comfort Care Counselor.  They tell us about their “ComfyCozies for Chemo”, an adaptive apparel that makes it easier to access kids’ ports.  They also tell us about their Story Time (in English and Spanish!) and their mindfulness kits.  I hope you find this conversation helpful. Useful Links: https://www.amandahope.org/ https://www.amandahope.org/comfycozy ..read more

Feather is a mother to 5 kids and has had quite a bit of experience with cancer.  You will hear her tell it, but she was diagnosed with retinolblastoma when she was 2 years old. She also has 2 daughters who are survivors.  She is here to tell us about her book: Invisible Me Please check out her book on Amazon: https://smile.amazon.com/Invisible-Me-Feather-Chelle/dp/B091F3MWR8/ref=sr_1_1?dchild=1&keywords=invisible+me+book&qid=1620227177&sr=8-1 ..read more

In this podcast, Kezia tells us how and why, she and her husband started a company called CareAline.  CareAline was created after their experience with cancer that affected both Kezia their daughter Saoirse.  Unfortunately, they lost their daughter before her 2nd birthday. Visit www.carealine.com to find out more about their products that help contain external lines. Transcript of Podcast can be found here ..read more

Courtney and Caitlin started Costumes for Courage in 2020 as a way to help children find some excitement and bravery while going through treatment.  They run the organization together with help from Caitlin’s husband, Geoff, and their friend, Rachel.    Courtney has built her career around business operations and project management.  She currently works for a national bank.  Courtney lives in Pittsburgh, Pennsylvania with her husband, two children, Mason and Lilli (who inspired Costumes for Courage), a dog named Bear, and two cats, Jette and Smores.     Caitl ..read more

Kandace tells us the story of her brother Gabe and their family's project to bring a Childhood Cancer license plate to fruition.  Gabe is a 16 year old medulloblastoma survivor. Helpful Links:  www.gabesplates.com www.morganadamsfoundation.org www.copsfightingcancer.com http://denver.cbslocal.com/2018/05/22/childhood-cancer-license-plate/   ..read more

Molly tells us the story of her son Easton and his diagnosis of Optic Pathway Glioma and Neurofibromatosis (NF1).  Easton and his family has been through a lot, but he keeps positive and proudly shows off his scars. Keywords: g-tube, Ronald McDonald House,  ..read more

Rebecca tells us the story of her son's ALL diagnosis.  He recently finished treatment.  Please read here to see Jack's drive-by cancer party/parade: https://www.azcentral.com/story/news/nation/2020/04/16/new-hampshire-4-year-old-gets-car-parade-after-beating-cancer/5144045002 ..read more

Parvathy tells us the story of her family's experience with cancer and a genetic condition.   ..read more

Lori's son, Max, finished treatment for ALL in April 2019.  Lori has a ton of great information in her conversation.  Topics covered: momcology, Fit Like a CK Mother; Orgain; Alex's Lemonade Stand ..read more

Jennifer's son is 14 now and was diagnosed with medulloblastoma.  He finished treatment in February 2020, just a few months ago.  He took part in a clinical trial at St Jude in Memphis Tennessee.  He had to endure surgery, chemo and radiation.  We talk a bit about radiation in this conversation, so please check the notes to see the spiderman mask that we refer to.  In her tips and tricks she mentions smell sticks and we have put a link to amazon if this would be helpful for your family.  Please note: I mistakenly said her son is 11, he is actually 14. Picture of R ..read more