Claire Sachs: My Path to Patient Advocacy
Healing Ties
by Christopher MacLellan
2y ago
38 years ago, Claire Sachs' healthcare journey began with a near-fatal illness that put her in a wheelchair for 18 months. This experience evolved into a life that includes balancing 13 chronic and recurring conditions followed by caregiving for her mom. Angry, combative, and frustrated for a long time, Claire didn't want to talk about her personal health story, but that all changed when she was invited to speak about her experience and found her voice and path to Patient Advocacy. Listen in and learn how Claire Sachs is creating Healing Ties all around us ..read more
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No One Without Song
Healing Ties
by Christopher MacLellan
2y ago
Through her marvelous book: "The Courage to Care: Being Fully Present with the Dying" Rev. Linda Bryce's mission is to pass on her understandings and show us how to be there at the bedside, fully present with anyone who is dying, and sharing in the mystery and wonder of death—and after.  When there is someone at our side, challenging times become more bearable. Whether it is an unexpected life-ending diagnosis, loss of employment or even of the ability to go places and see people, the presence of another alongside us offers reassurance and a confirmation of our value and membership in a ..read more
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Caregivers: The Journey Begins with You!
Healing Ties
by Christopher MacLellan
2y ago
For more than thirty-five years, Author Susan Ryan has been in roles of non-professional (unpaid) caregiving support for family and loved ones. Through her experience as a family caregiver, (currently navigating her husband’s care with his diagnosis of Alzheimer’s Disease), Susan has moved from feeling frustrated, overwhelmed, and yes - sometimes frightened, to confident and balanced navigating the transitions being care receiver, those who support us, and I are on in our journey. As a dynamic and international speaker, Sue's free caregiving tips are a must-have no matter where you are on yo ..read more
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Learn About the LGBTQ Caregiver Center
Healing Ties
by Christopher MacLellan
2y ago
Zander Keig, MS, MSW, LCSW, and Jennifer Henius, LCSW are caregivers and social workers embarking an ambitious and much-needed project to launch the LGBTQ Caregiver Center as a new online resource hub as part of the Caregiver Wellness Collective Inc, a new nonprofit startup based in greater Tampa Bay, Florida. The LGBTQ Caregiver Center aims to raise awareness of the unique challenges faced by #LGBTQCaregivers and those who care for #LGBTQ individuals, empower LGBTQ Caregivers to live with #pride and #dignity, and serve as a conduit for education, wellness, training, and research. The Cente ..read more
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Learn about the LGBTQ Caregiver Center
Healing Ties
by Christopher MacLellan
2y ago
Zander Keig, MS, MSW, LCSW, and Jennifer Henius, LCSW are caregivers and social workers embarking an ambitious and much-needed project to launch the LGBTQ Caregiver Center as a new online resource hub as part of the Caregiver Wellness Collective Inc, a new nonprofit startup based in greater Tampa Bay, Florida. The LGBTQ Caregiver Center aims to raise awareness of the unique challenges faced by #LGBTQCaregivers and those who care for #LGBTQ individuals, empower LGBTQ Caregivers to live with #pride and #dignity, and serve as a conduit for education, wellness, training, and research. The Center ..read more
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Empowerment through Wellness: Jodi O'Donnell-Ames
Healing Ties
by Christopher MacLellan
2y ago
Jodi O’Donnell–Ames is a professional speaker, wellness and empowerment coach, author, podcaster, and tireless advocate for Lou Gehrig's disease, or ALS (Amyotrophic Lateral Sclerosis). Jodi is also the founder and current board member of Hope Loves Company, a non-profit organization committed to providing educational and emotional support to children and young adults who have had or have a loved one battling ALS in their lives. Now on her second career after caregiving has ended, Jodi is helping people change their lives by empowering people to live happily through wellness in body, mind, an ..read more
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Alz Authors: Untangling Alzheimer's and Dementia One Story at a Time
Healing Ties
by Christopher MacLellan
2y ago
Marianne Suicco is a registered nurse, dementia daughter, and author of the novel Blue Hydrangeas, an Alzheimer’s love story. She is also a founding member and manager of AlzAuthors.com, the global community of authors writing about Alzheimer's and dementia from personal experiences. On Alzauthors.com you’ll discover hundreds of inspirational stories which span all Alzheimer’s and dementia stages to off you keen insights and better understandings of this insidious disease. Marianne also hosts and produces the popular Untangling Alzheimer's and Dementia podcast. Listen in and learn how Maria ..read more
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BJ Miller: From Caregiver to Care Reciever to Palliative Care Physician
Healing Ties
by Whole Care Network
2y ago
Dr. BJ Miller is a longtime hospice and palliative medicine physician and educator. He currently sees patients and families via telehealth through Mettle Health, a company he co-founded with the aim to provide personalized, holistic consultations for any patient or caregiver who needs help navigating the practical, emotional and existential issues that come with serious illness and disability. BJ has worked in all settings of care: hospital, clinic, residential facility, and home. Led by his own experiences as a patient, BJ advocates for the roles of our senses, community and presence in desi ..read more
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Enjoy a Cup of Comfort with Trish Laub
Healing Ties
by Whole Care Network
2y ago
Award-winning author Trish Laub’s expertise is derived from the full-time care of her parents, one with Alzheimer’s and one with stage 4 cancer, for whom she delivered the care and end of life they desired. She served not only as a hands-on caregiver but also as the manager of both of her parents’ daily and medical care, as well as their in-home caregivers and overall care team. She has gone on to assist many others through their care journey. Trishs' "Comfort in Their Journey" book series provides the clear, concise, and easily accessible information that she wishes had been available to her ..read more
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The Waiting Room Revolution
Healing Ties
by Whole Care Network
3y ago
Dr. Hsien Seow and Dr. Samantha Winemaker have worked their entire careers helping those who are facing serious illnesses. For years, they often heard patients and families say they felt unprepared and overwhelmed. Despite years of education, research, and advocacy, they continued to hear patients and families say “Why didn’t anyone tell me that sooner…” They started the Waiting Room Revolution movement because they wanted to improve the patient and family illness experience. They wanted to educate …and build a community to share deeply human stories about caring for others.  Bec ..read more
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