DMD Pathfinders - Life and the world with Duchenne
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Phillip Carroll is a university student living with Duchenne Muscular Dystrophy, and a trustee of DMD Pathfinders, the first organization in the world run by adults with DMD for others with the condition. Philip talks about his life and the world from the perspective of an adult with DMD, inviting guests with DMD and without to give a fascinating insight into the community.
DMD Pathfinders - Life and the world with Duchenne
7M ago
In the sixth episode of the Pathfinders Podcast Sanjeev and Gianluca discuss food; their Italian and Indian favourites, cooking and eating out ..read more
DMD Pathfinders - Life and the world with Duchenne
7M ago
In the fifth episode of the Pathfinders Podcast Sanjeev and Gianluca discuss independence; what it means to them, acceptance, the impact of the care crisis on them, their dream home, pros and cons of living with parents & Pathfinders PA training. ..read more
DMD Pathfinders - Life and the world with Duchenne
7M ago
In the fourth episode of the Pathfinders Podcast Sanjeev and Gianluca discuss representation in the media and video games; their favourite movies, role models, theatre accessibility, opportunities in the arts, disabled video game characters and the potential for development disability sports games and accessing games ..read more
DMD Pathfinders - Life and the world with Duchenne
7M ago
In the second episode of the Pathfinders Podcast Sanjeev and Gianluca discuss their social lives; what they like to do, accessibility and limitations, driving, PA support, buses and planes, favourite destinations, tips for flying and their funny holiday stories ..read more
DMD Pathfinders - Life and the world with Duchenne
7M ago
In the first episode of the Pathfinders Podcast meet Sanjeev and Gianluca and hear them talk about their love of football; their teams, stadium access, favourite players, favourite football moments, tips for disabled football fans & powerchair football ..read more
DMD Pathfinders - Life and the world with Duchenne
7M ago
For our second episode Phillip and Jon are joined by musician and adult with DMD Alex James, who talks to us about his new single Direction and life as a musician with DMD.
Alex James' single is available on spotify here: https://open.spotify.com/album/0LNlndSYFJr4yG1N9BKS4d?si=KOR2GODbTVawGIW0zp2kWA ..read more
DMD Pathfinders - Life and the world with Duchenne
7M ago
In our pilot podcast episode, DMD Pathfinders discuss life and the world with Duchenne. Phillip Carroll hosts Jon Hastie and Mark Chapman, cofounders of DMD Pathfinders who talk about their personal journey with Duchenne, travel, road trips and flying with a wheelchair ..read more
DMD Pathfinders - Life and the world with Duchenne
1y ago
For our second episode Phillip and Jon are joined by musician and adult with DMD Alex James, who talks to us about his new single Direction and life as a musician with DMD.
Alex James' single is available on spotify here: https://open.spotify.com/album/0LNlndSYFJr4yG1N9BKS4d?si=KOR2GODbTVawGIW0zp2kWA ..read more
DMD Pathfinders - Life and the world with Duchenne
1y ago
In our pilot podcast episode, DMD Pathfinders discuss life and the world with Duchenne. Phillip Carroll hosts Jon Hastie and Mark Chapman, cofounders of DMD Pathfinders who talk about their personal journey with Duchenne, travel, road trips and flying with a wheelchair ..read more
DMD Pathfinders - Life and the world with Duchenne
1y ago
In the third episode of the Pathfinders Podcast Sanjeev and Gianluca discuss their mental health. ..read more