
Beyond Labels and Limitations
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Welcome to the podcast for Beyond Labels & Limitations. Jen & John talk about living a life with Muscular Dystrophy. BL&L, started as an organization to raise money dedicated exclusively to Limb-Girdle Muscular Dystrophy 2A (LGMD2A) and to educate on the disease course and associated struggles of LGMD2A, as recounted through my personal experiences.
Beyond Labels and Limitations
2y ago
On episode 95 of Beyond Labels & Limitations, JOHN GRAYBILL shares his new job, what is going on with him physically and how trusting that everything is unfolding as it should has changed him.
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Connect with John:
YouTube Channel
Website
Email: BLLjenjohn@gmail.com
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"Desire to Inspire" TKG  ..read more
Beyond Labels and Limitations
2y ago
On episode 93 of Beyond Labels & Limitations, John Graybill shares an insight he had while writing. The insight is into being vulnerable and how that vulnerability led to avoidance. It was from avoidance that he discovered he wasn't accepting his diagnosis.
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Connect with John:
YouTube Channel
Website
Email: BLLjenjohn@gmail.com
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"Desire to Inspire" TKG ..read more
Beyond Labels and Limitations
3y ago
On episode 91 of Beyond Labels & Limitations, John Graybill shares the battle that takes place within his mind after a fall and how that battle determines his actions going forward. John also shares what he got from volunteering at his daughters elementary school.
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Connect with John:
YouTube Channel
Website
Email: BLLjenjohn@gmail.com
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"Desire to Inspire" TKG ..read more
Beyond Labels and Limitations
3y ago
On episode 89 of Beyond Labels & Limitations, John Graybill shares how he physically just got over his last fall, in terms of bumps and bruises, only to have another fall today. John shares the importance of not allowing the situations in life to bring you down but rather to keep going no matter how small a step you take, don't give up.
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Connect with John:
YouTube Channel
Website
Email: BLLjenjohn@gmail.com
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"Desire to Inspire" TKG ..read more
Beyond Labels and Limitations
3y ago
On episode 88 of Beyond Labels & Limitations, John Graybill shares what his day looks like. John is ambulatory, 44 years old, been living with the diagnosis for 27 years but the first signs of weakness showed up 33 years ago at the age of 12, and he hasn't worked since 2006 (16 years ago). This podcast is to show what your life could look like, if you have LGMD, but your life could also be better in terms of strength, depending on what type of LGMD you have and the mutations. So, use this podcast as a rough outline of what your life could be like if you were diagnosed at 17 with LGMD2A/R1 ..read more
Beyond Labels and Limitations
3y ago
On episode 84 of Beyond Labels & Limitations, John Graybill shares how his cat tried to kill him with a Karate Kid style move of sweeping the leg. John shares how he felt during and after the fall and how the world can seem to be coming down on you. But, all was not lost as a little boy rollerskating showed him one important lesson.
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Connect with John:
YouTube Channel
Website
Email: BLLjenjohn@gmail.com
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"Desire to Inspire" TKG ..read more
Beyond Labels and Limitations
3y ago
On episode 79 of Beyond Labels & Limitations, John Graybill shares how he went from a "get rid of this disease" mentality to "How do I live with this." It wasn't easy at first questioning his beliefs/thoughts but once he saw them for what they were, self-limiting, he set out to dismantle their power over him.
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Connect with John:
YouTube Channel
Website
Email: BLLjenjohn@gmail.com
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"Desire to Inspire" TKG ..read more
Beyond Labels and Limitations
3y ago
On this final episode of season 2 of Beyond Labels & Limitations, John Graybill shares what he has learned from himself over the past year while living with Limb Girdle Muscular Dystrophy. All was not bad. In fact, when John can create some distance from his "sufferings" is when he learns the most from muscular dystrophy.
Merry Christmas and Happy Holidays!
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Connect with John:
Website
YouTube Channel
Email: BLLjenjohn@gmail.com
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"Desire to Inspire" TKG ..read more
Beyond Labels and Limitations
3y ago
On episode 76 of Beyond Labels & Limitations, John Graybill shares what having a mobility scooter has done for him, what beliefs he had about having the scooter, and a play he went to with his family. There are lessons in everything and it's up to us to find them.
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Connect with John:
YouTube Channel
Website
Email: BLLjenjohn@gmail.com
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"Desire to Inspire" TKG ..read more
Beyond Labels and Limitations
3y ago
On episode 75 of Beyond Labels & Limitations, John Graybill talks about self esteem and living with a disease like muscular dystrophy.
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Connect with John:
Website
YouTube Channel
Email: BLLjenjohn@gmail.com
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"Desire to Inspire" TKG ..read more