Don't walk the journey by yourself
Lymphoma Voices
by Lymphoma Action
3M ago
In this podcast Mike and Kasia talk about their diagnosis of cutaneous (skin) lymphoma. Mike has had skin lymphoma since 1999 and Kasia was diagnosed in 2023.  Both Mike and Kasia are living with mycosis fungoides (MF), which is the most common type of skin lymphoma. Five years seems to be a bit of a theme, as Mike was living with MF for five years before he found out he had a skin lymphoma. Kasia started struggling with severe itching when she was pregnant and it was hoped the itching would go away once the baby arrived. However, it ended up taking five years until a diagnosis was finall ..read more
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A life amplified
Lymphoma Voices
by Lymphoma Action
6M ago
In our latest podcast, Def Leppard guitarist Vivian Campbell talks about his career and his diagnosis of Hodgkin lymphoma. He explains how Marc Bolan of T-Rex inspired him to become a musician and the joy and theatricality of performing with Def Leppard worldwide. Troubled by a number of symptoms, he shares his feelings on having a diagnosis of Hodgkin lymphoma and the treatment he was facing. He explains how he was certain he wanted to keep working as music is his life and how, not for the first time, the band were able to adapt.  Viv speaks with honesty about the challenges of the vario ..read more
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Health Technology Assessments: NICE providing support to the NHS in the best way for the benefit of patients
Lymphoma Voices
by Lymphoma Action
8M ago
Helen Knight, Director of Medicines and Evaluation at the National Institute of Health and Care Excellence (NICE), talks to Lymphoma Action’s Policy and Public Affairs Advisor, Tara Steeds. In the podcast they discuss Health Technology Assessments and their role in making new treatments available through the NHS. They also discuss the role and impact of people with lived experience of lymphoma in the process, as well as that of organisations like Lymphoma Action.  Lymphoma Voices is a series of podcasts for people living with lymphoma, and their family and friends. In each podcast, we are ..read more
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Having courageous conversations with your important people
Lymphoma Voices
by Lymphoma Action
10M ago
Dallas and Lesley share a passion to change society’s relationship with death and dying, and to support all of us to have timely conversations about our wishes, should a time come when we can no longer speak for ourselves; through a lack of mental capacity or when we die.  Courageous conversations with those who are important to us can be empowering and reassuring for those we leave to make decisions on our behalf. In this podcast, Dallas and Lesley talk about triggers for thinking about these issues, practical things to consider, how to plan for and have these conversations, and how - on ..read more
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Beating the odds is not without its challenges
Lymphoma Voices
by Lymphoma Action
1y ago
John’s lymphoma story begins almost 50 years ago in the shipyards of Newcastle and a diagnosis of Hodgkin lymphoma that was kept from him. In a twist of fate, his daughter also received a blood cancer diagnosis. In this podcast John talks about his emotional lymphoma experience which led him to a career as a lymphoma clinical nurse specialist and more recently an author. He talks also about what helped him through some dark times and how he feels about being one of the longest cancer survivors.  Lymphoma Voices is a series of podcasts for people living with lymphoma, and their family and ..read more
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With a low-grade lymphoma, I feel like I’m living on countdown
Lymphoma Voices
by Lymphoma Action
1y ago
Lou was diagnosed with follicular lymphoma in 2017. In this podcast, she talks about how living with a low-grade non-Hodgkin lymphoma can be challenging; wondering when and if you will need treatment again, the impact of living with lymphoma on her mental health, and the value of information and support at the right time. Lymphoma Voices is a series of podcasts for people living with lymphoma, and their family and friends. In each podcast, we are in conversation with an expert in their field, or someone who has been personally affected by lymphoma, who shares their thoughts and experiences. &n ..read more
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Lymphoma Voices Talking about stem cell transplants
Lymphoma Voices
by Lymphoma Action
1y ago
Angie and John talk to Anne about the role of stem cell transplants in the treatment of lymphoma, when they are used, and the important differences between allogeneic (donor) and autologous (self) transplants, and the challenges in deciding between these two different treatment options. This podcast includes discussions around this often very difficult subject, and contains information on side effects and treatment outcomes that may be potentially distressing.  Lymphoma Voices is a series of podcasts for people living with lymphoma, and their family and friends. In each podcast, we are in ..read more
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Two perspectives, one lymphoma   
Lymphoma Voices
by Lymphoma Action
1y ago
 Lyle was diagnosed with Hodgkin lymphoma in 2021, at the age of 19. In this podcast, Lyle and his mum Julie talk about their shared experience of lymphoma, from diagnosis to treatment and beyond, and how their experience inspired them to fundraise for Lymphoma Action.  Lymphoma Voices is a series of podcasts for people living with lymphoma, and their family and friends. In each podcast, we are in conversation with an expert in their field, or someone who has been personally affected by lymphoma, who shares their thoughts and experiences.     Lymphoma Action is the onl ..read more
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The role of the radiologist in the diagnosis and management of lymphoma
Lymphoma Voices
by Lymphoma Action
1y ago
Manil Subesinghe, talks to us about the vital role radiology plays in the diagnosis and management of lymphoma. This podcast gives an insight into this key role in guiding treatment and decision-making, reviewing treatment outcomes, and in overall supporting individuals with lymphoma ..read more
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Volunteering: a sense of community
Lymphoma Voices
by Lymphoma Action
2y ago
Two of our volunteers Penny and Mark join Carly, Volunteering Development Manager, to share life as a Lymphoma Action volunteer and how their volunteering makes a difference for people affected by lymphoma and their own personal experience of lymphoma ..read more
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