An Inside Look (Part II) at DIPG, Childhood Brain Cancer with Wendy Fachon and Janet Demeter
Childhood Cancer Talk Radio Podcasts
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1w ago
Both advocates and moms share the parallel of their personal experiences with their sons who were both diagnosed with DIPG, with Wendy's son Neil Fachon diagnosed at age 19 in 2016, and Janet's son Jack Demeter diagnosed in 2012. A continuation of a deep conversation from last week, the two share their hope and inspiration for continued advocacy as well as some of their hard-fought successes in the field. Despite the growing attention to the pediatric brain cancer research space, nothing has to date changed for the average family with a child diagnosed with DIPG from the experience 60 years ag ..read more
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A Look Back at Gabriella Miller Kids First, with Ellyn Miller
Childhood Cancer Talk Radio Podcasts
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1w ago
We were blessed to begin this show 7 years ago when the very first resolution for childhood brain cancer awareness was introduced into US Congress, the DIPG Awareness Resolution. Our second show featured an interview with Ellyn Miller, CEO of Smashing Walnuts Foundation in Leesburg, VA in honor of her daughter Gabriella who fought DIPG and perished in 2013, just 3 years prior at the time of the interview. You will hear how Gabriella's fight, her advocacy for other children, and her confrontational stance with Congress to take more action for our children led to the Gabriella Miller Kids First ..read more
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Saving Sophie with NKORE Biotherapeutics and Tracy Ryan
Childhood Cancer Talk Radio Podcasts
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1w ago
Today's interview features the amazing Tracy Ryan and the company NKORE Biotherapeutics which she founded with Dr. Anahid Jewett, mastermind of the new NK cell technology and immunotherapy. Tracy shares with us the story of her daughter Sophie who has endured cancer and its treatments since she was not yet a year old, with miraculous results with NKORE's therapies, and also the current challenges to the medical research investment culture for smaller companies, even with great promise like NKORE. Investors on a mission to find the cure for cancer? Look no further!! It's an honor and a pleasure ..read more
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Revisiting our April 2022 interview with Tracy Ryan, NKORE Biotherapeutics and Founder of Cannakids
Childhood Cancer Talk Radio Podcasts
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1w ago
When Tracy & Josh Ryan’s daughter Sophie was diagnosed with a low-grade brain tumor at just 8 ½ months old, they knew they had to take action. Their wellness journey began when Tracy’s family was featured in the Ricki Lake produced Netflix documentary, Weed the People. This led the Ryans to become leading trailblazers in the use of cannabis for pediatric disease through their brand CannaKids, and their global advocacy efforts. Through Tracy’s partnership with world-leading cancer research scientist in the field of Natural Killer Cells, Dr. Anahid Jewett, she helped drive groundbreaking res ..read more
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Megan Buggs Legacy, with Dr. Kent Bugg and Leanna Headley
Childhood Cancer Talk Radio Podcasts
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1M ago
We are privileged to give you the opportunity to visit with Dr. Kent Bugg and Leanna Headley to learn more or to reminisce about this extraordinary force in childhood cancer advocacy and dynamic young woman, Megan Bugg. The Megan Bugg Global Rhabdomyosarcoma Laboratory at cc-TDI's new location in Hillsboro OR, opens April 29th 2023, on the eve of the one year anniversary of her death. The event serves as a dedication of the laboratory at this precious moment for the Bugg family ..read more
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Jack's Heart for Ukraine Supports Kids-of-Ukraine, with US Outreach Coordinator Devan Tatlow
Childhood Cancer Talk Radio Podcasts
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3M ago
We bring you this interview with Devan Tatlow once more just after the year anniversary of the terrible war waged upon Ukraine by its neighbor Russia, to bring attention to the work of Kids-of-Ukraine and the fundraising efforts to support them at this powerful moment. Through March 24, the event hosted by Jack's Angels and Charity Footprints brings attention to, and supports financially with event proceeds, the critical work of "Kids-of-Ukraine" and their work in rescuing children with cancer and their families in the war-torn country. Devan Tatlow gives us a precious window into the realitie ..read more
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Shining A Light on Grief with Susan Lataille, Author
Childhood Cancer Talk Radio Podcasts
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3M ago
Susan Lataille joins us today live to share her book series with the latest edition, Shining a Light on Grief, real women sharing real stories of love and loss, coming in April 2023. Susan has been producing professional events for the wellness industry in and around her community in Rhode Island for over 12 years. Since the passing of her son Nathan in 2017, she has been guided to help others through the grieving process, and in 2021, she was ready to take the step to become a Certified Master Grief Coach. She now assists others along their own grieving journey by offering love, compassion, a ..read more
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Our Nation's Best: A Kid Again, with Kathy Derr
Childhood Cancer Talk Radio Podcasts
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3M ago
Today's show features an interview with Kathy Derr, Co-Founder and Director of Family Engagement for A Kid Again, a national organization with a mission to foster hope, happiness and healing for children with life-threatening health conditions and their families. The organization provides cost-free, consistent, year-round activities that create meaningful shared experiences and joy-filled memories. A Kid Again serves families in all 50 states, growing and enrolling families, and providing support resources and connections to help families cope with the challenges of raising children with diffi ..read more
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Full Interview, Chief Mission Officer Andy Woods with cc-TDI
Childhood Cancer Talk Radio Podcasts
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3M ago
From contented stone mason living the dream with his family in beautiful Montana, to scientific investigator at the leading US biotech institute for childhood cancer research, here is an amazing story! Today's show brings to you the complete interview with Andy Woods, Chief Mission Officer with Children's Cancer Therapy Development Institute in the outlying western suburbs of Portland Oregon. Andy gives us generous insight into family life before a life threatening diagnosis for his daughter, and how this event triggered a career transition which was nothing short of divinely guided, as Andy's ..read more
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Kids-of-Ukraine, with Devan Tatlow
Childhood Cancer Talk Radio Podcasts
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5M ago
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