March is Kidney Month! Join us for a conversation with Dr. Brad Rovin, an expert in autoimmune kidney disease, where we talk about lupus nephritis and kidney health for people with lupus ..read more

In this episode, we talk with Dr. Sasha Bernatsky, about lupus and cancer, if there’s a link between lupus and cancer, and a new abstract about cancer incidence and risk factors in a large SLE cohort.  Dr. Bernatsky is a rheumatologist, a James McGill professor and a senior scientist in the Centre for Health Outcomes Research and Division of Clinical Epidemiology at the Research Institute of the McGill University Health Centre. Her expertise lies in using ‘big data’ from health services, linked to additional clinical sources of information. Read more about lupus facts and statistics L ..read more

In this episode of the Expert Series, we speak with Dr. Christie Bartels about stress and stress management for people with lupus. Dr. Bartels covers how to manage stress, resources to manage stress and the difference between stress symptoms and lupus symptoms.  Dr. Bartels is Division Chief of Rheumatology at the University of Wisconsin School of Medicine and Public Health and Chair of the American College of Rheumatology (ACR) RISE Registry Health IT Committee. As a rheumatologist health services and implementation researcher, Bartels’ work aims to improve cardiovascular health and redu ..read more

In this episode of The Expert Series, Dr. Tamar Rubinstein, a pediatric rheumatologist at the Children’s Hospital at Montefiore in New York, talks with us about how lupus affects teenagers, how they can cope with lupus, and how to communicate with health care providers as teens get older.  Her research focuses on improving mental health and disease outcomes in youth with lupus and has been funded by the Lupus Foundation of America, the Rheumatology Research Foundation, the Childhood Arthritis and Rheumatology Research Alliance (CARRA)/ Arthritis Foundation, and the National Institute of ..read more

In this episode of The Expert Series, Dr. Anca Askanase, professor of medicine, the founder and director of Lupus Center and director of Rheumatology Clinical Trials at the Division of Rheumatology of the Columbia University Irving Medical Center in New York City, will be sharing about her role in the successful treatment of a catatonic woman who awakened after 20 years. Read the article on April’s case and others on the Washington Post, How autoimmune disease can attack the brain, cause psychiatric symptoms Lupus resources: Coping with the cognitive symptoms of lupus What is inflammation ..read more

In this episode, we talk with Dr. Jillian Rose-Smith, vice president and chief equity officer at the Hospital for the Special Surgery, about lupus in the LGBTQ+ communities. We discuss what it means to have gender affirming care, how to protect yourself from implicit bias in the healthcare space and  how to get the support you need. Review these resources to learn more: What role do sex and gender play in lupus? Lupus facts and statistics What is self-advocacy Speak with a health educator Fenway Health - A health organization dedicated to helping LGBTQ+ communities SUBSCRIBE to recei ..read more

In this month’s episode, we learn more about visible symptoms of lupus with Dr. May Choi. Dr. Choi will discuss the difference between visible and invisible symptoms, treatment options, and ways to cope with visible manifestations of lupus. Dr. Choi is a rheumatologist, clinician scientist, and Assistant Professor at the Cumming School of Medicine, University of Calgary. Resources Check out our previous episode about invisible symptoms with Dr. Cynthia Aranow Use this sheet to keep track of your lupus symptoms Learn how lupus affects the body ..read more

Dr. Cynthia Aranow explains the impact of invisible symptoms in this episode of The Expert Series. Learn the difference between a sign and symptom and how to discuss this topic with your health care team and loved ones. Review these resources to learn more about this topic: https://www.lupus.org/resources/understanding-the-invisible-impact-of-lupus https://www.lupus.org/resources/ten-things-to-tell-your-friends-about-lupus https://www.lupus.org/resources/learn-ways-to-better-manage-your-lupus https://www.lupus.org/resources/financial-assistance SUBSCRIBE to receive an email update when new e ..read more

In this episode of The Expert Series, we explore the topic of Step Therapy and access to medications. LFA’s Health Education Specialist and Manager Ashley Holden will explain what Step Therapy is and how it can affect people with lupus. Related resources Check out LFA’s Policy Spotlight on Step Therapy Medications that treat lupus Learn how to self-advocate for yourself or a loved one here ..read more

Inflammation from lupus and treatments can affect a person’s bone density, which makes it easier for someone with lupus to break a bone. Dr. Ummara Shah, associate professor in the department of medicine at University of Rochester, discusses why it’s important for people with lupus to care about their bone health. Dr. Shah also leads clinical trials in lupus and is involved in education of lupus patients at the University of Rochester. More resources on how to manage bone health: https://www.lupus.org/resources/how-lupus-affects-the-bones https://www.lupus.org/resources/osteoporosis-managemen ..read more