
Insight Into Ocular Melanoma
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Ocular melanoma information on treatment, research, and living with ocular melanoma.
Insight Into Ocular Melanoma
1w ago
Join A Cure in Sight as they bring you some brief mini interviews from attendees and presenters at AACR, the American Association of Cancer Research, hosted in Orlando in April 2023.
Dr. Meredith McKean and Dr. Liya Xu share some unique insights on uveal melanoma research that is happening now.
Thanks for tuning in! Don't forget to subscribe and continue to listen in!
ANNOUNCEMENTS:
5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved!
June 10, Minneapolis, MN
https://bit.ly/3o5Mwr2
June 11, Philly, PA
https://bit.ly/3U4hsUH
&nbs ..read more
Insight Into Ocular Melanoma
1w ago
A Cure in Sight is joined on The Eye Believe Podcast by Dr. Mohammed Dar, who is the Chief Medical Officer of Immunocore. Tune in to learn more!
In this brief discussion, Dr. Dar shares the origin and history of Immunocore, how they got started, and how their field came to include uveal melanoma.
To access the lists of currently recruiting clinical trials relevant to uveal melanoma, head to clinicaltrials.gov and search uveal melanoma.
Thank you again to Immunocore for their continued work for patients with rare diseases like Uveal Melanoma.
ANNOUNCEMENTS:
5K SITES ARE OPEN FOR REGISTRAT ..read more
Insight Into Ocular Melanoma
3w ago
Join A Cure in Sight and Dr. Maureen Sanger to discuss protecting your mental health as a patient with ocular melanoma.
A few key points from this episode:
"Switch focus from the what if to what is?"
"Grief is something we tend to."
When in doubt, let it RAIN:
R - Recognize emotions
A - Allowing emotions to be felt/ accepting them as what is
I - Inspect/Investigate your emotions "why am i feeling this way?"”
N - Nurturing yourself - "what do I NEED right now?"
Great books to read:
When Life Gets Hard by Russ Harris
When Things Fall Apart by Pema Chodron
Maureen Sanger, PhD is a psycho ..read more
Insight Into Ocular Melanoma
1M ago
Join A Cure in Sight and Dr. Basil Williams to discuss Pros and Cons of Radiation to the Eye.
Treatment options are covered, based on factors such as eye tumor location, size, possibility of retaining vision. Side effects of various radiation based treatments are discussed. The impact of a biopsy at time of treatment or before is discussed.
Tune in and be sure to subscribe and share, plus make a contribution to keep our podcast going!
Basil K. Williams Jr. MD is an Associate Professor of Ophthalmology at the Bascom Palmer Eye Institute, where he specializes in ocular oncology and vitre ..read more
Insight Into Ocular Melanoma
1M ago
SPECIAL ANNOUNCEMENT!
First up, it’s our 10th anniversary this month! All month long we’ve been sharing challenges on social media to invite you to share with 10 people about ocular melanoma. From now until April 30th, you can also be part of the YOU + 10 challenge for our Lookin for a Cure Walks!
HOW IT WORKS?
BEFORE April 30th, register for a Lookin' For a Cure 5k walk near you, or register virtually. Walks are happening between May and December.
Name your team (the chance to do this is on the first page of the sign up)! Send a link to your team to family and friends to register with you ..read more
Insight Into Ocular Melanoma
1M ago
Join A Cure in Sight and Lisa Durbin, spouse and caregiver to Mike Durbin, an ocular melanoma patient in the metastatic community. The role of caregiver is discussed, as well as the toll this can take on a relationship, on the family as a whole. Tune in for an incredibly insightful and validating episode.
You can connect with Lisa and Mark directly to discuss their alternative approaches to metastatic management and glean from their hopeful story here: https://www.facebook.com/ldurbin1
ANNOUNCEMENTS:
5K SITES ARE OPEN FOR REGISTRATION NEAR YOU!
May 20, Raleigh, NC
https://bit.ly ..read more
Insight Into Ocular Melanoma
1M ago
Join A Cure in Sight host, Danet Peterson, as well as 3 other omies for "Enucleation 101," part 2 of a 2 part episode release covering the varying experiences of enucleation of 3 more patients, their tips for recovery, as well as their insights on the process as a whole.
Discussion of the prosthetic eye is not covered but we have plans to cover an ocularist and a panel of adjusting to the experience of having a prosthetic eye.
Panelists featured:
Julie LeBlanc
Lindsay (lind-SAY) Brown
Kristen MacDonald
Please share these 2 episodes with anyone considering Enucleation as a treatment path ..read more
Insight Into Ocular Melanoma
2M ago
Join A Cure in Sight and Dr. Dalvin and Dr. Moser for this special Rare Disease Day Webinar, recorded live on Feb 28, 2023.
Are you RARE²? Ocular Melanoma affects 6 per million people each year. Of those diagnosed, children and minority communities (people of color, indigenous peoples, etc.) make up an even smaller percentage of the patient population.
Dr. Lauren Dalvin and Dr. Justin Moser, who attended medical school together, were part of a discussion on the importance of awareness for rare diseases, and how they got involved in the work of ocular melanoma specifically.
Dr. Laur ..read more
Insight Into Ocular Melanoma
3M ago
Join A Cure in Sight to discuss systemic therapies for metastatic uveal melanoma with Dr. Meredith McKean.
We discuss when to use systemic therapies, what is out there besides KIMMTRAK, how to determine a path forward for introducing systemic therapies in metastatic management
McKean received her bachelor's degree from Iowa State University, where the promising athlete ran cross-country and track. During fellowship, McKean studied biomarkers for response to immune checkpoint inhibitors (ICI) in metastatic melanoma, earning her an American Society of Clinical Oncology 2017 Young I ..read more
Insight Into Ocular Melanoma
3M ago
Join A Cure in Sight to briefly interview Yvonne, Presley, and Kenny; patients who are some of the “rare among the rare” or the RARE² in honor of Rare Disease Day. Yvonne, Presley, and Kenny show their stripes by expressing what navigating their journey with ocular melanoma has looked like–and how that has differed from the mainstream community. Ocular melanoma is most commonly found in fair skinned, light eyed males over the age of 50 according to most statistics found online. These 3 patients demonstrate the statistics just don’t accurately depict those in our community who are here, living ..read more