Episode 418 - Sanjay Mehta, MD
I'm Aware That I'm Rare
by phaware global association
2d ago
PHA Canada Board Director, Sanjay Mehta, MD, on 15 years of inspiring achievements in advocacy, research, and community support for the 2023 National PH Community Conference taking place June 9-10 in Ottawa, ON and what lies ahead for the future. PHA Canada invites you to celebrate 15 years of inspiration at this year’s National Community Conference June 9-10! Can’t join in person? Register as a virtual participant! Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a cure: www.phaware.global/donate #phaware Sh ..read more
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Episode 417 - Nicole Dempsey
I'm Aware That I'm Rare
by phaware global association
1w ago
Pulmonary Hypertension patient and PHA Canada Board Chair, Nicole Dempsey, celebrates 15 years of inspiring achievements in advocacy, research, and community support for the 2023 National PH Community Conference taking place June 9-10 in Ottawa, ON. PHA Canada invites you to celebrate 15 years of inspiration at this year’s National Community Conference June 9-10! Can’t join in person? Register as a virtual participant! Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a cure: www.phaware.global/donate #phaware ..read more
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Episode 416 - Katharine Clapham, MD
I'm Aware That I'm Rare
by phaware global association
2w ago
Katharine Clapham, MD is an Assistant Professor in the Division of Cardiovascular Medicine at University of Utah Health. @UofUHealth In this episode, Dr. Clapham discusses methamphetamine-associated pulmonary arterial hypertension. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a cure: www.phaware.global/donate #phaware Share your story: info@phaware.com ..read more
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Episode 415 - Uli Campbell
I'm Aware That I'm Rare
by phaware global association
3w ago
In this episode, newly diagnosed pulmonary arterial hypertension patient, Uli Cambell, discuss her rollercoaster of emotions and how educating herself about PH has given her hope in navigating and advocating for her rare disease. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a cure: www.phaware.global/donate  #phaware Share your story: info@phaware.com ..read more
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Episode 414 - Elise Whalen, MSN, APRN
I'm Aware That I'm Rare
by phaware global association
1M ago
Elise Whalen is a Family Nurse Practitioner from Texas Children's Hospital’s Pulmonary Hypertension program. In this episode, she discusses the importance of mental health screening and how the PPHNet is undertaking a multi-center study addressing the impact anxiety and depression has on their pediatric PH patients. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a cure: www.phaware.global/donate #phaware Share your story: info@phaware.com #phawareMD #PPHNet @TexasChildrens @PPHNet ..read more
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Episode 413 - Nidhy P. Varghese, MD
I'm Aware That I'm Rare
by phaware global association
1M ago
Nidhy P. Varghese, MD is a pediatric pulmonologist and the Medical Director of the pediatric pulmonary hypertension program from Texas Children's Hospital. In this episode, Dr. Varghese discusses transitioning from a pediatric PH care team to an adult medical care team.  Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a cure: www.phaware.global/donate #phaware Share your story: info@phaware.com #phawareMD #PPHNet @TexasChildrens @PPHNet ..read more
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Episode 411 - Steven Abman, MD
I'm Aware That I'm Rare
by phaware global association
1M ago
Dr. Steven Abman is Professor of Pediatrics-Pulmonary Medicine and Director of the Pediatric Heart Lung Center (PHLC) at the University of Colorado Denver Anschutz School of Medicine and Children’s Hospital Colorado.  In this episode, Dr. Abman gives an overview of The Pediatric Pulmonary Hypertension Network (PPHNet), a network of clinical specialists, researchers, and centers bringing a collaborative and multidisciplinary approach to improving care for children with pulmonary vascular disease. He also discusses takeaways from the 15th International Neonatal & Childhood Pulmonary Vas ..read more
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Episode 409 - Dr. Bernard Thébaud
I'm Aware That I'm Rare
by phaware global association
2M ago
Dr. Bernard Thébaud is a clinician-scientist with a focus on the clinical translation of stem cell-based therapies for lung diseases. Dr. Thébaud is a senior scientist with the Ottawa Hospital Research Institute (OHRI) and Children’s Hospital of Eastern Ontario Research Institute (CHEO RI), and a neonatologist with the Children’s Hospital of Eastern Ontario (CHEO), where he provides care to critically ill newborns.  In this episode Dr. Thébaud discusses the importance of innovative cell-based or gene therapies to lessen pulmonary hypertension. Learn more about pulmonary hypertension trial ..read more
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Episode 408 - Danny Thomas
I'm Aware That I'm Rare
by phaware global association
2M ago
In this episode, longterm pulmonary hypertension survivor, Danny Thomas, discuss transitioning into adulthood with PH, navigating relationships, fatherhood, and the power of a positive mental approach to his rare disease. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a cure: www.phaware.global/donate  #phaware Share your story: info@phaware.com ..read more
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Episode 407 - Kori Siroky
I'm Aware That I'm Rare
by phaware global association
3M ago
In this episode, pediatric pulmonary hypertension caregiver, Kori Siroky, gives a raw and emotional account of her daughter Lilly's 13 year battle with PH. This interview was conducted on the 4th anniversary of Lillyanna's passing. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a cure: www.phaware.global/donate  #phaware Share your story: info@phaware.com ..read more
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