Just a little less than two months until our signature fundraiser, Cool Comedy • Hot Cuisine, a Tribute to Bob Saget–and this eNews shares who’s performing! In addition, learn more about raising awareness for ILD day, how one woman navigates living with scleroderma, and how an artist is supporting research through custom glass handbags. Read More The post SRF eNews: September 2023 Edition appeared first on Scleroderma Research Foundation ..read more

It’s that time–this month’s eNews is now available to read online. Learn more about how we’ve launched a highly innovative platform clinical trial, CONQUEST. And, registration is now open for our signature fundraiser, Cool Comedy • Hot Cuisine — a tribute to Bob Saget. Read More The post SRF eNews: August 2023 Edition appeared first on Scleroderma Research Foundation ..read more

This month’s eNews contains a big announcement–find out who is the first ever recipient of the Bob Saget Legacy Award. And don’t miss the rest of these stories, like why one woman living with scleroderma participates in research, and how you can participate in a global scleroderma survey. Read More The post SRF eNews: July Edition appeared first on Scleroderma Research Foundation ..read more

It’s the Scleroderma Awareness Month edition of our eNews! We’re featuring a couple ways people living with scleroderma have helped raise awareness this month, from state proclamations to a documentary on Amazon Prime. And don’t miss the recordings from our Patient Forum earlier this month–now on YouTube! Read More The post SRF eNews: June 2023 Edition appeared first on Scleroderma Research Foundation ..read more

Boehringer Ingelheim is second partner Initial focus on Interstitial Lung Disease Secondary to Scleroderma SRF will submit and hold the IND as the trial Sponsor IND planned for late 2023 SAN FRANCISCO, October 3, 2023 — The Scleroderma Research Foundation (SRF), the nation’s largest non-profit funder of scleroderma research, today announced that Boehringer Ingelheim, a leading research-driven biopharmaceutical company, will contribute an experimental agent to CONQUEST, a highly innovative clinical trial platform created by the SRF. Boehringer Ingelheim is the second company to join CONQUEST ..read more

“I lost a lot of me.” This is what Cynthia, dx 2021, shared about living with scleroderma. It’s just one of many reasons why she participates in research that accelerates progress towards a cure. When Cynthia’s doctor asked her to enroll in CONQUER, the nation’s first longitudinal registry launched by the SRF to track scleroderma patient data over time, she said yes immediately. “I wanted to be involved in something to find out more about scleroderma,” she says. Cynthia knows her participation in research is as critical as funding it. “All that we do in research takes money,” she says. “We ..read more

• Sanofi is inaugural partner • Initial focus on Interstitial Lung Disease Secondary to Scleroderma • SRF will submit and hold the IND as the trial Sponsor SAN FRANCISCO, August 1, 2023 — The Scleroderma Research Foundation (SRF), the nation’s largest non-profit funder of scleroderma research, today announced that Sanofi will contribute the first experimental agent to CONQUEST, a highly innovative clinical trial platform created by the SRF. The platform is designed to rapidly advance promising treatments for scleroderma and to identify those agents that should progress from Phase 2b to Phase 3 ..read more

When Ken first studied Swiss-German artist Paul Klee in art school, he had no idea that he would be diagnosed in 2000 with the same disease Klee suffered from: scleroderma. And so, Ken created “Angel Applicant,” a documentary on both Ken’s and Klee’s experiences with this disease. This video shared here is an excerpt. For Scleroderma Awareness Month—which is anchored with World Scleroderma Day on Paul Klee’s birthday, June 29—we asked Ken if he’d share more about this film and how he views research as a critical part of being able to tell his story. Here’s what he has to say. What compell ..read more

Join us in giving a big hand to SRF Cure Crew members Beth and Lisa for hosting a pickleball tournament fundraiser—raising over $37,000 for scleroderma research! Beth is a long-time SRF Cure Crew member, with over 20 years of charity golf tournaments and restaurant cause-related fundraisers under her belt. She began fundraising after her mom was diagnosed with scleroderma in 1997. “After I was introduced to the Scleroderma Research Foundation, Tony & I began hosting events to raise awareness and funding to find a cure,” she says. “After losing Mom, we promised to continue that fight!” Tapp ..read more

Dear Friends,  Thank you for your dedication to the mission of the Scleroderma Research Foundation (SRF) where research is at the center of everything we do. Below you’ll find an update on our recent research highlights and upcoming activities to accelerate progress towards a cure. The SRF has recently completed the design of— and is preparing to launch— CONQUEST, the first-ever scleroderma adaptive clinical trial platform. CONQUEST is a large, international, multi-center trial platform which aims to speed the development of new effective therapies to treat SSc-ILD. It ..read more