For persons with Geographic Atrophy due to Dry Age-related Macular Degeneration: Lagrippe Research is inviting three individuals diagnosed with Geographic Atrophy to participate in our upcoming discussion. We are also interested in speaking with family members / loved ones that assist and support people who have been diagnosed with GA. The research’s purpose is to [Read More ..read more

Apellis is seeking potential participants for its Patient Ambassador Program. As part of the program, participants will take part in trainings for the preparation of events where they may share about their geographic atrophy (GA) journey. Please understand that a limited number of individuals will be selected to participate. Apellis staff will talk with you [Read More ..read more

As part of AMD Awareness Month, and having declared the fourth week in February Access in Sight – National Macular Degeneration Advocacy and Action Week, the Age-related Macular Degeneration Foundation (AMDF) is inviting members of the AMD community to come to Washington, DC, on February 28-29, to meet with their representatives in Congress and the Senate to [Read More ..read more

On March 1, Dr. Todd Durham (Ph.D., Senior Vice President, Clinical & Outcomes Research, Foundation Fighting Blindness) will lead a dry AMD patient-focused drug development seminar. The online event is open to all (patients, families, professionals) and will include a panel of patients talking about their experiences with dry AMD. Volunteers for the panel are [Read More ..read more

The application period is now open for all who wish to participate in the  ASPECT (Advocacy, Support, Perspective, Empowerment, Communication, and Training) Patient Engagement Program at Prevent Blindness. We are recruiting individuals with vision impairment or blindness as well as allies (i.e. parents or guardians, care partners, nonprofit representatives, multidisciplinary clinicians, eye care providers, and [Read More ..read more

A Summary of the Past 30 Years of Low Vision Research and Development (An update presented to the International Low Vision Support Group by Director Dan Roberts) Macular Degeneration Support’s International Low Vision Support Group will soon celebrate its 30th year as a leading outreach to people affected by macular degeneration and other diseases leading [Read More ..read more

Eye specialists at New York University Langone Health have announced success with the first transplantation of a complete human eyeball. High-voltage lineman Aaron James, 46, lost his eye in an electrocution accident on June 10, 2021. His multiple surgeries included a partial face transplant, during which the surgeons decided to also replace his eye. This [Read More ..read more

We hope this message finds you well. Prevent Blindness is helping VOZ Advisors, a consulting firm that specializes in patient advocacy and engagement during the drug development process. They are currently working with a global biopharmaceutical company to gain a deeper understanding of the challenges and experiences faced by individuals living with neovascular age-related macular degeneration [Read More ..read more

David Boyer, M.D. – Therapeutic Targets for Dry AMD October 3, 2023 at 7:00 p.m. EDT Registration:   https://bit.ly/45FfFdB   The Foundation Fighting Blindness, the global leader in driving research for treatments and cures for blinding retinal diseases, will host a free webinar on Tuesday, October 3, 2023, from 7:00 – 8:00 p.m. ET. During the [Read More ..read more

The application period is now open for all who wish to participate in the ASPECT (Advocacy, Support, Perspective, Empowerment, Communication, and Training) Patient Engagement Program at Prevent Blindness. Individuals with vision impairment or blindness are welcome to participate, as well as allies (i.e. parents or guardians, care partners, nonprofit representatives, multidisciplinary clinicians, eye care providers, [Read More ..read more