Cure EB partners with DEBRA UK for the 2020 EB World Congress DEBRA UK is delighted to welcome Cure EB as a Congress Partner for EB 2020. The EB World Congress in January 2020 will be the first global Congress on EB, bringing together the world’s leading experts in EB research, clinical management, and the EB Community. Sharing state-of-the-art knowledge across the key stakeholders will give guidance to the professionals involved and support the development of strategies for research, regulatory, funding, and healthcare. This inaugural event is being organised and funded by DEBRA UK in partner ..read more

Top Nine Reasons to Attend EB World Congress 2020 EB World Congress 2020 is a ‘must-attend’ event for any company involved in EB diagnostics, management, or research. This ground-breaking meeting will, for the first time, bring together all global knowledge in EB research, clinical management and the EB Community. Need more convincing? Check out our top nine reasons to attend: 1. As we expect delegates from over 50 countries to attend, this is a phenomenal opportunity to form global unity and synergies in the fight against EB. This is an ideal setting to make face-to-face connections with ..read more

One mother’s journey in the EB Community The inaugural EB World Congress allowed members of the international EB Community – researchers, clinicians, advocacy groups, and patients – to come together to discuss the future of EB. Whilst much focus was on research and clinical care, another question often posed amongst these groups is “how can someone [without a medical background] get involved and make a difference in the EB Community?”. The following is a story of how one mother’s journey caring for her daughter living with EB inspired her to create an EB organisation in Egypt: Yasmin (Cai ..read more

Get to know our Partners: 5 Q&As with Cure EB The EB World Congress in January 2020 will be the first global Congress on EB, bringing together the world’s leading experts in EB research, clinical management, and the EB Community. Sharing state-of-the-art knowledge across the key stakeholders will give guidance to the professionals involved and support the development of strategies for research, regulatory, funding, and healthcare. This inaugural event is being organised and funded by DEBRA UK in partnership with Cure EB with support from its Sponsors and as part of an alliance of more than ..read more

Get to know our sponsors: 5 Q&As with Amryt Pharma “We believe a breakthrough is possible.” We are very pleased to have Amyrt Pharma’s support for the 1st Global Congress on EB! In January 2020 approximately 500 world opinion leaders, academics, practitioners, and patient representatives will meet in London for four days to share state-of-the-art knowledge on epidermolysis bullosa (EB). As this is the first time that such a comprehensive gathering will come together, it presents an exciting and unique opportunity for companies to get involved and sponsor the event. Together we can do more ..read more

Get to know our sponsors: 5 Q&As with Istanbul Medikal In January 2020 approximately 500 world opinion leaders, academics, practitioners, and patient representatives will meet in London for four days to share state-of-the-art knowledge on epidermolysis bullosa (EB). As this is the first time that such a comprehensive gathering will come together, it presents an exciting and unique opportunity for companies to get involved and sponsor the event. Together we can do more! We are excited to have Istanbul Medikal‘s support for the 1st Global Congress on EB! Read below to find out more about our ..read more

Why attend the EB Community Day at the 2020 EB World Congress? From 19 to 23 January 2020, more than 600 world opinion leaders, academics, practitioners, and community representatives will meet in London for four days to share state-of-the-art knowledge on epidermolysis bullosa (EB). Members of the international EB Community are encouraged to attend the final day of the Congress (Thursday, 23 January 2020). Check out our top reasons to attend Community Day at EB 2020: Join experts at the first EB Congress – including experts with a patient community focus Community members can meet the leading ..read more

Get to know our sponsors: 5 Q&A’s with Abeona In January 2020 approximately 500 world opinion leaders, academics, practitioners, and patient representatives will meet in London for four days to share state-of-the-art knowledge on epidermolysis bullosa (EB). As this is the first time that such a comprehensive gathering will come together, it presents an exciting and unique opportunity for companies to get involved and sponsor the event. Together we can do more! We are excited to have Abeona’s support for the 1st Global Congress on EB! Read below to find out more about our much appreciated s ..read more

Everyone is finally coming together to help EB affects people in many different ways – it causes many challenges for me, the least of which includes blisters on my fingers from simply using the keyboard. I’m Heather; I’m a marketing assistant and the world’s only female tank paintball instructor. My EB affects my hands and feet. People cannot always see when my blisters are at their worst, so sometimes people think I’m lazy or unhelpful often having to take breaks from typing or not being able to get the next round of tea 10 metres away … sometimes the pain is just too much and even short ..read more

London’s 20 most accessible attractions Wondering where to go and what to see during your upcoming trip to London? Look no further! As London is home to some of the most famous museums, palaces, cathedrals, and theatres in the world, there is something for everyone in this iconic city. Science Museum Did you know the Science Museum receives the most visitors of all the science and technology museums in Europe? Guests are invited to touch, feel, see, and experience the museum in order to bring science to life. Be sure to check out the 3D and 4D simulators, or catch a film in the 3D IMAX cinema ..read more