Becoming a member of a new and exclusive club might sound exciting, but this one comes with a heavy burden. I recently received a new diagnosis of intestinal lymphangiectasia, and while having an answer brings some relief, it also raises a lot of uncertainty about my future. I’d never even heard of this rare, benign […] The post My New Diagnosis and What It Means for My Future appeared first on The Disabled Diva Blog ..read more

Life with chronic illness is unpredictable. Some years, you feel progress, and others, well, it feels like you’re walking through mud. The past year has been full of ups and downs, surprises, and setbacks, as life with chronic illness often is. So much has changed, yet some things remain painfully the same. Here’s a look […] The post Chronic Illness Life Changes – What a Difference a Year Makes, or Does It? appeared first on The Disabled Diva Blog ..read more

Living with a chronic illness isn’t just about managing physical symptoms—it’s about dealing with the ongoing and often overwhelming financial cost of being chronically ill. The reality is that chronic illness demands constant care, medication, and medical attention, all of which add up quickly. The financial burden is staggering, whether it’s the copays for prescription […] The post The Surprising Financial Cost of Being Chronically Ill appeared first on The Disabled Diva Blog ..read more

When your air conditioner breaks down during the hottest (and hopefully last) heatwave of the season, it can feel like you’re in survival mode. For those of us living with chronic conditions, keeping cool isn’t just about comfort—it’s essential for managing pain and flare-ups. In this post, I’ll share my go-to cooling products that help […] The post How to Survive a Heatwave with Cooling Products From amazon appeared first on The Disabled Diva Blog ..read more

Let’s talk about something that seems like it should be common sense, but based on how often it happens to me and others, it clearly isn’t: Do not touch me—or my mobility aids—without consent. It’s one of those things that sounds straightforward, but in practice, people often overlook it. Maybe it’s because they don’t realize […] The post Do not Touch Without Consent – Why It Matters for the Disabled, Chronically Ill, and Everyone Else appeared first on The Disabled Diva Blog ..read more

As I sit down to edit the footage from our 25th-anniversary trip to Disneyland, I’ve had to confront some uncomfortable truths about my health, emotions, and how I’m coping with chronic illness. Our stay at the Disneyland Hotel was meant to be magical—a celebration of 25 years together despite the daily struggles we face. But […] The post The Emotional Toll of Chronic Illness – Breaking Down at Disneyland appeared first on The Disabled Diva Blog ..read more

Living with chronic pain presents unique challenges, one of which is an increased risk of falls. Whether it’s due to balance issues, fatigue, or reduced mobility, falls can be particularly dangerous for those of us managing ongoing pain conditions. However, with some thoughtful modifications, you can make your home a safer place and significantly reduce […] The post Fall Prevention Home Modifications: 12 Essential Tips for Staying Safe with Chronic Pain appeared first on The Disabled Diva Blog ..read more

If you’re like me and feel like you’re sleeping in a sauna every night, I’ve got some excellent news for you! I was gifted the Marchpower Cooling Blanket for Hot Sleepers, and it has been a game changer. Full disclosure, all the product was gifted to me, all opinions and thoughts remain my own. Whether […] The post Marchpower Cooling Blanket Review – My Secret to a Chill Night’s Sleep appeared first on The Disabled Diva Blog ..read more

A list of chronic illness community support groups. Includes general and specific diseases such as fibromyalgia, autoimmune, arthritis, etc. The post Supportive Chronic Illness and Pain Support Groups Online appeared first on The Disabled Diva Blog ..read more

Join me as I visit Angel Stadium in Anaheim, California, to cheer on the team and evaluate just how accessible the stadium is for disabled fans. My track record with accessibility at baseball games hasn’t been great, so I was curious to see how Angel Stadium would measure up. In this post, I’ll share where […] The post How Disability Friendly Is Angel Stadium? My Accessibility Review appeared first on The Disabled Diva Blog ..read more