Seizures, though familiar to many, remain a mysterious and often misunderstood disability. These abnormal bursts of electrical activity in the brain can manifest in various ways, giving rise to different types of seizures. In this comprehensive guide, we embark on a journey to help spread more truth about seizures, exploring their diverse forms and shedding light on the distinctive characteristics that define each. Decoding Focal (Partial) Seizures Simple Focal Seizures: Picture this: a sudden, inexplicable sensation coursing through your body, perhaps a strange taste or smell. Simple focal s ..read more

In a world where mobility is key, ride-sharing apps like Uber and Lyft have become invaluable for individuals who may not be able to drive due to their epilepsy journey. This step-by-step guide is tailored for non-drivers with epilepsy, offering insights on how to use these services safely and efficiently. Step 1: Download and Install the App Begin by downloading the Uber or Lyft app from your device's app store. Once installed, open the app to initiate the setup process. Step 2: Create Your Account Follow the on-screen instructions to create your account. Input your email address, phone numb ..read more

When you’re first diagnosed with epilepsy, it truly has that feeling of you heading into the fire. You don’t know what to expect when your next seizure will happen, or how many people will be affected by your epilepsy. It’s a scary feeling that I and plenty of others have experienced. It’s important to know that as you make your way throughout your epilepsy journey, the majority of your questions (and more) will be answered. “Strength Give Us Strength” To those newly diagnosed, and those who need a reminder, your strength is one of your biggest assets when climbing your epilepsy mountain. Bef ..read more

When you’re diagnosed with epilepsy, you face plenty of challenges. Both my family and I thought we had seen it all when it came to my epilepsy. Long doctor’s appointments, invasive EEGs, weeks spent in the hospital, etc. However, these past few weeks have been a pure nightmare. Right when you think you have it all figured out, epilepsy changes its course on you. For those who don’t know what my seizures are like, they are short, partial complex seizures. What that really means is I normally space out for a few seconds and then come right back to whatever I was doing. People rarely noticed my ..read more

It was a warm, sunny day with little to no worries at all. I was enjoying the last few weeks of the third grade. Having fun with my friends in class and learning as much as I could as a young fellow. You always hear the saying “only control what you can.” This became very true as my life was about to change in a matter of minutes. I was about to be introduced to epilepsy for the rest of my life. I was with my friends and needed to take a break so I headed for the bathroom down the hallway. As I turned the corner leaving my classroom, the unexpected happened, seizure #1. The next thing I remem ..read more

It’s been a while since I last put a blog out there, and that’s for one good reason. In life, it’s always good to move on or start something new. It’s been a couple of months, but I am now a proud homeowner. It has taught me a lot, some relating to epilepsy. Work. When you buy your first house there will always be work to do. Learn to manage it, deal with it, and do it while you are living there. From flooring to ceiling tiles, the work never stops just like our epilepsy. Manage doctor's appointments, and deal with medications, it’s all part of having epilepsy. Work, work, work! It’s A Journe ..read more

A common situation for people with a chronic illness such as epilepsy in my case is a misunderstanding. There are many different types of attacks. Some are more visible than others. After all, not everyone with epilepsy suffers from their seizures in the same situation. This is how it usually manifests itself in my rest period (usually at home). But one thing most people with epilepsy have in common is that we look like healthy people, you don't see/notice someone with this chronic condition until we have an epileptic seizure. Living with epilepsy can be an emotional, difficult and lonely rea ..read more

I was a young, fun kid when epilepsy decided to enter into my life. That third grade day will forever be remembered by myself, my family, and friends. However, it’s amazing that epilepsy ended up in my life for so many reasons. I’m grateful epilepsy found its way into my life. Family First and foremost, family has always been a big part of my life. This made my epilepsy journey much easier right from the beginning. I remember going through multiple tests after my joyful ambulance ride. It was nice knowing all my family was just outside each room worrying and praying for me. Epilepsy thought i ..read more

To my followers, I’m sorry I haven’t put out a blog in a while. It has been a whirlwind for me the past couple of months, and it wasn’t even seizure related. I’m proud to say that I’m just over five months seizure free! It’s amazing to see the progress my team and I have made so far. Like I say so many times, be patient. I’ve had epilepsy for 18 years now and we continue to fight the battle each and every day. Doing life with me can be hard sometimes, so I want to devote this to everyone helping me through my epilepsy journey, including my followers. Dear Mom, I honestly don’t know how you do ..read more

To this day I’m the only one who put my elementary school on lockdown all because of a seizure. The sad thing is, I don’t remember any of it as I was heading to the hospital in the ambulance. Those first few seizures knocked me out for hours, and had me recovering for days. From when I was first diagnosed, I faced a second life challenge I couldn’t wait to take on. As a young kid, I was faced with a new normal that not even I was familiar with. I wanted to write a letter to my 9-year-old self about everything that would be coming my way. Dear Kyle, I know you’re slowly recovering in the ambul ..read more