256. Celebrating Motherhood, Advocacy, & Community (w/Black Down Syndrome Association)
The Lucky Few Podcast
by Ashley Fraccalossi
1d ago
Friends, we put, “I’m A Really Good Mom” on a t-shirt because we know moms doubt this truth about themselves daily. Today in honor of Mother’s Day we’re celebrating the importance of community, friendship, and advocacy with our friends Kelli Caughman and Crystal Lotterberry! Kelli & Crystal are the founders of the Black Down Syndrome Association and they’re here to have an unfiltered conversation about the messy and beautiful parts of being a mama! We're chatting about how Down syndrome has influenced our perspective on life and motherhood, our advice for those feeling overwhelmed, what w ..read more
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255. A Haircut Beyond The Chair w/Vernon Jackson
The Lucky Few Podcast
by Ashley Fraccalossi
1w ago
Friends, we’re so excited to have barber Vernon Jackson on the show today! In his barbershop and salon in Ohio, haircuts are more than just a service—they're an act of love and understanding. Through his viral program, The Gifted Event, Vernon provides free haircuts to children with disabilities, offering them patience, empathy, and a sense of belonging. A lifelong creative with a passion for serving others, he’s committed to seeing The Gifted Event continue to expand across the country and world, making barbershops and salons a safe and inclusive space for everyone. More than just a barber ..read more
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254. The Next Step: Navigating Healthcare Transitions for Individuals with Down Syndrome (w/ Dr. Emily Johnson)
The Lucky Few Podcast
by Ashley Fraccalossi
2w ago
Today, we’re chatting about navigating healthcare transitions with Dr. Emily Johnson, a dedicated advocate and physician specializing in the healthcare needs of individuals with Down syndrome. We discuss the importance of starting the transition process early, the challenges families may face, and the key considerations for a successful transition. Dr. Johnson also shares her personal experience as a mother and sister, to individuals with Down syndrome, and how her personal experiences have shaped her career as a physician. Friends, this episode will leave you with valuable insights that left ..read more
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253. What If You Don’t Feel “Lucky”?
The Lucky Few Podcast
by Ashley Fraccalossi
3w ago
What does it mean to feel “lucky” to have a child with Down syndrome? We’re having a candid conversation about the evolving meaning of “lucky” within our community and personal journeys. Through the challenges and the joys, we know that things like toxic positivity and social media can leave us struggling to feel “lucky.” We’re sharing our thoughts, experiences, and some feedback from one of Heather’s social media posts on what “lucky” in The Lucky Few has come to mean. Join the conversation and share your experiences, perspectives, and advice on reframing the narrative around parenting a chi ..read more
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252. Planning For The Future: Involving Siblings In The Decision-Making Process
The Lucky Few Podcast
by Ashley Fraccalossi
1M ago
We’re so excited to have Phillip Clark back on the show, he’s the founder of ENABLE Special Needs Planning and is here to chat with us about involving siblings in the guardianship and decision-making process. Phillip shares the importance of having open conversations early on with siblings about guardianship and gives advice about getting the conversation started. He dives into the differences between guardianship and supported decision-making and the importance of personalizing decisions for each individual’s needs. Phillip shares his journey and experience with his sister, Sarah, who has Do ..read more
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251. Rethinking What It Means To Be “Blessed” (w/ AUTHOR Micha Boyett)
The Lucky Few Podcast
by Ashley Fraccalossi
1M ago
You know and love her as the bubbly blonde that breaks into song on nearly every episode, today our girl Micha Boyett isn’t just The Lucky Few Podcast host, she’s our guest!! Join us in celebrating her new book Blessed Are The Rest Of Us (available April 9th!)! We’re chatting about her journey of writing this book, and how she chose to write more than just a memoir. What does it mean to be “blessed”? What makes us worthy? What makes life good? Micha shares how her journey with Ace’s Down syndrome and Autism diagnosis made her see society’s obsession with success for what it actually is: fear ..read more
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250. Who Has The Right To Use Down Syndrome Or Disability As A Punch Line?
The Lucky Few Podcast
by Ashley Fraccalossi
1M ago
Friends, we had another hot topic in our group text that we knew we needed to bring on the pod to have with all of you! Today we’re chatting about the February 25th episode of “Saturday Night Live” with a guest host who used his niece and her Down syndrome diagnosis as a punch line to his set. We’re talking about our reactions and the larger conversation: who has the right to use Down syndrome and disability as a joke or punch line? Join us as we discuss the discomfort when jokes are made for an audience not connected to someone with Down syndrome and whether the laugh is at the expense of th ..read more
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247. The Transition To Adulthood: Fostering Independence, Dignity Of Risk, & Supporting Decision-Making (w/ Amy Julia Becker)
The Lucky Few Podcast
by Ashley Fraccalossi
2M ago
Friends, we’re so excited to have award-winning writer, speaker, podcaster, disability advocate, and Mom of three, Amy Julia Becker, joining us for a third time today! She’s here to chat about what the journey with her daughter Penny has looked like after turning 18 and entering adulthood. She’s been in the process of making decisions about education, employment, guardianship, independent living, and so much more! We chat about navigating new services, and agencies, and Teresa from Social Security. What’s been the decision that has felt like the weightiest part of the transition into adulthoo ..read more
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246. Heart Health & Navigating Heart Defects (w/Dr. Lorraine Schratz)
The Lucky Few Podcast
by Ashley Fraccalossi
2M ago
Friends, we know that seeing specialists and hearing your child could potentially have cardiac issues after receiving a prenatal diagnosis can all be overwhelming. We also know that while months of celebrating and advocating for awareness can be helpful, but also adds to those valid overwhelming feelings when you’re new to a diagnosis. While those statistics are true, 50% of babies born with Down syndrome are born with heart defects. There are also incredible advancements in cardiology and amazing physicians like our guest this week Dr. Lorraine Schratz there for your family every step of the ..read more
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245. Can An Advocate Get It Wrong Sometimes?
The Lucky Few Podcast
by Ashley Fraccalossi
2M ago
Friends, you know we don’t shy away from asking the hard questions; today we’re diving into a complex one: Can an advocate get it wrong sometimes? We discuss the balance of advocating and learning, the foundation of a good advocate, and how humility shapes our advocacy journey. We explore the responsibility and journey of advocating for those with Down syndrome, and why being a listener and learner is key to effective advocacy. How long do you have to be part of something to be an advocate? What is the foundation of a good advocate? What happens if you do get it wrong? Tune in to hear our per ..read more
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