Late Night Thoughts
Spoonie Sanctuary
by spooniesanctuaryblog
1y ago
Since being diagnosed with Interstitial Cystitis, Endometriosis, Pelvic Floor Dysfunction, Epilepsy, along with PTSD, Depression and Anxiety, I feel like most people have stopped seeing me. They seem to only see the disabled girl with chronic pain and diseases that have no cure. When I am introduced to someone new, the words and phrases people use to describe me make me feel small. They make me feel like I am not doing enough to “make myself better.” When they talk about me, they only seem to see the endless stream of tests, doctors and surgeries. They now see me ..read more
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Stronger
Spoonie Sanctuary
by spooniesanctuaryblog
2y ago
I’m going to do something I haven’t in quite a while. I’m going to be vulnerable. I’m going to say something I’ve wanted to say for over a year. You’re alive, you survived, it’s a sign And the proof is in your pulse Brighter stars only shine in the dark You are stronger than you know This hits right in my soul, given the last 539 days. But I know I can do this. Because I’m still here. When my heart gave out that day, and I flatlined, I came back. I fought like HELL to come back. No, I’m not over it. No, I’m not okay. Far from it. But day by day, I’m getting there. Day by day #IGetALittleBitStr ..read more
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Stronger
Spoonie Sanctuary
by spooniesanctuaryblog
2y ago
You’re alive, you survived, it’s a sign And the proof is in your pulse Brighter stars only shine in the dark You are stronger than you know This hits right in my soul, given the last year and 3 months. But I know I can do this. Because I’m still here. When my heart gave out, and I flatlined, I came back. I fought like HELL to come back. No, I’m not over it. No, I’m not okay. Far from it. But day by day, I’m getting there. Day by day #IGetALittleBitStronger I’m so beyond grateful for the amazing but small, support system I have. I love you all and I can’t thank you guys enough The lyrics are f ..read more
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I Know…
Spoonie Sanctuary
by spooniesanctuaryblog
2y ago
I know you’re frustrated. I know you’re having a hard time believing things are going to get better. I know you want the pain to stop, you want the questions to stop, you want the self-doubt to stop. But you need to hold on a little longer. You need to get through the day. Even if you don’t leave the house, even if you don’t shower, even if you don’t brush your teeth, at least make it through the day. Other people might think you’re lazy for cooping yourself up inside for hours on end, but you know better than them. You know you’re strong for making it through the day at all. Some days aren’t ..read more
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100 Ways to Show Up for People with a Chronic Illness
Spoonie Sanctuary
by spooniesanctuaryblog
2y ago
So, I didn’t write this post, (KUDOS to anyone who know the reason I chose the picture I did for this post) it was originally written by Maggie Levantovskaya but I decided to post when I realized how great it was. I just wanted to put my little bit in here; feel free to keep scrolling if you want A few days ago, someone…I really cared for told me I am just using the wheelchair for attention, and I didn’t really need it. I did everything in my power to NOT let it get to me. But honestly, it did get to me. Then I remembered that she’s not a part of my life anymore, she hasn’t seen everything I ..read more
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Spoonie Sanctuary
by spooniesanctuaryblog
2y ago
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I HOPE….? (Not My Work)
Spoonie Sanctuary
by spooniesanctuaryblog
2y ago
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Its Okay
Spoonie Sanctuary
by spooniesanctuaryblog
2y ago
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Surviving
Spoonie Sanctuary
by spooniesanctuaryblog
2y ago
In about 45 minutes I will officially be 28 and another year older. Yet, I’m struggling. The last year has been the hardest of my life. But, with the help of a few close friends, I finally feel like I CAN get through this. Don’t get me wrong, I’m far from ‘fixed’. I’m still not okay. But I wake up every morning fighting like hell to move forward from that hell. Its not easy. Its not instant. It takes time, but most importantly, patience. Trust in yourself. Your trauma may make you feel like you will never make it through, but trust me, you will. It hurts like hell right now. I know. But you’r ..read more
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Late Night Thoughts
Spoonie Sanctuary
by spooniesanctuaryblog
2y ago
Warning…This is going to be a long post. Guess that’s what I get for trying to ignore anything to do with writing the last two years I have a lot to say….be gentle. Since being diagnosed with Interstitial Cystitis, Endometriosis and Pelvic Floor Dysfunction, most recently Epilepsy; along with Depression and Anxiety, I feel like most people have stopped seeing me. They seem to only see the disabled girl with chronic pain and diseases that have no cure. When I am introduced to someone new, the words and phrases people use to describe me make me feel small. They mak ..read more
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