What is Ehlers Danlos Syndrome Type 3 (hEDS)? Ehlers-Danlos Syndrome (EDS) is a diverse group of congenital disorders characterized by skin, musculoskeletal, and vascular deformity manifestations.  It affects connective tissues which support tendons, ligaments, skin, blood vessels, internal organs, and bones. Of all disorders affecting the connective tissues, EDS is the most common hereditary disorder. Who Might get Ehlers-Danlos Syndrome (EDS)? EDS is hereditary and anyone in the family is at risk of being born with it. What Causes Hypermobile Ehlers-Danlos Syndrome (hEDS) A collagen de ..read more

Overview According to a recent study conducted in the United Kingdom, the average POTS patient must see seven doctors over several years before being correctly diagnosed! 80% of POTS patients are female, with many being between 15 and 50 years. When a doctor is unsure what a patient is suffering from, they use differential diagnosis to come up with other possible infections/syndromes/diseases that are likely to “fit best” the patient’s symptoms when it is actually “POTS.” Since POTS has so many symptoms that can change at any time, these patients are often misdiagnosed. Keep reading to learn s ..read more

Overview There are approximately half a million POTS syndrome sufferers in the United States alone, with the majority being young women. Being unable to stand for extended periods can result in severe functional impairment in POTS syndrome. This article emphasizes the importance of diet and nutrition in improving the quality of life of POTS syndrome patients! What Is Postural Orthostatic Tachycardia Syndrome (POTS)? Postural orthostatic tachycardia syndrome (POTS) is a condition in which most of your blood stays in your lower body when you stand up, causing your heart rate to increase. Whether ..read more

Overview While the global spread of severe COVID-19 infections has slowed, many people continue to experience symptoms for months or years. This is a condition known as Long COVID, which is COVID-19 symptoms that last generally more than 30 days, and manifest in the majority of symptoms that are ANS related. The most common autonomic nervous system illness associated with Long COVID is postural orthostatic tachycardia syndrome (POTS), which is strongly linked to a previous viral infection. What is Dysautonomia? Dysautonomia is a broad term that refers to a group of medical conditions with one ..read more

There are several types of postural orthostatic tachycardia syndrome (POTS). It is critical to understand the distinction between these because treatment options will vary depending on the type of POTS a patient is diagnosed with. The most common types of POTS are neuropathic POTS, Volume Dysregulation, Mast Cell Activation Disorder, Autoimmunity, hyperadrenergic POTS, and Secondary POTS. Let us discuss these POTS subtypes in greater detail. To start us off, we shall highlight what POTS is, those at risk of getting it, its symptoms, and so much more! What Exactly is Postural Orthostatic Tachyc ..read more

For Luke, his story and his battle with PoTS began as early as 2012, at the age of 17. He was young, agile, and full of life. Who would not be at that age? Not only that, Luke was as fit as a horse. Lifting heavy things and staying active was not new to him because of the nature of his job. Luke worked as a shop assistant in a bedding shop on Saturdays. So, Saturdays meant the lifting of heavy items. However, one particular Saturday came by, and Luke discovered that he was struggling to lift a light duvet cover off a shelf. That was anything but normal. How heavy was a duvet, a piece of clothi ..read more

Overview Those with Ehlers-Danlos syndrome (EDS), have a rare condition that causes weakness in the connective tissue that gives structure to various organs and tissues in the body. They may benefit from eating a “heart-healthy diet,” because blood vessels in EDS patients may be weaker than normal, and blood pressure increases the risk of complications such as bruises and tears in blood vessels. As a result, these people are at a higher risk of stroke, heart attack, and heart failure. This article will provide useful information about the best diet for people with EDS (Ehlers-Danlos Syndrome ..read more

Overview Postural orthostatic tachycardia syndrome (POTS) is commonly accompanied by unrelenting heaviness and pain in the legs. Exercise plays an important role in alleviating the common symptoms of POTS. In some people, a lack of general movement and exercise can exacerbate the symptoms of POTS. Exercising helps restore the body’s normal stroke volume and overall heart size. In this article, we will further discuss what POTS is and what exercises you can do to better manage the symptoms of POTS.  What is Postural Orthostatic Tachycardia Syndrome (POTS)? POTS is a condition that affects ..read more

Most people infected with SARS-CoV-2 experience resolution of symptoms within weeks of infection, but many will experience new, returning, or persistent symptoms 4 or more weeks after infection. This is known as long COVID. Symptoms of long COVID encompass a variety of body systems, from physical to neuropsychiatric, and it is unclear which patients are at risk of developing this syndrome. There is rapidly emerging research on the various clinical presentations of long COVID, which can help guide diagnosis and management decisions. Presentation and risk factors of Long COVID Long-term Covid-19 ..read more

Like some of the people she later met when her circle of friends had to change, Becky’s pre-syncope ordeal started several years ago when she was only 16 years old. It was at the prime time of her life. She often wondered why it had to come at that time. She had multiple dizzy spells when standing, the type that most had at some point in their lives. The most memorable types were those that occurred while standing in a hot bath. During those brief moments, everything would close in and go black and blurry. Becky did not attach much importance to it since many other people also confirmed having ..read more