Grief
Hemophilia is for Girls
by
1y ago
So, its been 5 months since my mom has passed away. I find myself being grateful that I had her as long as I did and I am thankful she isn't suffering anymore. However, when I think of her I often think of how sick she was. In my mind she was perfectly healthy until she turned about 60 and then she fell and broke her hip and then everything started to go down hill from there. Its scary, growing older. It must of been so scary for her lose her mobility bit by bit. I am ok most of the time, work as been a fantastic distraction but sometimes I'll come across something that reminds me of her and i ..read more
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Camp Blast
Hemophilia is for Girls
by
1y ago
So, Zane and I recently went to Hemophilia Camp here in Newfoundland. It was a wonderful weekend. I was anxious going into it not really knowing what to expect, still grieving, but everyone was so kind and welcoming I couldn't help but enjoy myself.  The kids were also so sweet and thoughtful, making sure everyone was included in their games, taking turns with the Marshmallow roasting sticks. I've been involved with the Canadian Hemophilia Society since 2009 but never with the Newfound land chapter. I have to say they are a great group of people and I am glad I went out of my comfort zone ..read more
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Momma
Hemophilia is for Girls
by
1y ago
So, its been 5 weeks without my Mom. Its still so hard to adjust to. When I make soup, I think oh I have to get a container now and bring some down to her. When I drive by her street I always think to pull in and have a visit. Things may never go back to normal but I am finding myself more grateful lately. Grateful for the time I did have with her, grateful for all the lessons she taught me and grateful for all of our friends and family who helped us through a terrible time.  I had an iron infusion last week as my iron was down to single digits and Monday I had an ultrasound. It was the f ..read more
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True Grit
Hemophilia is for Girls
by
2y ago
My precious mother passed away on Wednesday May 11th, 2022. I thought about that day many times. Ever since she first started exhibiting signs of what we would later discover was parkinsons disease.  Mom was sick for many years. It was heartbreaking to see her faculties fail her one by one. When she first passed away I was grateful that her suffering had finally ended. I thought about how happy she would be up there with Charlie, her brothers and her mom and dad. Over the past few days I started collecting pictures for her wake. Thats when all the memories started flooding back and I ..read more
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Bay St. George Sick Children's Foundation
Hemophilia is for Girls
by
2y ago
So, it's the 25th Anniversary of the Bay St. George Sick Children's Foundation. This wonderful organization provides financial support to families who have to travel out of the area for medical care. This foundation was formed 25 years ago after a group of volunteers organized a fundraiser for me.  The fundraiser was held on March 10th, 1997 at the Stephenville High School gym. They raised $4,100. I was in the Janeway for almost a full year and my mom stayed at hostel across the street.  I wasn't able to attend the event as I was still in the hospital but someone recorded it for me ..read more
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Upside Down
Hemophilia is for Girls
by
3y ago
So life has changed so  much over the past year. This post will just seem like a list of terrible things and while I know its important to focus on the positives I just have to tell you about the part year just to get it out. Ok it all started in June 2019 our dog Jade had a collapsed trachea we thought we were going to lose her and after three weeks or worrying about her and $2000 later she started to come around.  In July 2019 our house was broken into while we were asleep. It was so terrible to wake up in the middle of the night and realize that your house has been broken into and ..read more
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Je T'aime Papa
Hemophilia is for Girls
by
4y ago
So, when I was in Kindergarten our project for Fathers Day was to make a T Shirt for our Dads. I drew a picture of my Dad and our teacher put it on a white T shirt to bring home. I don't completely remember making the shirt because I was so young but it meant a lot to my Dad. Years later when I was in the Childrens Hospital my Dad flew down from Alberta to see me. When he walked through my room door he had on his Je T'aime Papa T Shirt on and we all laughed. It was so nice to have him around during such a difficult time and the fact that he hung on to that T Shirt for all those years was so to ..read more
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Love in the time of Covid-19
Hemophilia is for Girls
by
4y ago
So, We are in the middle of a global pandemic. There are no way to fully comprehend the amount of pain and grief the world is experiencing right now. In Canada, we are lucky to have free health care most people are social distancing and settling into a new normal. In my own home I have been laid off work and Zane is blessed to be able to work from home. From a chronic illness standpoint I am concerned that if i get a bleed, I will put more stress on an already maxed out health care system. I am also worried about having to go to the hospital in general and being exposed to potential illness th ..read more
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Nanny
Hemophilia is for Girls
by
4y ago
I breaks my heart to say but my precious Nanny Priddle passed away yesterday. She was 91 and she passed away peacefully in her sleep with her family by her side. When I first heard that Nanny was sick it broke my heart. I was scared and worried about her and I was worried about how the world would look for all of her family if she died. However, when I got the call yesterday to say that she has passed I couldn't help but feel blessed and happy and at peace with everything. You can't help but feel that was when you look back at how many people loved her and how she got to watch her little famil ..read more
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Patient Perspective Presentation
Hemophilia is for Girls
by
4y ago
So, I had the honor of speaking to the group of nurses today at the South hospital here in Calgary. It was so nice to speak to them and share my crazy medical history. Anyway I had to do a lot of writing and a lot of talking so I thought today I would just show you some pictures of my life along the way ..read more
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