Anniversaries – diaversaries – are for remembering. And today, my twenty-sixth diaversary, I’ve remembered that diagnosis day, and a lot of what has happened since. I’ve had a sensor fail. I’ve also enjoyed doughnuts, coffee and sunshine, and an AID so smart it has cleaned up all my diabetes incompetence and delivered a day of 95% TIR. Measure for measure, it’s been a good day! My life would be impossibly different today if diabetes hadn’t moved in all those years ago. So much of my life, and so many of the people in it, is because of diabetes. The utterly confused and terrified twenty-four ye ..read more

Hasn’t it been terrific this week seeing a couple of great news stories in the T1D tech world? Our friends across the ditch in NZ have welcomed an announcement from medical regulatory board Pharmac that all people with type 1 diabetes will have access to CGM and automated insulin delivery devices (AID). Meanwhile, this week saw the start of a five-year national roll out of AID in England and Wales which recommends access be granted to children and adolescence (under 18 years) with T1D, pregnant people with T1D and adults with T1D with an A1c higher than 7%.  So, where is Australia when it ..read more

The #dedoc° symposium kicked off ATTD 2024 in the most powerful way. Four community advocates from across the globe presented on a variety of topics including access to insulin during humanitarian crises, access to diabetes care and technologies in low income settings, accessibility of technology for people with diabetes also living with disabilities, and access to research findings. You can hear the brilliant talks from #dedoc voices Leon Tribe, Tinotenda Dzitiki, NurAkca and Asra Ahmed here. During the panel discussion, there was an important discussion about how and why it is critical for p ..read more

I stumbled across a book the other day called Women Holding Things. The author and illustrator, Maira Kalman referred to it as ‘love song to those exhausted from holding everything’. It’s quite gorgeous, with beautiful illustrations of all the things women hold – both literally and figuratively. And I thought about what people with diabetes hold and just how weary and drained the weight of carrying diabetes and all that comes with it can be. I can’t draw, but here are my words that highlight some of the things we hold. It’s a love letter to the strength people with diabetes have gained th ..read more

The day after I was diagnosed with diabetes, I found myself in floods of tears, sitting in the stairwell of the Diabetes Victoria offices on Collins Street in Melbourne. I’d fled there from the NDSS shop that was housed on level three after suddenly feeling overwhelmed at the boxes and boxes of curious looking diabetes supplies that were about to be sent home with me. I was slumped against the wall, the emotion of the last twenty-four hours catching up with me. Someone came down the stairs and stopped. She crouched down and quietly said. ‘Hi. Are you okay?’ I wasn’t. Of course I wasn’t. ‘Can I ..read more

The trend of people without diabetes obsessing over their glucose levels has become increasingly common (and increasingly annoying). Remember when some journo hack likened wearing a CGM to a polygraph test? And that time CGMs were hailed as a weight-loss tool? These days, spotting a Libre sensor on an upper arm no longer guarantees a diabetes in the wild encounter at the local farmers’ market. It could just be a bloke tracking his perfectly in range glucose levels after devouring a steak. With butter. For breakfast.  But just when we thought we’d reached peak glucose obsession, in steps J ..read more

Just what is the emotional labour associated with living with a life-long health condition like diabetes? I’ve been thinking about it a lot this week, firstly because I was asked to give a talk about it to a group of researchers to help them understand barriers they may experience with getting participants into their research. It was a great discussion, with plenty of questions and hopefully a new understanding of the burden diabetes unleashes on us. And then, I thought about it when I was feeling the weight of that burden – more so than usual.  The emotional labour of living with diabete ..read more

Do yourself a favour this Christmas and holiday period and do a detox. And by that, I mean cleanse and purge anything that suggests people with diabetes need to change our behaviour or feel guilty for daring to enjoy sharing a meal with family and friends.   There are a lot of those stories out there and annoyingly, social media algorithms keep pushing ‘How to be a responsible person with diabetes at Christmas’ articles to me. I wouldn’t be worried if being responsible included making sure I ate enough of my mum’s divine zippoli or kept the Bellinis flowing, but instead, it seems to ..read more

Ten years ago, Australian Prime Minister Tony Abbott appointed himself as the Minister for Women. Much has been written about the message this sent and what the government of the time really thought about women, despite the carefully framed rhetoric being spewed in press releases and at doorstop press conferences. But this post is not a lesson in Australian politics. It merely sets the scene for me to speak about the underhanded ways that those whose voice should be heard are silenced.  Diabetes advocacy sits in an environment that often resists the voices of those most affected by diabet ..read more

I had a BIG birthday this week. It was lovely – spoilt by my gorgeous family and friends, a beautiful dinner, calls and messages and special deliveries from friends in far flung places. BIG birthdays are weird. There seems to be an expectation that we have BIG feelings about them. Some people have BIG negative feelings about them. Some people freak out. Some go through a crisis and suddenly feel as though they are facing their mortality. I haven’t felt any of those things, but people have been asking. And I’ve been at a bit of a loss as to how to respond.  I don’t feel bad about getting o ..read more