Episode 96 - Social Wellness with an AiArthritis disease
Ai Arthritis Voices 360 Podcast
by International Foundation for Autoimmune & Autoinflammatory Arthritis
1w ago
In this episode, c-ohosts Leila, Estela, and Kerry delve into the crucial topic of social wellness amidst living with AiArthritis disease. They explore the essence of social wellness, its significance and sharing personal insights on navigating social lives while managing health challenges. Join our co-hosts as they discuss both the supportive and challenging dynamics of maintaining an active social life with an AiArthritis disease and how online communities can positively impact social wellness. Drawing from community questions and experiences, they offer invaluable advice, practical tips, an ..read more
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Episode 95 - Volunteering with AiArthritis
Ai Arthritis Voices 360 Podcast
by International Foundation for Autoimmune & Autoinflammatory Arthritis
1M ago
Curious about how volunteering with AiArthritis could transform your life and the lives of others?   In the latest episode of AiArthritis Voices 360 Talk Show as co-hosts Leila, Michael, Jenni, Deeanne, Patrice, and Deb share heartfelt stories of their journey into volunteering with AiArthritis. From personal experiences to the profound impact AiArthritis has had on their lives as patients, they delve into the transformative power of community support. Discover why volunteering is vital and how the AiArthritis community has become a lifeline, offering understanding, empathy, and empowerme ..read more
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Episode 94 Rheumy Rounds Rewind: Improving Doctor and Patient Communication During Office Visits
Ai Arthritis Voices 360 Podcast
by International Foundation for Autoimmune & Autoinflammatory Arthritis
2M ago
This is an AiArthritis Voices 360 REWIND, where we are bringing back the first RheumyRound episode from 2020 where we opened the conversation on improving doctor office visits! Also note - you will hear the acronym IFAA, which we used prior to using AiArthritis.   Join us as our co-hosts, Tiffany and Kelly, and guests, Dr. Kim and Jerik Leung, explore the important dynamic between patients and doctors in healthcare communication. Through insightful dialogue and shared experiences from both the patient and physician perspective, we uncover strategies to enhance mutual understanding, empowe ..read more
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#360it: Medicare Drug Price Negotiation: How Will it Affect Patient Access?
Ai Arthritis Voices 360 Podcast
by International Foundation for Autoimmune & Autoinflammatory Arthritis
3M ago
This episode is a 360it revisiting the topics put on the table during Episode 88 : Biosimilars - Interchangeability & Switching 2023   Join us in this breakout 360it from Episode 88 Biosimilars : Interchangeability & Switching 2023 as we dissect the Inflation Reduction Act (IRA) and its potential fallout on patient access to diverse treatment plans. Tracing the historical trajectory of the IRA, we uncover its role in price negotiations and the concerning shift in investments away from critical drugs tailored for specific diseases. This reallocation poses a tangible threat to the a ..read more
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Episode 92 Breaking Research: Pharma & Non-Pharma 2023
Ai Arthritis Voices 360 Podcast
by International Foundation for Autoimmune & Autoinflammatory Arthritis
4M ago
Join us in this episode as co-hosts Tiffany and Deb both a recap of the 2023 ACR, American College of Rheumatology Conference and also how these topics specifically affect AiArthritis diseases. Tiffany and Deb also share an insight into our program, “Go With Us!” to Conferences. The Go With Us program allows patients to attend these conferences in real time and get updates on different important or emerging topics for AiArthritis diseases.   In this episode, the co-hosts discuss some main conference topics, both pharma and non-pharma, such as how precision medicine can greatly benefit pat ..read more
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Episode 90: Why Won’t They Diagnose Me?
Ai Arthritis Voices 360 Podcast
by International Foundation for Autoimmune & Autoinflammatory Arthritis
7M ago
Have you struggled getting an AiArthritis diagnosis? In the latest episode of AiArthritis Voices 360 Talk Show, co-hosts Tiffany, Kerry and Danielle delve deep into the challenges patients face on their journey to a diagnosis. From navigating initial symptoms to facing dismissive healthcare providers due to 'normal' blood work, we're uncovering the hurdles that delay the critical moment of diagnosis.    Discover the life-altering consequences of not getting diagnosed early and the crucial questions you need to ask your doctors during those pivotal visits. Don't miss this enlightening ..read more
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Ep 89: Surgery with an AiArthritis Disease
Ai Arthritis Voices 360 Podcast
by International Foundation for Autoimmune & Autoinflammatory Arthritis
8M ago
Tune in to the latest episode of AiArthritis Voices 360 Talk Show, where your co-hosts Leila, Deb, and Kerry candidly share their personal journeys of undergoing surgery while living with AiArthritis diseases. In this episode, the co-hosts delve into their surgical experiences, including the pivotal surgeries they've had due to their conditions. From Deb's journey triggered by a bunion removal to Kerry's hip replacement due to the complex interplay of autoimmune conditions or Leila’s gastric sleeve surgery due to weight gain from treatments, the trio reflects on the unexpected intersections of ..read more
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Ep 88 Biosimilars - Interchangeability & Switching 2023
Ai Arthritis Voices 360 Podcast
by International Foundation for Autoimmune & Autoinflammatory Arthritis
9M ago
This episode is a Step 5 - revisit to the table - as outlined in our 6 Step Patient-Led Problem Solving Process. What do patients need to know about the upcoming changes to biosimilars and interchangeability in 2023?    In this episode, Tiffany is joined by esteemed guest experts Michael Reilly, Dr. Ralph McKibbin and Andrew Spiegel to explore the crucial distinctions between interchangeability, automatic substitution, and non-medical switching. Gain valuable insights into how these differences impact patients not only in the USA but also on a global scale.   In addition, our gu ..read more
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Episode 87: AiArthritis Rant Discussions - Inspired by Am I the @$$hole
Ai Arthritis Voices 360 Podcast
by International Foundation for Autoimmune & Autoinflammatory Arthritis
10M ago
Are you tired of feeling frustrated and unheard when it comes to your doctors, your disease, and all the challenges that come with it? Wish you had a platform to let it all out and find understanding?   Welcome to AiArthritis Rant Discussions - Inspired by Am I The @$$hole? Brace yourself for a new series that will give you a voice and an outlet to vent your frustrations. In this episode, our co-hosts Leila, Charis, and Patrice dive into the rants submitted by our AiArthritis community and they'll react, comment, and delve into topics that resonate with so many.   From stories of tri ..read more
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Episode 85:
Ai Arthritis Voices 360 Podcast
by International Foundation for Autoimmune & Autoinflammatory Arthritis
1y ago
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