120: Interview: Bias in Healthcare with Patient and Practitioner Kimether Redmon
In Sixteen Years of Endometriosis
by Amy and Brittany
1M ago
Today I’m speaking with Kimether Redmon about: -Trauma-informed medical care. -Some biases a person may face in the medical setting. -Personal biases that Kimether has faced. Who is Kimether Redmon? She is an endometriosis patient as well as a Family Nurse Practitioner serving low-income uninsured patients in her area. Before her nursing career, she was a research consultant with a background in brain injury research, and employment. Being diagnosed with stage 4 endometriosis in 2021 after over 20 years of countless incidents of dismissal, gaslighting, bias, and incompetency has fueled her own ..read more
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119: Interview: Advocating for Ourselves with Patient and Practitioner Kimether Redmon
In Sixteen Years of Endometriosis
by Amy and Brittany
2M ago
Today I’m speaking with Kimether Redmon about: -Tips to improve our medical appointments -How to maximize the short amount of time we have with the practitioner. -How to be more specific when describing our symptoms -Our personal experiences with uncomfortable medical settings. Who is Kimether Redmon? She is an endometriosis patient as well as a Family Nurse Practitioner serving low-income uninsured patients in her area. Before her nursing career, she was a research consultant with a background in brain injury research, and employment. Being diagnosed with stage 4 endometriosis in 2021 after o ..read more
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118: Interview: Endo Standard of Care with Dr. Shilpa Rao of India
In Sixteen Years of Endometriosis
by Amy and Brittany
2M ago
Today we speak with Dr. Shilpa Rao, who is a dentist by profession and an endo crusader by passion. Shilpa has a YouTube channel called The Endometriosis Crusader in which she interviews patients and professionals about various topics related to endometriosis and reproductive health. Shilpa shares about her personal experiences with cultural and social barriers to care, as well as her hopes for endometriosis care in the future in India. Clickable links at insixteenyears.com/episode118 CONNECT WITH SHILPA Instagram: @endostrongg YouTube: Endo Crusader https://www.youtube.com/@shilpaa1980 CONNEC ..read more
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117: Disability Accommodations in the Workplace. Part 2
In Sixteen Years of Endometriosis
by Amy and Brittany
4M ago
We continue to talk about work accommodations under the Americans with Disabilities Act. In part 2, we discuss medical documentation, examples of what are reasonable vs unreasonable accommodations, and telework. DISCLAIMER: We are not employment lawyers or disability civil rights attorneys. This is a general discussion of what we've been learning for our own individual work situations and is not legal advice. We encourage you to double check all information we give in this episode and/or consult a qualified lawyer if you are in a situation where you want to ask for work accommodations. Clickab ..read more
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116: Disability Accommodations in the Workplace. Part 1
In Sixteen Years of Endometriosis
by Amy and Brittany
5M ago
We are going to talk about work accommodations under the Americans with Disabilities Act. In part 1, we discuss what accommodations are vs accessibility in general, who qualifies for accommodations under the ADA, and some ideas on how and when to request accommodation. DISCLAIMER: We are not employment lawyers or disability civil rights attorneys. This is a general discussion of what we've been learning for our own individual work situations and is not legal advice. We encourage you to double check all information we give in this episode and/or consult a qualified lawyer if you are in a situat ..read more
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113: Surgeon Interview: Endometriosis and Hormone Receptors with Dr. Dulemba
In Sixteen Years of Endometriosis
by Amy and Brittany
6M ago
We interview Dr Dulemba, an excision surgeon who has been in private practice in Denton, Texas, since 1986. For the past 20 years, he’s been testing the hormone receptors of endometriosis lesions. Today we discuss his findings and thoughts on endometriosis and hormones. Dr. Dulemba also joined us in episode 106 on robotic excision surgery and 109 on adhesions, so if you missed those, please check them out! Also I’d like to thank Kate from EndoGirlsBlog for brainstorming these questions with me! —CONNECT WITH DR. DULEMBA: Dr Delumba works at the Women’s Centre in Denton, Texas https://www.women ..read more
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112: Why Representation Matters within the Endo Community, with Julia Mandeville of Barbados
In Sixteen Years of Endometriosis
by Amy and Brittany
7M ago
Today we are so excited to speak with Julia Mandeville. Julia is the co-founder of the Barbados Association of Endometriosis & P.C.O.S. She is currently a doctoral student and as part of her role as a graduate researcher, she is the project coordinator of several research studies investigating barriers to diagnosis for Black people with endometriosis and PCOS. She has focused much of her research and public health intervention efforts on investigating endometriosis in underserved populations, Black women in particular because the disease is not well studied in this population. In 2023, Jul ..read more
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109: Adhesions – Interview with Excision Surgeon Dr. Dulemba
In Sixteen Years of Endometriosis
by Amy and Brittany
8M ago
We interview Dr Dulemba, an excision surgeon who has been in private practice in Denton, Texas, since 1986. He’s performed over 7300 endometriosis surgeries, so he has a lot of insight on endometriosis. Dr. Delumba offers a second look surgery for adhesions just a few days after his original excision surgery. He brings his knowledge to this episode to answer various questions related to adhesions! Dr. Dulemba also joined us in episode 106 to speak about robotic excision surgery, so if you missed that, please check it out! Clickable links at insixteenyears.com/episode109 CONNECT WITH DR. DULEMB ..read more
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Ep108: Advocacy Mistakes We’ve Made and Tips for Endo Advocacy
In Sixteen Years of Endometriosis
by Amy and Brittany
9M ago
We’ve had this podcast for over 4 years! Recently, I listened to our episodes 1-50 to update them where necessary, and I saw how much our advocacy has changed and how much we’ve grown over these years. Today we talk about some of our mistakes and what we wish we’d known when we began advocating. Clickable links at insixteenyears.com/episode108 --Ellis K, Munro D, Clarke J. Endometriosis Is Undervalued: A Call to Action. Front Glob Womens Health. 2022 May 10;3:902371. doi: 10.3389/fgwh.2022.902371. PMID: 35620300; PMCID: PMC9127440. CONNECT WITH US! INSTAGRAM: @in16yearsofendo WEBSITE AND RESOU ..read more
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Ep107: How to Find an Excision Surgeon – Interview with Kate Boyce, BCPA
In Sixteen Years of Endometriosis
by Amy and Brittany
9M ago
We speak with Kate Boyce (she/her), who is the co-founder of the Instagram and webpage EndoGirlsBlog, which provides accurate information to people with endometriosis. Kate is a board certified patient advocate and endometriosis patient herself. Excision surgery is operator dependent, meaning that it depends on the surgeon’s skills. There are very few excision surgeons in the world with the top level skill, and many regular OBGYNs with no extra surgical training, and then surgeons at different skill levels in between those. Kate breaks down for us what to look for in a surgeon, so that we can ..read more
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