The Website You Need to Know
My Smoldering Life
by coryshubert
3y ago
For those of us with MM in whatever stage, your number one website for up-to-date info and resources is International Myeloma Foundation. My chapter in Mpls recently sent out info on a webinar that they held, and I will include a link to the slide show deck for you to view, but I am told it is also on the website. In today’s COVID-19 climate, we all need to be extra careful and follow the guidelines of HEALTH PROFESSIONALS and not politicians. Do what is best for you and your family based on your diagnosis, that is the number one priority. Stay safe out there, we all are relying on you to do s ..read more
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COVID-19 and the MM Community
My Smoldering Life
by coryshubert
3y ago
It has been a very long time since I last posted, but now is a great time to share some info for those of us on the MM journey and how to protect ourselves and stay up on the COVID-19 threat. Please follow the link and stay safe out there everyone. The coronavirus is on the minds of global citizens and all myeloma patients. Dr. Joshua Richter shares an incredible amount of information for myeloma patients to navigate their care in these uncertain times. He shares drugs patients may want to ask their doctors about, considerations for stem cell transplant, the status of some myeloma clinical tr ..read more
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Amiloride, An Old Diuretic Drug, Is a Potential Therapeutic Agent for Multiple Myeloma
My Smoldering Life
by coryshubert
3y ago
The search for new drugs that control the continuous relapses of multiple myeloma is still required. Here, we report for the first time the potent antimyeloma activity of amiloride, an old potassium-sparing diuretic approved for the treatment of hypertension and edema due to heart failure. Read the Full Report ..read more
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Sleep Apnea Drives Multiple Myeloma in Aggressive Way, Mice Study Finds
My Smoldering Life
by coryshubert
3y ago
Is Sleep Apnea a way to a cure or treatment for MM? “Sleep apnea can drive the development of aggressive multiple myeloma in mice resistant to the cancer, a study found, suggesting that the sleep disorder is a modifiable risk factor for this disease.” Read it all here >   ..read more
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Hello 58…I’m Still Here
My Smoldering Life
by coryshubert
3y ago
As another year comes and goes, having a diagnosis of Smoldering Multiple Myeloma makes it a bit challenging as you don’t know whether to be happy that you are a year older or that your cancer has not started acting up. Wow, that is a depressing sentence. To be true, after almost three years since my doctor told me what was up, I have settled into the routine of “life as normal” since my cancer has remained in the same state… active but not aggressive. I can say that I don’t think about it day in and day out unless I read something about Myeloma or my three month blood work notice comes up in ..read more
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Proteasome Inhibitors for Multiple Myeloma Treatment
My Smoldering Life
by coryshubert
3y ago
Proteasome inhibitors are a group of drugs that are mostly used in treatment of multiple myeloma. I think that brings an interesting concept to the field of cardio-oncology where we tend to focus a lot on the diagnosis of cardiotoxicity. It’s important to mention that multiple myeloma patients tend to be patients with a lot of pre-existing cardiovascular risk factors. Today, screening for cardiovascular function or cardiac function informs whether doing an echocardiogram to assess left ventricular ejection fraction is or is not indicated for those receiving either bortezomib or carfilzomib ..read more
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Phase 1/2 Trial of Tinostamustine Recruiting Patients with Myeloma, Other Blood Cancers
My Smoldering Life
by coryshubert
3y ago
  The expansion part of a Phase 1/2 clinical trial testing tinostamustine in relapsed or refractory blood cancers has begun treating the first patient. READ THE ARTICLE HERE ..read more
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Sometimes Setbacks Happen, But You Still Need to Have Hope
My Smoldering Life
by coryshubert
3y ago
Venclexta trial deaths force AbbVie, Roche to stop recruiting myeloma patients Deaths Halt Drug Trials – READ MORE ..read more
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Free ebook on Google about MM
My Smoldering Life
by coryshubert
3y ago
Here is a great free read on Multimple Myeloma and all the info you could want. https://books.google.com/books?id=hlE8DwAAQBAJ&lpg=PP1&dq=multiple%20myeloma&pg=PP1&output=embed ..read more
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Darzalex Is Already On Track…
My Smoldering Life
by coryshubert
3y ago
Johnson & Johnson’s Darzalex is already on track to nab a second multiple myeloma nod in newly diagnosed patients in the U.S., but its journey with England’s cost watchdog hasn’t been so smooth. Read it all here ..read more
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