Connect with Fiona to learn more about perseverance and Marburg’s variant of MS (Ep. 101)
HSCT Warriors
by Zen Jen Stansbury Koenig
1M ago
Warrior: Fiona Mitten AI: Marburg’s variant of Multiple Sclerosis HSCT: 12/29/2011 Superpower: living in the moment Are you someone who believes that everything happens for a reason? How many moments do you treasure each day? Diagnosed 18 years ago after being hit by a drunk driver, several symptoms of multiple sclerosis like optic neuritis and paralysis onset and progressed so quickly, it seems Fiona’s experience was extra unique from the start. From bouts of total paralysis that kept her hospitalized for months at a time, to relief from rounds of chemotherapy that had her walking again, to s ..read more
Visit website
Meet Matt and be inspired to find peace of mind (Ep. 99)
HSCT Warriors
by Zen Jen Stansbury Koenig
1y ago
Warrior: Matt LeFrance AI: Multiple Sclerosis HSCT: June-July 2022 Superpower: peace of mind How do you know what to expect? From whom do you seek feedback? How do you decide to take the next step? Diagnosed just after college at the young age of 25 when he experienced double vision and a variety of doctors had a hard time understanding what was going on, Matt was diagnosed after a MRI revealed a lesion on his brain stem. As he pondered what was next, despite feeling as though life was ending when it should be only just beginning, Matt spent time researching his options for treatment before ag ..read more
Visit website
Continue learning with Dr. Burt and be inspired to question dogmas (Ep. 97)
HSCT Warriors
by Zen Jen Stansbury Koenig
1y ago
Warrior: Dr. Richard K. Burt AI: halter HSCT: pioneer Superpowers: vast knowledge, being patient-centric, caring for improvement in quality of life, facilitating clarity through education, and fortitude in human spirit With gratitude for the additional time to connect with Dr. Richard Burt and celebrate the recent publication of his latest book, Everyday Miracles: Curing multiple sclerosis, scleroderma, and autoimmune diseases by hematopoietic stem cell transplant, we’re sharing a verbatim transcript of this conversation, the second of two episodes featuring Dr. Burt, on our website, https:HSC ..read more
Visit website
Connect with Ali and celebrate launching season 10 of the podcast (Ep. 95)
HSCT Warriors
by Zen Jen Stansbury Koenig
1y ago
Warrior: Ali Strong AI: Multiple Sclerosis HSCT: November, 2017 Superpower: Acceptance What do you do for yourself that brings you joy? Are you someone who accepts moderation? To what extent do you find balance in life? Check in with Ali Strong to recount her experience finding her way to and through HSCT and learn how she is feeling now at more than five years post-transplant, including her struggles with menopause, disordered eating, and mental health. Join Ali and Zen Jen in discussion about Dr. Burt’s latest book and what’s to come with the podcast. Be sure to visit our website, HSCTWarrio ..read more
Visit website
Reconnect with HSCT hopeful Yavor to learn from his consistency and positive mindset (S7 replay)
HSCT Warriors
by Zen Jen Stansbury Koenig
1y ago
Warrior: Yavor Milanov AI: Relapsing Remitting MS HSCT: Scheduled in March 2022 Superpowers: Consistency How well do you attune with culture? Is your mindset one of growth, or is it fixed? How do you navigate your internal compass? After his diagnosis, Yavor felt tired and run-down facing his experience as a new immigrant working three or four jobs at a time. He experienced terrible side effects after steroids and trying an initial disease modifying therapy, so returned home to Bulgaria for a long respite. Rest, reduced stress, and time with family and friends helped reduce his symptoms and af ..read more
Visit website
Revisit Mike's journey to HSCT and be inspired by his humble fortitude (S7 replay)
HSCT Warriors
by Zen Jen Stansbury Koenig
1y ago
Warrior: Mike AI: Multiple Sclerosis HSCT scheduled for January 2022 Superpower: fortitude How do you share your diagnosis with others? How familiar are your loved ones with the demons you battle? How do you reconcile your experience with disease? Having received a diagnosis at the young age of 22 after a bout of optic neuritis, Mike experienced reversal of his symptoms after a round of steroids and figured the disease would be manageable. Fast forward ten years and suddenly Mike realized the disease had actually been simmering just beneath the surface and after a severe hurricane, began more ..read more
Visit website
Revisit Amy's preparation for HSCT and be inspired to move beyond judgment (S7 replay)
HSCT Warriors
by Zen Jen Stansbury Koenig
1y ago
Revisit Amy's preparation for HSCT and be inspired to move beyond judgment (S7 replay) by Zen Jen Stansbury Koenig ..read more
Visit website
Reconnect with Cassidy along her journey of over-achieving before and after HSCT* (S6 replay)
HSCT Warriors
by Zen Jen Stansbury Koenig
1y ago
*This episode contains content that may be alarming to some listeners, including mentions of suicidal ideation. Please check the show notes for more detailed descriptions and take care of yourself* Warrior: Cassidy V. Chapman AI: Multiple Sclerosis HSCT: July15, 2019 Superpower: Passion for bringing awareness to HSCT To what extent are you an over-achiever? How open are you to receiving support from others? Where do you find family? After being diagnosed with MS her first year of law school, Cassidy was initially able to manage her disease with a variety of disease-modifying therapies. Though ..read more
Visit website
A
by
ago
A ..read more
Visit website
A
by
ago
A ..read more
Visit website

Follow HSCT Warriors on FeedSpot

Continue with Google
Continue with Apple
OR