Five on Friday
MyelomaBlogs
by Chris N
3y ago
Well, I ordered the upright freezer. That’s the good news. The bad news is delivery is 3 months away. Who knows if it even will be delivered or I will get an out of stock notice. I think I must have gotten one of the last ones.  This Lowes upright was $719. From there they ..read more
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Five on Friday
MyelomaBlogs
by Chris N
3y ago
Well, I ordered the upright freezer. That’s the good news. The bad news is delivery is 3 months away. Who knows if it even will be delivered or I will get an out of stock notice. I think I must have gotten one of the last ones.  This Lowes upright was $719. From there they went way up at $1500 and higher.  So we’ll see. But I have a plan for this upright and feel it is a wise investment. Regardless of the pandemic, it’ll be nice to have a 6 months’ worth of freezer stuff and be done with it. Our budget is done for August and all bills accounted for.  I put in for my LLS reimb ..read more
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Radiation Radiation Radiation- Zap You Myeloma
MyelomaBlogs
by Julie
3y ago
7.30.20 Hello Friends- Been quite a couple of weeks, months… Pain, Pain, Pain Extraordinaire! Assessment Assessment Assessment Suffer Suffer Suffer Brought to the brink so many times Pain is way too humbling I was too smug for too long, thinking I was dominating myeloma, ha! I can take a lot, but all this pain and scan information of my crumbling bones, spine, neck, clivus, skull has really challenged my strength… Radiation all this week… Thank Goodness! Zap and kill those cells! I’ve been doing 20mg Dex steroids daily to get through this. I have to have mobility and pain relief to get on to t ..read more
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Hot Weather continues
MyelomaBlogs
by Chris N
3y ago
Today we are 100 degrees. It is really getting old that it is just day after day of heat. The mornings start off nice and then by noon it’s hot. It looks like this will continue for at least the next week. I mean it is July/August in California but still… The NP, in the video conference, did tell B to lower the Jakofi to one a day till we see how the hydration is going. I’m pretty sure she talked with Dr. Abedi and voiced my disapproval/concern about the creatine being linked to when he started the 2nd Jakofi. So I guess we’ll see. I haven’t been too inspired to cook( too hot) but I did make a ..read more
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The week ahead…
MyelomaBlogs
by Chris N
3y ago
First looking back over the last few days. Still really hot here making it hard to go outside and do much except for early in the morning. We picked up some oak barrels at Home Depot to replant some bamboo in. I love putting bamboo in barrels as it looks lovely. Years ago, probably 20, I went to a Waldorf parents house who had golden bamboo. I dug up as much as I could( believe me, back-breaking). But that is what we have as a privacy screen all around the driveway area. But we put some in barrels as it contains it and makes a pretty visual effect. We have these two barrels outside our bedroom ..read more
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MY YAESU FT-991A & HRO NIGHTMARE!
MyelomaBlogs
by KU4GW Cliff
3y ago
I’ve been a amateur radio operator since October 16, 1996, Amateur Extra class licensee since April 1997 and have owned several radios over the years, but until recently I had never purchased a brand new radio, I’ve always bought second handed radios to save a lot of money. I started out with a Icom IC-745 I ran for my first 8 years on HF, then a Kenwood TS-570D I ran for 4 years, and then a Yaesu FT-1000MP Mark-V (I’ve owned two of those now since a direct lightning strike tore up my first one.  Well, when Congress announced the stimulus check that went out in April 2020 I decided I was ..read more
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Test results
MyelomaBlogs
by Margaret
3y ago
Yesterday I received the results from my Covid antibody test AND my routine myeloma tests. Yesterday was definitely an important day!!! So, even though I’m super busy today, I just had to stop and write an update. First, I tested negative for Covid, which means that I have never been exposed to it. I opted for the more complete antibody test, the one where they draw blood from your arm. There is another test, a mere finger prick, which tells you only if you are positive or negative. But I wanted to know if what I’d had back in January was coronavirus or not. Well, I have my answer now: it wasn ..read more
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Putting things up
MyelomaBlogs
by Chris N
3y ago
I made a quick batch of pickled jalapenos this morning.   We use these all winter. They are not canned but just refrigerator jalapenos. It says they are good for 2 months in the fridge but we are just finishing ajar from last fall so I’m guessing they last a lot longer than what the recipe says because it’s just vinegar and water and some sugar. Also, at Winco we SCORED gamma lids and some buckets. These are seriously expensive on Amazon. They’re probably not quite as good as the Amazon ones but they’ll do the job of sealing the buckets. I have the black beans and points to put in t ..read more
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Getting ready…
MyelomaBlogs
by Deb Gascoyne
3y ago
Today I’m back at the QE for lung and heart tests. They always do these before a transplant to check you’re healthy enough – keeping my fingers crossed there’s nothing to worry about! Sure there won’t be. I’m feeling pretty healthy at the moment, if a little bit fat! I’ve signed up to the London to Paris virtual bike ride for Myeloma UK – you get a month to ride the 508km to Paris! I’m feeling slightly proud of myself as I started it 2 days after my stem cell harvest, and after 5 days have done 60% of it! I’d really like to finish the last 170km today and tomorrow!! I’m not actually trying to ..read more
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Welcome, (Harry) Potter
MyelomaBlogs
by Margaret
3y ago
Some time ago, Stefano and I decided that we wouldn’t adopt kittens anymore, not because we don’t like kittens, on the contrary, who can resist a KITTEN?, but because there are so many adult cats who need good homes. Getting adopted is much harder for adult cats, especially if they have any kind of physical disability or if they are elderly or…whatnot. And so we made up our minds: no more kittens!!! Our rule became: if we come across an adult kitty that nobody else wants to adopt, we’ll adopt it. SInce then, I’ve learned a lesson: never make any rules where cats are concerned… About two months ..read more
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