Episode 339: Understanding Progression Independent of Relapse Activity with Professor Alan Thompson
RealTalk MS
by Jon Strum and Professor Alan Thompson
1w ago
A couple of terms have found their way into the MS lexicon and they have left some people living with MS feeling confused and even frightened. If you've been diagnosed with relapsing-remitting MS and you've always assumed that disease progression only occurs at the time of a relapse, you may be wondering what progression independent of relapse activity, or PIRA, means and how it may or may not impact your MS journey. And if you are someone whose MS seems relatively stable and well-managed, you may be wondering whether your central nervous system is under some sort of silent attack from sm ..read more
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Episode 338: Inside MS Advocacy and This Year's Public Policy Conference with Steffany Stern
RealTalk MS
by Jon Strum and Steffany Stern
1w ago
You've probably heard me say more than once that the things people affected by MS want most -- access to quality healthcare, affordable prescription medications, and funding for MS research -- are, to a large extent, all functions of public policy. The people who decide whether we get these things are our elected officials. That's why advocacy is so critically important. The National MS Society's Public Policy Conference gets underway on March 4th, and joining me with a preview of this year's conference is the MS Society's Vice-President of Advocacy, Steffany Stern. We're also taking a deep di ..read more
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Episode 337: Aging With MS with Dr. Aaron Boster
RealTalk MS
by Jon Strum and Dr. Aaron Boster
3w ago
We're all living longer and that includes people living with MS. And as they age, people with MS are asking new questions. Is there a need to stay on disease-modifying therapy after the age of 60?  How do we know whether a new symptom is a symptom of MS or a symptom of aging? Does an additional age-related health condition make treating MS more difficult? Does treating MS make treating that new health condition more difficult? How can we best offset the social isolation that's often associated with MS and with aging? This week, Dr. Aaron Boster joins me on a deep dive into aging with MS ..read more
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Episode 336: Applying for Social Security Disability Insurance with Jamie Hall, Esq.
RealTalk MS
by Jon Strum and Jamie Hall, Esq
3w ago
When people living with MS find themselves unable to continue working due to disability, they turn to Social Security Disability Insurance (SSDI). And when they do, many are surprised to find the long, winding, sometimes confusing road that lies ahead.  This week, disability law expert Jamie Hall joins me to demystify the process of applying for SSDI benefits. Jamie specializes in social security and long-term disability law. And he, literally, wrote the book for the National MS Society on applying for SSDI benefits. We'll also tell you about the amazing work this year's recipient of the ..read more
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Bonus Episode: MS21: Are We Meeting the Needs of Individuals at the Time of Their MS Diagnosis with Prof. Alice Laroni and Rachel Horne
RealTalk MS
by Jon Strum with Prof. Alice Laroni and Rachel Horne
1M ago
This special episode of RealTalk MS is sponsored by EMD Serono and is only intended for a U.S. audience. EMD Serono is the healthcare business of Merck, KGaA, Darmstadt, Germany, in the United States and Canada. In this special episode of RealTalk MS, Professor Alice Laroni and Rachel Horne join me to explore  what happens at the time someone receives their MS diagnosis, What the conversation with their neurologist is like, what kind of information they receive, and where they might turn to learn more about their diagnosis.  We're also exploring what should be happening at the time o ..read more
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Episode 335: Know Your Employment Rights If You're Living With MS with Christina Forster
RealTalk MS
by Jon Strum and Christina Forster
1M ago
How, and to whom, should you disclose your MS at your job? And if you decide to disclose, is that information confidential? What does reasonable accommodation mean? If you need a day or two to bounce back after an infusion, is that part of your PTO? And what do you do when you no longer have days off available? If you're living with MS and you're employed, you absolutely need to know and understand your rights in the workplace.  MS Navigator Christina Forster joins me to answer these questions and more as she shines a bright light on your rights in the workplace. I'll also remind you why ..read more
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Episode 334: Managing Health Insurance When You're Living With MS with Carla Turechek
RealTalk MS
by Jon Strum and Carla Turechek
1M ago
Living well with MS means learning to plan ahead. And, while planning ahead may not solve every issue that crosses your path, taking time to understand some of the details and making the right choices when it comes to your health insurance can make a huge difference in your MS care and treatment. MS Navigator and insurance resources specialist Carla Turechek joins me to share strategies for successfully navigating the health insurance maze with a minimum number of "surprises." We're also sharing study results that can help you get the most benefit from your everyday physical activity. We'll in ..read more
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Episode 333: Improving Communication Between You and Your Neurologist with Dr. Luis Manrique-Trujillo
RealTalk MS
by Jon Strum and Dr. Luis Manrique-Trujillo
1M ago
You've just had your appointment with your neurologist or MS Specialist and you're on your way home, feeling like you weren't heard. Maybe there wasn't sufficient time. Or it might feel like your opinion simply isn't valued. Your frustration could even be the result of language issues and cultural barriers that make communication difficult. Whatever the reason, it doesn't have to be this way. Dr. Luis Manrique-Trujillo joins me this week to share tips and strategies that will improve the quality of communication between you and every member of your MS care team. Dr. Manrique-Trujillo is a neur ..read more
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Episode 332: Managing the Cost of Generic, Biosimilar, and Other Prescription Medications with Robin LaRue
RealTalk MS
by Jon Strum and Robin LaRue
2M ago
If you remember your Economics 101 class, the introduction of generic and biosimilar drugs should cause prices to drop. Yet, when it comes to MS disease-modifying therapies that isn't always the case.  MS Navigator Robin LaRue joins me this week to discuss how to manage the sometimes crazy costs of MS prescription medications. We're also sharing results from a study that show there is absolutely no association between consuming dairy and gluten products and MS disease activity. We'll tell you about two different studies that suggest that non-pharmaceutical interventions may be effective i ..read more
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Episode 331: Becoming a Donor to the National MS Brain Bank with Dr. Claire Riley
RealTalk MS
by Jon Strum and Dr. Claire Riley
2M ago
This is the week that a lot of us make resolutions for the coming year. And I'm hoping that after you hear my conversation with Dr. Claire Riley, many of you will resolve to become donors to the National Multiple Sclerosis Brain Bank. Resolving to donate brain and tissue to the National MS Brain Bank is a new year's resolution that goes far beyond the standard eat better and exercise more promises that so many of us make to ourselves every year. It's deeply meaningful, profoundly personal, and, as Dr. Riley describes it, it's a heroic step in choosing to play an important role in curing MS. We ..read more
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