Despite Medical Training, A Young Doctor’s Epilepsy Goes Undiagnosed for a Decade
Seizing Life
by CURE Epilepsy
1w ago
This month on Seizing Life® Dr. Kelly Tyson shares her decade-long journey to an epilepsy diagnosis. Despite numerous visits to various medical experts through the years and majoring in neuroscience in college, Kelly was never referred to a neurologist, nor did she recognize the “episodes” she experienced as seizures. Kelly details how she managed these episodes through college, graduate school, and medical school, and reveals the surprising way that she came to realize she was having seizures ..read more
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Joey’s Song Musicians: Rocking for Epilepsy Research is Personal
Seizing Life
by CURE Epilepsy
1M ago
This month Seizing Life® goes on location at the Joey’s Song Freezing Man Festival to speak with Kay Hanley and John Cowsill, two musicians with personal connections to epilepsy who participated in the multiday music festival to raise money for epilepsy research ..read more
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Fostering a Good Relationship with Your Child’s Epilepsy Care Team
Seizing Life
by CURE Epilepsy
2M ago
This month on Seizing Life® Patricia Dean, ARNP and the Epilepsy Network Specialist in the Comprehensive Epilepsy Center at Nicklaus Children’s Hospital in Miami, discusses managing the relationship with your child’s epilepsy care team ..read more
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SCN8A and Infantile Spasms: A Mother & Researcher Pursues a New Potential Therapy
Seizing Life
by CURE Epilepsy
3M ago
Dr. Madeleine Oudin shares her daughter’s epilepsy journey following a devastating genetic diagnosis and the onset of infantile spasms, and explains how it has impacted her work as a researcher in pursuing a new potential therapy around the SCN8A gene ..read more
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The Best of Seizing Life 2023
Seizing Life
by CURE Epilepsy
3M ago
This week on Seizing Life®, we revisit several compelling conversations from the past year in our Best of Seizing Life 2023 compilation episode ..read more
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Rocking for Research: The Inspiration and Impact of Joey’s Song
Seizing Life
by CURE Epilepsy
4M ago
Joey’s Song founder Mike Gomoll shares his son’s epilepsy story and discusses the creation, growth, and evolution of Joey’s Song into the multi-artist, multi-day, “Freezing Man Festival ..read more
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From Hiding Diagnosis to Advocating for Awareness: A Young Woman’s Epilepsy Journey
Seizing Life
by Kelsey Hayes, CURE Epilepsy
5M ago
This week on Seizing Life® Mariah Mayhugh discusses her epilepsy journey, from hiding childhood absence seizures to becoming an active and creative advocate for epilepsy awareness, education, and representation. The post From Hiding Diagnosis to Advocating for Awareness: A Young Woman’s Epilepsy Journey appeared first on CURE Epilepsy ..read more
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The Crucial Role of Nurses in Epilepsy Care
Seizing Life
by Kelsey Hayes, CURE Epilepsy
5M ago
This week on Seizing Life® we welcome Lucretia Long to the podcast to discuss the present and future of epilepsy care and treatment. Lucretia is an Advanced Practice Registered Nurse (APRN) and a Certified Nurse Practitioner (CNP) at The Ohio State University Wexner Medical Center who has been working with epilepsy patients for over 30 years. She shares her vast experience and perspective on a range of areas within epilepsy care, treatment, and patient information. The post The Crucial Role of Nurses in Epilepsy Care appeared first on CURE Epilepsy ..read more
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Overcoming Seizures to Pursue a Neuroscience Degree and Help Others Living with Epilepsy
Seizing Life
by John Boston, CURE Epilepsy
5M ago
In observance of Sudden Unexpected Death in Epilepsy (SUDEP) Action Day on October 16th, we speak with the Maffie family about the tragic loss of Anthony Maffie to SUDEP and their advocacy and fundraising efforts in Anthony’s honor. The post Overcoming Seizures to Pursue a Neuroscience Degree and Help Others Living with Epilepsy appeared first on CURE Epilepsy ..read more
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Overcoming Seizures to Pursue a Neuroscience Degree and Help Others Living with Epilepsy
Seizing Life
by John Boston, CURE Epilepsy
6M ago
This month we welcome Matthew Summerfield to the podcast. Matthew has lived with epilepsy since his first seizure at the age of eleven. Though he was advised early on not to tell anyone about his epilepsy, Matthew has refused to be held back by seizures, studying neurosceience as a college undergraduate, and now pursuing a PhD while working in an epilepsy research lab at the University of Iowa. The post Overcoming Seizures to Pursue a Neuroscience Degree and Help Others Living with Epilepsy appeared first on CURE Epilepsy ..read more
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