149 "What worries me most is the psychological impact"
TheAlzPodcast | Together in This
by Mike Good of Together in This - Improving dementia care together
3y ago
In this episode, we're picking up where we left off in episode 148: “I felt I had been harmed” with guest Jamie Tyrone.  Jamie is the author of Fighting for My Life: How to thrive in the shadow of Alzheimer's. She unexpectedly found out about her risk of developing Alzheimer's disease in the course of genetic testing for something else. As you can imagine, that had a significant impact on her life. More about that in a minute. Meanwhile, fast-forward to February 2021. Phil Gutis, who is our Assistant Sherpa on the show and was diagnosed with young onset Alzheimer's five years ago, landed ..read more
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148 "I felt I had been harmed"
TheAlzPodcast | Together in This
by Mike Good of Together in This - Improving dementia care together
3y ago
We originally introduced you to our guest today, Jamie Tyrone, in episode 100: Enjoy Us in the Moment. In that episode, Jamie starts walking us through her experience of finding out (by accident!) she has two copies of the ApoE-4 gene, which puts her at a 91% lifetime risk of getting Alzheimer's disease. In addition to having a great-grandmother, grandmother, and two great-uncles who died of Alzheimer's disease, at the time Jamie found out her own genetic information, her dad was living with Alzheimer's disease. This is Jamie's third appearance on the show; episode 104: I Call it a Gift ..read more
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147 Safe, Social, and Engaged
TheAlzPodcast | Together in This
by Mike Good of Together in This - Improving dementia care together
3y ago
This episode is part two of our conversation with Dr. Jason Karlawish, author of the new book The Problem of Alzheimer's: How Science, Culture, and Politics Turned a Rare Disease into a Crisis and What We Can Do About It. The book is out today (February 23, 2021) and is available as both an audio book on audiobooks.com, as well as hardback at your favorite bookseller. If you haven't yet listened to the first part of our conversation with Dr Karlawish in episode 146: It's a Disease of Autonomy, you'll want to hit pause and go back to that episode to catch up before coming back to this episode ..read more
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146 "It's a disease of autonomy"
TheAlzPodcast | Together in This
by Mike Good of Together in This - Improving dementia care together
3y ago
Phil Gutis, former New York Times reporter and our Assistant Sherpa, interviews Dr. Jason Karlawish, author of the new book (available 2/23/21) The Problem of Alzheimer's: How Science, Culture, and Politics Turned a Rare Disease into a Crisis and What We Can Do About It. Dr. Karlawish was very generous with his time, so this episode is part one of two.  In part one, the wide-ranging conversation touches on: Aducanumab How we got to a place that -- 100+ years later -- still doesn't include a cure The concept of "pre-clinical Alzheimer's disease" Public stigma and self-stigma Why Dr. Karla ..read more
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145 "We can laugh and have fun and be silly"
TheAlzPodcast | Together in This
by Mike Good of Together in This - Improving dementia care together
3y ago
Mikaela Wilson and Spencer Coombe both started out working as direct care staff in long-term care as teenagers.  While working as direct carers, they had very different experiences. Comparing notes, they came to believe they could create something that would give clients the best experience possible. But they didn't stop there. After co-founding Senior Support Services of Southern Ontario in Hamilton, ON, they also co-authored a book, Any Game for Any Brain, based on what they saw was working for their clients. As Spencer says, "We discovered that when seniors are respected, valued, and c ..read more
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144 "Those people have names"
TheAlzPodcast | Together in This
by Mike Good of Together in This - Improving dementia care together
3y ago
After reporting on the FDA Advisory Committee meeting for Biogen's phase 3 trial drug aducanumab, Phil started wrestling with two parts of himself: should the guy who believes in science prevail, or the guy living with the diagnosis? This week, picking up where we left off in Episode 143: "We have a friend," Christy throws in her emotional thinking on the topic. More at DementiaSherpa.com/episode144 ..read more
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143 "We have a friend"
TheAlzPodcast | Together in This
by Mike Good of Together in This - Improving dementia care together
3y ago
This episode was recorded November 9, 2020. Phil and Christy discuss President-Elect Biden and Vice President-Elect Harris's victory and the ongoing impact of COVID-19 within our community. But mostly, Phil wrestles with two parts of himself about what happened last week at the FDA Advisory Committee: should the guy who believes in science prevail, or the guy living with the diagnosis ..read more
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142 The All-In Method for Difficult Conversations
TheAlzPodcast | Together in This
by Mike Good of Together in This - Improving dementia care together
3y ago
In This Episode We've got two top-notch guests on the show today, Alexandra Jamieson and Bob Gower.  They're co-authors of the new book, Radical Alignment: How to Have Game-Changing Conversations That Will Transform Your Business and Your Life. You won't be surprised to hear we're going to focus on the "your life” aspect today. Be sure to listen all the way to the end of the episode for details on a generous special offer if you order the book before August 10, 2020--that's tomorrow!--or pause the episode and head straight over to RadicalAlignmentBook.com right now if you can't stand the ..read more
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141 "What did you do? What did you say?"
TheAlzPodcast | Together in This
by Mike Good of Together in This - Improving dementia care together
3y ago
This episode is part two of my conversation with Mikaela Wilson and Spencer Coombe, co-founders of Senior Support Services of Southern Ontario and co-authors of Any Game for Any Brain. Last episode, we talked about the Canadian military's report on five nursing homes in Ontario and the awful conditions they found there. As Spencer said, it was shocking, but “we weren't shocked.” John Lewis had it exactly right when he said, “When you see something that is not right, not just, not fair, you have a moral obligation to say something, to do something.  Our children and their children will ask ..read more
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140 "We weren't shocked"
TheAlzPodcast | Together in This
by Mike Good of Together in This - Improving dementia care together
4y ago
Mikaela Wilson and Spencer Coombe, co-founders of Senior Support Services of Southern Ontario and co-authors of Any Game for Any Brain, discuss the Canadian military's report on abysmal conditions in five Ontario nursing homes.  Full transcript and links at DementiaSherpa.com/episode140 ..read more
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