Science for ME
1,067 FOLLOWERS
Science for ME is a place where science and the ME/CFS meet, it is an independent, patient-led, international forum for people with ME/CFS and carers, clinicians, scientists, and advocates who support them.
Science for ME
2h ago
https://www.bmj.com/content/387/bmj.q2236?utm_id=BMJ005
90, 000 people over 3 years .
The cognitive dissonance in medicine never fails to astound ..read more
Science for ME
2h ago
Dynamics of choroid plexus volume is associated with the presence and development of fatigue in multiple sclerosis
Martina Rubin; Paolo Preziosa; Monica Margoni; Alessandro Meani; Elisabetta Pagani; Gianluca Corazzolla; Loredana Storelli; Damiano Mistri; Massimo Filippi; Maria A Rocca
BACKGROUND
Immune-mediated processes are implicated in the pathogenesis of fatigue, a common symptom in multiple sclerosis (MS). The choroid plexus (CP) regulates central nervous system (CNS)...
Dynamics of choroid plexus volume is associated with the presence and development of fatigue in multiple sclerosis, 2 ..read more
Science for ME
2h ago
Exploring common pathogenic association between Epstein Barr virus infection and long-COVID by integrating RNA-Seq and molecular dynamics simulations
Kanwal, Ayesha; Zhang, Zhiyong
The term "Long-COVID" (LC) is characterized by the aftereffects of COVID-19 infection. Various studies have suggested that Epstein–Barr virus (EBV) reactivation is among the significant reported causes of LC. However, there is a lack of in-depth research that could largely explore the pathogenic...
Exploring common pathogenic association between [EBV] and [LC] by integrating RNA-Seq and molecular dynamics simulati ..read more
Science for ME
14h ago
https://www.mdpi.com/2673-8112/4/10/110
Development of an ME/CFS Online Screener
by
Paul Cathey
and
Leonard A. Jason
Center for Community Research, DePaul University, 990 W. Fullerton Ave., Chicago, IL 60614, USA
*
Author to whom correspondence should be addressed.
COVID 2024, 4(10), 1585-1598; https://doi.org/10.3390/covid4100110
Submission received: 28 August 2024 / Revised: 17 September 2024 / Accepted: 27 September 2024 / Published:...
Development of an ME/CFS Online Screener, 2024, Cathey & Jason ..read more
Science for ME
16h ago
Rebecca Firth, 42, is seeking damages from Mid Yorkshire Teaching NHS Trust for allegedly failing to provide her with adequate PPE
A nurse who nearly died from Covid-19 is suing the NHS for negligence and failing to provide her with proper personal protective equipment (PPE).
Rebecca Firth spent 21 days in intensive care and almost a month on a ventilator, after suffering three cardiac arrests, sepsis and multiple organ failure as a result of coronavirus.
The 42-year-old was left so...
Nurse who nearly died from Covid sues NHS for negligence ..read more
Science for ME
18h ago
A Nursing-Led Patient Education Program for ME/CFS
Silver Spring, Maryland— Sigma Theta Tau International Honor Society of Nursing (Sigma) and the American Nurses Credentialing Center (ANCC) are excited to announce the 2024 recipient of the Sigma/ANCC Evidence-Based Practice (EBP) Implementation Grant: an interprofessional team led by Nisha Mathews, PhD, MSN, RN, from the University of Houston-Clear Lake. Their award-winning project, titled “Community Insight to Clinical Care: A...
Click to expand...
USA: Sigma Theta Tau and ANCC Announce Winner of the 2024 Evidence-Based Practice Impleme ..read more
Science for ME
20h ago
https://era.ed.ac.uk/handle/1842/42276
Enhancing inclusivity in human-computer interaction through the implementation of temporal uncertainty tools
View/Open
Bowler2024.pdf (15.73Mb)
https://era.ed.ac.uk/bitstream/handle/1842/42276/Bowler2024.pdf
Date
09/10/2024
Author
Bowler, Ryan David
Metadata...
Enhancing inclusivity in human-computer interaction through the implementation of temporal uncertainty tools, 2024, Bowler ..read more
Science for ME
23h ago
Abstract
Aims and method
Functional neurological disorder (FND) most often presents in women of childbearing age, but little is known about its course and outcomes during pregnancy, labour and postpartum (the perinatal period). We searched MEDLINE, PsycInfo and Embase combining search terms for FND and the perinatal period. We extracted data on patient demographics, subtype of FND, timing of symptom onset, comorbidities, medications, type of delivery,...
Functional neurological disorder in pregnancy, labour and the postpartum period: systematic review 2024 Cabreira, Carson, Stone et al ..read more
Science for ME
1d ago
Miranda Hart (UK comedian) has posted two posts on Instagram about ME/CFS and other chronic illness.
1:
2 (video): https://www.instagram.com/tv/B-XggCGFgmr/?utm_source=ig_web_copy_link
She starts talking about chronic illness and ME at about 10 min 30 sec.
In the video she shows a lot of empathy for people with ME and says she hopes that one of the positives that may come from the Covid-19 pandemic is a better understanding of what people...
Miranda Hart - British comedian ..read more
Science for ME
1d ago
Overlapping Conditions in Long COVID at a Multisite Academic Center
Background: Many patients experience persistent symptoms after COVID-19, a syndrome referred to as Long COVID (LC). The goal of this study was to identify novel new or worsening comorbidities self-reported in patients with LC.
Methods: Patients diagnosed with LC (n=732) at the Mayo Long COVID Care Clinic in Rochester, Minnesota and Jacksonville, Florida were sent questionnaires to assess the development of...
Overlapping Conditions in Long COVID at a Multisite Academic Center, 2024, Grach et al ..read more