CWL09_My Lupus and My Hair   I was asked about whether or not my hair came out while being diagnosed with lupus and how long my hair has been growing while locked. I'll be happy to answer your questions too! Feel free to leave me a voicemail here in Anchor or follow me on Instagram at @TheLupusLiar. --- Support this podcast: https://podcasters.spotify.com/pod/show/conversationswithlupus/support ..read more

Get through it. It’s not about getting past it, it’s about getting through it. --- Support this podcast: https://podcasters.spotify.com/pod/show/conversationswithlupus/support ..read more

Every now and then you have a moment. Here’s thoughts from a moment of admitting defeat. It happens! --- Support this podcast: https://podcasters.spotify.com/pod/show/conversationswithlupus/support ..read more

Want to be contacted? Go to http://bit.ly/palsstudy to complete the interest form!  The Peer Approaches to Lupus Self-Management (PALS) Study Could Be Right For You!  This is a research study that connects women with lupus with a mentor who also has lupus. Your mentor will encourage you to learn how to manage your lupus better. Are you looking for guidance and support? Be a Mentee! Are you managing your lupus well and want to help other women do the same? Be a Mentor!   This study will investigate whether a peer mentoring program can help improve health-related quality of l ..read more

Give yourself a ‘Lupus Holiday!’ A short rant on reminding yourself to be present for your health this holiday season. Consider changing your mindset this season to self-care, smart decision making, and careful healthy planning. --- Support this podcast: https://podcasters.spotify.com/pod/show/conversationswithlupus/support ..read more

Named one of Fast Company's 2017 Top 10 Most Innovative Companies in Biotech, PatientsLikeMe is on a mission to put patients first! Learn more about PatientsLikeMe from Liz Morgan, Director, Member Experiences. She answers questions on how the company is committed to helping patients live better. Then log onto PatientsLikeMe.com to join a network of over 500,000 people to share experiences, provide support, and track symptoms.Lupus is a life altering and challenging disease to live with. Lupus is a chronic, autoimmune disease that can damage any part of the body to include, but is not limited ..read more

Conversations with Lupus: An Interview with Lupus Patient Tanisha Davis-SmallsHow does a mother of three, diagnosed with lupus nephritis live a full life while living with lupus? Watch this interview with Tanisha as she describes how it feels to be fighting for life and happy at the same time. Lupus is a life altering and challenging disease to live with. Lupus is a chronic, autoimmune disease that can damage any part of the body to include, but is not limited to skin, joints and/or life organs. According to the Lupus Foundation of America, Inc.* about 1.5 million people, worldwide, have a for ..read more

Annetta's shares a little of her story. Annetta was diagnosed with Systemic Lupus on January 4, 2000. This day changed her life. As the old by Annetta, "I knew it was going to take a toll on me. It was a very cold sense in the room. I can even remember what I was wearing."Annetta's life has changed more than she could ever have imagined. Due to a blood infection and clots in her legs, she has them no more. After her rehabilitation, set to be scheduled soon, she wants to be able to go back to school. But she'll need the help of a vehicle that can be equipped to make her mobile. She only asks fo ..read more

5 Points of Power (POP) when it comes to being diagnosed with Lupus. Here are five things I wish I would have known when I was first diagnosed with lupus. How do you successfully coordinate care after being diagnosed with Lupus? ========================================­===Learning to live successfully with lupus.========================================­===**Click Below to SUBSCRIBE for More Videos:https://www.youtube.com/user/LupusLiar========================================­===**Click Below to Sign up for the FREE living with lupus tips via email:https://goo.gl/li06i0**FOLLOW, LIKE, TWEET, SH ..read more

Why live with Lupus? Lupus lives with you. Tell it where, what, and when. You are healthy, you are better, you can do everything. Because Lupus is a liar!Inspired and encouraged by those living with Lupus.Lupus is a life altering and challenging disease to live with. Lupus is a chronic, autoimmune disease that can damage any part of the body to include, but is not limited to skin, joints and/or life organs. According to the Lupus Foundation of America, Inc.* about 1.5 million people, worldwide, have a form of Lupus.----Host Note: From the heart of experience, I am well aware of the related dif ..read more