Help APF continue to be there for patients and families throughout the coronavirus pandemic APF is needed now more than ever, and our team is continuing to work through the covid-19 pandemic. Our vital research is continuing, and we are adapting our services to ensure patients, carers and families can still access the help, information and support they need during this uncertain time. Calls and emails to our Support Line have increased significantly in recent weeks, so we are growing this service to ensure we can meet demand for information and support. We are keeping patients and families up ..read more

Action for Pulmonary Fibrosis Research Fellow Dr Richard Allen and Trustee Professsor Gisli Jenkins involved in research, funded by Action for Pulmonary Fibrosis, that discovers why some people are more likely to develop IPF than others.    Research will help understand what causes IPF and the development of more effective treatments.    Action for Pulmonary Fibrosis – the leading pulmonary fibrosis charity in the UK – is delighted to announce their recent research has resulted in a breakthrough for IPF patients and their families.   Researchers, funded by Action for Pulmonary Fibrosi ..read more

We understand that patients and their families with pulmonary fibrosis may be feeling anxious and concerned about the ongoing news surrounding coronavirus.  Particularly in light of some of the alarmist headlines appearing in parts of the media this week.  The symptoms of coronavirus are similar to flu including a cough, a high temperature and feeling short of breath. If you have these symptoms, and you’ve travelled in the last month from high risk areas in China or other high-risk areas or if you’ve been in contact with someone who has, call NHS 111 for advice. The risk of catching ..read more

We understand that many people with pulmonary fibrosis and their families may be concerned at the Coronavirus epidemic described by the World Health Organisation as ‘a global public health emergency’. Coronavirus is a respiratory illness which can cause mild symptoms such as a runny nose, sore throat and cough but may also cause breathing difficulties, pneumonia and death. The impact can be most severe in people with existing lung conditions, like PF.  Current advice is to continue with day to day activities but if that changes, we will update you via our website, Facebook page, Twitter ..read more

We wanted to recognise the enormous efforts of fundraisers by launching the first Fundraiser of the Year Award in 2019.    Ten nominees were shortlisted and staff voted on the fundraisers who they felt went to extraordinary lengths to raise money for APF.   Two stood out and APF is delighted to recognise both as shining examples of fantastic fundraisers in 2019.   Linda, who has PF and is registered blind, hosted a charity night and auction in February 2019, raising over £2,000 and this inspirational lady is doing it all again in 2020. Rebecca wrote to tell us about h ..read more

Action for Pulmonary Fibrosis would like to support researchers working in pulmonary fibrosis to attend the ATS 2020 in Philadelphia, Pennsylvania, USA.  The awards of £1000 contribute towards costs for conference registration, accommodation and travel.  We have three awards available. Applications are now invited from any UK based researcher who has had an abstract accepted for presentation (poster or spoken session) for the ATS.  Applications should be in the form of a brief (1-2 page) curriculum vitae, with a copy of the abstract submitted to the American Thoracic Society meeting and a c ..read more

Regional Support Coordinator (2 posts: North, South) Location: home based. Salary: £25,000-£32,000 depending on experience, pro-rated Are you looking for a new challenge? Are you passionate about enabling patients and carers to drive change? We are looking for two exceptional candidates to be our first Regional Support Coordinators, to manage and grow our network of support groups for people living with pulmonary fibrosis. There is no known cure for pulmonary fibrosis, and little support for families. We are passionate about changing that, by funding research to find a cure, cam ..read more

Action for Pulmonary Fibrosis is delighted to be able to offer a range of three Christmas Cards Thank you to the support of fundraiser Camilla Inglis and her brilliant son Wilf.  “My wonderful friend died from Pulmonary Fibrosis in November 2017, leaving behind her beloved husband and two gorgeous sons.  Their youngest was 11 and a good friend of my youngest son. Wilf, my eldest could see the devastation and grief and after much talk about robins and their special connection to lost friends he painted this Robin image.  It was my friend’s wish that APF should benefit after he ..read more

Action for Pulmonary Fibrosis (APF) was delighted to attend the Pulmonary Fibrosis Foundation’s 2019 Summit in Texas in November. Our CEO Louise Wright and Chair of Trustees Steve Jones were in attendance. As Louise says “It was an informative and inspiring conference and a chance for collaboration. It was fantastic to see patients and carers are at the heart of the conference” Steve Jones spoke at the conference. Watch below a series of clips of Steve talking about our fundraisers, researchers, and the work that needs to be done for people living with pulmonary fibrosis. It is ..read more