We welcome the decision to extend energy bill and childcare support to families in today’s budget. However, we are concerned the Government has not addressed the £300 million annual gap in funding for children’s palliative care in England. HM Treasury has announced that the Energy Price Guarantee, which caps the unit cost of energy for […] The post Budget 2023: energy support welcome but funding gap remains appeared first on Together for Short Lives ..read more

Until the age of 16 I had lived a seemingly ‘normal’ life. I had a few peculiar things happen with my health – lots of infections I struggled to clear, lots of joint injuries and being much shorter than my percentile projections predicted (I am five foot nothing!) It took six years to discover the […] The post Transition is a time in which we need to empower young people appeared first on Together for Short Lives ..read more

We have welcomed the Government’s new aspirations for social care for disabled children in England. However, we are calling on ministers to allocate the funding lifeline services needed to realise their bold ambitions. In its Children’s Social Care Implementation Plan, the Department for Education commits to a series of actions, including: commissioning a review into […] The post More money needed for children’s social care plan  appeared first on Together for Short Lives ..read more

Of all the seasons Christmas was the one which Zack absolutely adored. Most likely it was the lights, so many lovely lights all over his world. He also loved the presents, he thought all presents were for him, no matter whose birthday or occasion we were celebrating, all presents (and claps) were for him. But […] The post Merry Christmas from all of us and Zack wherever he may be decorating his tree. appeared first on Together for Short Lives ..read more

This festive season will be tough for everyone this year, but it’s especially hard for vulnerable and isolated families caring for children with incurable and life-limiting conditions. Did you know you can be there for these families while you do your Christmas shopping, at no extra cost? The post Support while you shop this festive season appeared first on Together for Short Lives ..read more

We’re thrilled to announce that the BNP Paribas Skate Day held earlier this month raised an incredible £40,000 in support of Together for Short Lives and seriously ill children across the UK! BNP Paribas hosted a magical Christmas Skating event at Somerset House in London and chose Together for Short Lives as the beneficiary for […] The post Magical Skate Day raises £40,000 for seriously ill children appeared first on Together for Short Lives ..read more

We’ve reached the end of the first year of our partnership with Morrisons and are thrilled to announce that we have raised over £2.6 million for seriously ill children and their families, and the UK’s 54 children’s hospices that care for them. Morrisons customers and suppliers have supported Together for Short Lives through cash donations […] The post Morrisons raise over £2.6 million in first year of charity partnership appeared first on Together for Short Lives ..read more

Families caring for a seriously ill child dependent on vital equipment to stay alive can now receive much-needed aid as we launch our new Cost of Living Support Fund to help UK families caring for children with short lives with their soaring energy bills. An estimated 3,000 seriously ill children require long-term ventilation to stay […] The post Emergency Fund Created to Support Children with Short Lives  appeared first on Together for Short Lives ..read more

Together for Short Lives has welcomed some positive action by the Chancellor of the Exchequer in today’s Autumn Statement (17 November). But the charity has warned much more is needed to avert crisis for families of children who will have short lives this winter. Andy Fletcher, Chief Executive of Together for Short Lives, said: “I […] The post Families of seriously ill children need more, despite Autumn Statement appeared first on Together for Short Lives ..read more

On 17 November it’s World Prematurity Day – a global movement to raise awareness of premature birth and the sometimes devastating impact it can have on families. In this blog, Stacey, Mum to Tiffany and Ricardo talks to us about her experience of having a premature baby, how it affected her and how she was […] The post “No matter what your story is, you are not alone” appeared first on Together for Short Lives ..read more