Steven’s Double Dash: Conquering Two Half Marathons in Just 4 Days! On 27 September 2023, Steven embarked on his first half marathon, the NatWest – Do Good Feel Good, followed by another just four days later, The Great Scottish Run! Through this incredible feat, Steven raised an impressive £735.00 for the brain tumour community. In Steven’s words; “I was made aware of brainstrust by my mother, Irene, who has been involved as a volunteer for some 10 years now, setting up and running brainstrust’s counselling service. She has told us all of the many challenges people face and the resounding pos ..read more

Sue, her brave family, and friends took on the wild waters of the Bristol Channel to support the brain tumour community! In Sue’s own words; I decided to do the 2023 Porthcawl Christmas Morning Swim for brainstrust because my sons girlfriends sister had recently been diagnosed with a glioma and my son, his girlfriend Vicci, her sister Michelle and their mum Sue Jones had decided to do the swim. I have been swimming twice a week for the last year anyway and had been tempted to try cold water swimming particularly because of the publicised health benefits (I suffer with reduced mobility and po ..read more

We know how hard it is living with a meningioma, whether you’re a patient or a caregiver. We’d love to hear how you are getting on, what you’re struggling with. Conversation is one of life’s sweetest joys. Good conversation is not just a fringe benefit – it’s the means by which we stay sane, contented and connected in the midst of a storm. So come and chat – no agendas. Just pop in to say hello.   The post Meningioma Matters – Thurs April 25th 13.00 appeared first on Brainstrust, brain tumour charity ..read more

Living with a low grade glioma isn’t straightforward. Join us to hear how we all manage the uncertainty of living with a LGG diagnosis. The post Living with low grade glioma – Tues April 9th 16.00 appeared first on Brainstrust, brain tumour charity ..read more

Come along and have a virtual cuppa and a chat with others living with a high grade diagnosis, just like you. The post High Grade Group – Thurs April 4th 13.00 appeared first on Brainstrust, brain tumour charity ..read more

Take a couple of hours out of your day to discover how painting can be a wonderful mindful activity, allowing stresses and worries to fade into the background as you focus on the task at hand. Grab your art materials – pencils, paints or anything else – and join us to see how creativity can help you unwind when living with a brain tumour. The post April Art Time – Weds April 3rd 10.30am appeared first on Brainstrust, brain tumour charity ..read more

Come and join our monthly blether where you’ll have the opportunity to meet, chat and connect with others in our community. It’s for anyone affected by a brain tumour diagnosis, and just like our face-to-face meetups it is a warm, welcoming safe space for you. There’s no agenda, it’s just an opportunity to connect and chat with people who understand, so pop along and say hello! The post Tea and a wee blether – Tues April 2nd 12.00 appeared first on Brainstrust, brain tumour charity ..read more

Lazaros Sofikitis passed away in November 2023, just 8 months after he was diagnosed with a grade 4 Glioblastoma. Among many wonderful qualities, Lazaros was known for being a talented artist who had just commenced a full-time career in his creative passion when he was diagnosed with Glioblastoma aged 32. He was a great lover of nature, having studied forestry at Bangor University, which has been honoured by his resting place in the Brecon Beacons – reflecting his great love of the natural environment. Admirably, Lazaros’ loved ones raised over £21,000 for his treatment and for cancer researc ..read more

Flo Snook’s Painting Fundraiser for brainstrust Flo Snook is a highly talented Brighton based artist, who is renowned for her pictures of seascapes and coastal areas. Flo, who is living with a brain tumour diagnosis, is now offering one of her sought after paintings for auction to raise money for brainstrust.  In Flo’s own words, this is her story;        Many brain tumours aren’t cancer. I had to live with my meningioma for 7 years before it had grown big enough to get surgery, and all the stress and worry of living with it for so long took its toll. It wasn’t until ..read more

Back in 2019 I went to the doctors complaining of daily headaches. I was then prescribed high blood pressure tablets. My headaches did ease up a little. In June 2022 I got up at 3am to visit the bathroom, I felt really weird hot and cold and suffering abdominal pain. I then blacked out, fell and cut my head. Next day I went to A&E had stitches and they gave me an MRI scan, I was told a few hours later that I had a mass on my brain and they were worried about me. They then had to blue light me to Addenbrookes hospital as they were unsure how to deal with it at my local hospital. It turned ..read more