Paristeen is another morning routine
Aid4Disabled | life with multiple sclerosis
by Patrick Burke
3d ago
Peristeen is another morning routine. This was not a random decision, Peristeen is vital for bowel management and it is now an essential part of my life. I do have a good healthy relationship with my MS but living with it can be tricky and life never stays still. If you have never heard of […] The post Paristeen is another morning routine appeared first on Aid4Disabled ..read more
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Core muscles were weak so I used a wobble cushion
Aid4Disabled | life with multiple sclerosis
by Patrick Burke
1M ago
My core muscles were weak, its something I only noticed a few weeks ago, Every morning I was really struggling to get out of bed, something everyone takes for granted. For me it had suddenly become a worrying struggle. I’ve got enough problems already without worrying about a new one. Now was the obvious time […] The post Core muscles were weak so I used a wobble cushion appeared first on Aid4Disabled ..read more
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Variable height saddle stool to move around in the kitchen
Aid4Disabled | life with multiple sclerosis
by Patrick Burke
2M ago
I use a saddle stool to move around in the kitchen, prepare food and cook. It makes my life in the kitchen so much easier. I cannot walk or stand unaided because of multiple sclerosis. Now I can cook, a hobby that I enjoy. The stool is like a horse’s saddle on wheels. You could […] The post Variable height saddle stool to move around in the kitchen appeared first on Aid4Disabled ..read more
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Feet are made for standing
Aid4Disabled | life with multiple sclerosis
by Patrick Burke
2M ago
Feet are made for standing, its something people take for granted. OK I admit that walking, running and jumping also involve feet but standing on them is a basic function. “Learn to stand on your own two feet” and “Rushed off your feet” are two common phrases that involve being on your feet. My mobility […] The post Feet are made for standing appeared first on Aid4Disabled ..read more
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Poor balance and mobility makes walking difficult
Aid4Disabled | life with multiple sclerosis
by Patrick Burke
4M ago
I have poor balance and mobility so I use a mobility scooter. I remember in 2012 when medical retirement arrived I could easily lift my mobility scooter onto a train and I did not need a walking stick either. Those were carefree days, now long gone. Nobody told me how my life would change in […] The post Poor balance and mobility makes walking difficult appeared first on Aid4Disabled ..read more
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Only another invisible disability
Aid4Disabled | life with multiple sclerosis
by Patrick Burke
4M ago
An invisible disability is a problem for people living with advanced MS and you can easily have several. I could go so far as to call them as the lowest form of pond life. Something unexpected starts happening, initially its very slightly annoying and is quickly dismissed as a passing glitch. You hope the glitch […] The post Only another invisible disability appeared first on Aid4Disabled ..read more
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Do we really need a car in London?
Aid4Disabled | life with multiple sclerosis
by Patrick Burke
5M ago
Do we really need a car now we are living in London? No we don’t. Our car is a 14 year old 2 litre diesel VW Passat estate, far too big for us in London. Its not ULEZ compliant (Ultra Low Emission Zone), much too old. Its starting to cost more every time it has […] The post Do we really need a car in London? appeared first on Aid4Disabled ..read more
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A short visit to Woburn Centre Parcs
Aid4Disabled | life with multiple sclerosis
by Patrick Burke
5M ago
I last visited Centre Parcs when all 3 of our children were under 10, over thirty years ago. My diagnosis of multiple sclerosis was at least 10 years into the future. Now our two daughters are married, and each has a baby son and I am living with advanced multiple sclerosis. A visit to Centre […] The post A short visit to Woburn Centre Parcs appeared first on Aid4Disabled ..read more
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3 traumatic injuries to me
Aid4Disabled | life with multiple sclerosis
by Patrick Burke
6M ago
3 Traumatic injuries Multiple Sclerosis was the the one factor that joins these 3 traumatic injuries together. None of them could be described as fun but hey, I survived. Sepsis December 2013 I have used intermittent self-catheterisation to empty my bladder since 2005. this visit to hospital occurred in 2013. I had just received a new […] The post 3 traumatic injuries to me appeared first on Aid4Disabled ..read more
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My life with MS and invisible disabilities
Aid4Disabled | life with multiple sclerosis
by Patrick Burke
6M ago
My life with MS is turning into a balancing act. Not the high-wire type of balance, just making sure I don’t do two things simultaneously. My life is now just one job at a time, no more walking and talking. Invisible disabilities rule plus they control my life. Nobody knows I have invisible disabilities unless […] The post My life with MS and invisible disabilities appeared first on Aid4Disabled ..read more
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