Just 36 away from the full monty. I’ve written 75 column for the ole paper of news … 31 are on line here https://www.bishopsstortfordindependent.co.uk/search/?q=Parkinality I have joined the core group who are organising world Parkinson’s day for Parkinson’s UK. And I have mislaid my sense of humour. What on earth is that sentence doing ‘all making sense and the like’. Where has the wittiness gone, the analogies, the jokes, jests, and Jessie’s. Is it under the table, or on the floor, or has it rolled out of the door … Well I think an ode or several are called for, ‘cooee cum by’ : PD  We ..read more

So here I am a hybrid human … this is not how it should be. I am quite down atm. Infection in my bonce, emergency operation 6 weeks of antibiotics, which are interfering with my PD medication. But at least i have. Hope … Cope Wondering Waiting to see How you will cope  Without me Without me you struggle Without me you fear The future unknown You listen but don’t hear You look but don’t see You touch but don’t feel Without me  Life doesn’t feel real Taken for granted Overlooked ignored Without me  Life is a void You think I’ve gone Left for good I am still here Simply take a look ..read more

sorry with knobs on. You don’t even get a chocolate hob nob for being a long standing reader of la blog. I don’t even tell you when I’ve had the operation. Well I have and here are the newspaper columns to elaborate on the goings on … 62. Diagnosis is like a concrete boulder being slung into a peaceful stream   Reassuringly, I could still wiggle my nose and was still 5’8″ tall the day after being diagnosed with Parkinson’s Disease (PD).  My PD nurse was trying to be positive by saying that nothing changed when I was diagnosed.  After months of medical appointments, with what see ..read more

This is a special post for you patient Parkinality subscribers. I thought you should be the third to know (after the Surgeon and me)  So near … For me May 2022 turned into an A to Y of emotions (no zebras yet).   From agitated to anxious, hovering over hysterical, through to yikes.  I was finally given a date for my brain operation.  Deep Brain Stimulation (DBS); electrodes implanted into my brain during a seven hour operation.  It is not a cure and Parkinson’s Disease (PD) will continue to degenerate, but one of the things it should do is allow me to reduce my medicat ..read more

  Between you, me and the three people who have noticed…. I haven’t been to a support group, written a newspaper column, posted on Parkinality facebook or written a blog for differing lengths of time  Even I, self proclaimed positivity person, has been stretched, resulting in a finger stinging twang. Despite my best attempts at a jaunty smile and heel click, I can’t dress it up – I need that brain operation. I am still fortunate that I do get flashes of normality, very occasionally those flashes can last a couple of hours.  But generally walking, talking and dancing are disapp ..read more

Gone are the heady days of …. Oooh tennis is a cure … the halcyon days of karaoke gets me moving … the counting the distracting the running the whoopperdeedohdah another day another trick to beat this damn thing. Now I am worried … truly worried. I do leave the house, I do go out, I do ‘dance’, I do eat, I do drink, i do shop … i do laugh I do smile I do banter. But … would I chance going out alone??? Would I chance a lot of things? As I said in the title ‘bring on the drill matron’… Apologies … misery guts here will go and sit and eat crisps LES The post 137. Bring on the drill matron appeare ..read more

Futile = pointless Humour = well I’ve forgotten what that means Sorry really can’t think of anything positive to say. Actually that is a fib … probably about six (yes about SIX WHOLE SIXES) times a day I am tip topish. That is when each time equals about 10 minutes. Maybe a bit of foot buzz, or arm tremor, but almost totally tip topish … then I am invincible a million miles an hour woman … cleaning multi tasking the lot positive happy whooppeeeeddddoooodah But the rest of the time is crap, the other 2,456 times a day I am awful … the rest of the time I either have Dyskenesia, Bradykenesia, Fre ..read more

I have been away … not literally obvs …pandemic paranoia and all that. But I have been neglecting the ole blogerooni. I have been busy thinking … lots on my mind. Parkinson’s has been continuing ‘yawn’ … continuing to table* up my life and to be honest it is dull. Deterioration, dyskinesia, dystonia, Doris the duck … dull dull dull. Sorry sorry sorry. There is only a certain amount of deterioration one can write about and you read. So, in case you were concerned, I am still deteriorating. No new news, no nothing. Until now …. trumperty trumperty trump – thank you Nellie *to maintain this blogs ..read more

Dance and donate to Cure Parkinson’s with Souled Out Summer. On Saturday 27 March at 4.45pm The Intermission with Andy and Julie will be ‘on virtual tour’, opening Souled out Summer on Facebook live.   Tune in via the Facebook page at 4.45pm to hear a bit of banter and some Parkinality Poetry.  Then from 5pm the DJs from Souled Out Summer will be unleashed, spinning vintage vinyl, from the 50s, 60s, 70s. No need to book a taxi or babysitter – this is a virtual event and a fundraiser for Cure Parkinson’s.  So why don’t you click the just giving link and donate whilst you dance in ..read more

Pull up a stool (not that kind, that kind) Why did I ignore my body.? Why did I ignore the whispering? Why do flamingos bend their knees round the wrong way? Welcome to the new zone … The Crohns zone. It has demanded it’s own area, it can no longer be ignored. My body started proding me properly in February 2019. It had been whispering for a while. Silent farts, noisey wind reflux, bloating, side pain, weight, loss and to be Frank I didn’t actually realise how constipated I was until I wasn’t. It was in February 2019 when on holiday that I suddenly realised I hadn’t stooled for around two week ..read more