Preparing for trips to A&E
Social Media, IBD and me
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1y ago
Why I don’t want to be admitted to the hospital I don’t know about you and your experiences with healthcare, but my experience has mainly been negative. I don’t want to go into all of the details here, but I have written about some of the failings I’ve experienced in a blog called HealthCAREanxiety, previously. Because of my experiences, I have a lot of mistrust when it comes to the healthcare system. This mistrust has been further solidified by other people’s experiences. I run the IBDSuperHeroesFacebook group and am active in the online IBD and ostomy community on other platforms too. I real ..read more
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Research opportunity | Well-being, Gut Health & Science: Patient-reported outcomes in Inflammatory Bowel Disease
Social Media, IBD and me
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1y ago
I am thrilled to support Gwo-tzer and the Team at The University of Edinburgh in the latest Edinburgh IBD Sciencestudy. Overall well-being is an important goal in treating and managing Inflammatory Bowel Disease (IBD). A high proportion of people with IBD feel that their well-being continues to be affected, even when bowel symptoms have improved. That’s why this latest study (a 10-minute survey) is being carried out. Previous studies highlighted that there’s no overall benchmark to measure the burden of IBD on well-being. This study hopes to gather information from as many individuals as possi ..read more
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What to put in an emergency ostomy bag change kit
Social Media, IBD and me
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1y ago
I share my latest experience of dealing with an ostomy bag leak away from home, and talk about what I think needs to be in an emergency stoma bag change kit, and why. Let me know if you add anything extra - What to put in an emergency ostomy bag change kit ..read more
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Wildlife gardening | liberating logs
Social Media, IBD and me
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1y ago
Talking about the reasons I wanted a log pile, and how I set about making one - Wildlife gardening | liberating logs ..read more
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Finding MY healthy lifestyle with IBD and an ostomy
Social Media, IBD and me
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1y ago
Finding my version of healthy with IBD and a stoma has been a long and drawn-out process. What is a healthy lifestyle? We all know that sleep, food, water, and exercise are necessary to live the healthiest lifestyle possible. These days, there's more of an understanding that psychological well-being is important too. But, there's no one size fits all solution. People have to form healthy habits around their lifestyle; family commitments, work, and health considerations. In this post, I talk about finding my healthy lifestyle ..read more
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Explaining IBD to family and friends
Social Media, IBD and me
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1y ago
I'm sure most of us have felt the frustration (and annoyance) of family and friends just not getting it when it comes to our inflammatory bowel disease (IBD). Of course, I realise it can be difficult to understand. After all, it can also be difficult to explain! In this post, I share a general framework for explaining IBD to people. Photo commissioned by Hollister Incorporated ..read more
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Products to support ostomates during day-to-day life
Social Media, IBD and me
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1y ago
From bag covers and underwear to stoma guards and seatbelt protectors! Check out the Products to support ostomates during day-to-day life blog on the Fittleworth website!  ..read more
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Leftover pumpkin uses in the garden and beyond
Social Media, IBD and me
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1y ago
As Halloween draws closer, I wanted to write a quick post about leftover pumpkins and their better uses. For years, I’ve read that wildlife will benefit from leftover pumpkin, but it turns out that not all of our wildlife benefit from them ..read more
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My relationship with IBD and sleep
Social Media, IBD and me
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1y ago
I recently wrote a post about the importance of sleep hygiene for people with IBD. I've been on a mission to achieve this seemingly ever-elusive sleep for years. In this post, I talk about why that's been difficult and what changes I've made to improve it - My relationship with IBD and sleep.     ..read more
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Intestinal blockages with a stoma
Social Media, IBD and me
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1y ago
Intestinal blockages, also called bowel obstructions, are a fairly common complication ostomates face at some point or another. So, I wanted to talk a little bit about why they happen and what you should do if and when they happen. Check out the blog, Intestinal blockages with a stoma ..read more
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