Guest post: Advocating for Your Health Post Brain Injury: A Mini-Guide
No memory of the day that changed my life
by Michelle #jumbledbrain
10M ago
Guest writer, Julie Morris has kindly compiled 7 of her top tips on how to help you advocate for yourself with your healthcare providers. It can be overwhelming for patients at the best of times, but if like me you struggle with your processing speed and memory these crucial appointments can be even more challenging. But Julie has some good ways to deal with some of those issues and has included lots of useful links that explain each in detail. Julie Morris is a life and career coach. She thrives on helping others live their best lives. It’s easy for her to relate to clients who feel run o ..read more
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7 ways to support brain injury survivors with chronic migraines
No memory of the day that changed my life
by Michelle #jumbledbrain
1y ago
Today we have a guest post which is written for those who are looking for ideas on how they can show their support to someone who is living with a brain injury. Julie Morris is a life and career coach. She thrives on helping others live their best lives. It’s easy for her to relate to clients who feel run over by life because she’s been there. Today, she is fulfilled by helping busy professionals like her past self get the clarity they need in order to live inspired lives that fill more than just their bank accounts. To find out more about Julie go check out her website juliemorris.or ..read more
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Terms that might accidently offend those with a brain injury
No memory of the day that changed my life
by Michelle #jumbledbrain
1y ago
Living in the 21st century means we are all slowly becoming more aware of we are all different and that should be celebrated. Along with that, we are more regularly being reminded not to just assume things about others and to be aware that we can accidently offend people if we do. For example, I live with my partner. That term says nothing about the gender of the person I share a home with, therefore if that was the only information you had you wouldn’t be able to tell what my sexuality is. Many of you who have been reading my blogs for a while will know that his name is James and so with t ..read more
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How the pandemic affected brain injury survivors
No memory of the day that changed my life
by Michelle #jumbledbrain
2y ago
This article was oringally posted on  the Brain Injury Touch points website, and there you can see a video of me reading it out >> watch video The coronavirus pandemic has affected us all and, in many cases, the changes to our lifestyles have taken a while to get used to. Yes, we were pretty good at being “stay at home heroes” when we were first asked to (especially since it was all pretty scary and it was the best way to stay safe) but as the lockdown in the UK is easing, we are having to adjust all over again. Being able to get out and escape the cabin fever is a welcome cha ..read more
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Why following instructions with a brain injury can be challenging
No memory of the day that changed my life
by Michelle #jumbledbrain
2y ago
Having the discipline to follow instructions properly in order to obtain the expected result is a skill we learn as children. We get plenty of practise of it at school where we pick up on the rules and what is expected of us, plus how to apply ourselves to be able to succeed academically. I was a very well behaved pupil who was usually a top student in my classes, therefore it would be fair to say that I had mastered the ability to follow instructions. However, since my brain injury it’s a different story. Since running a website and a fairly consistent presence on social media I have look ..read more
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Wego award win: Plan to promote progress for brain injury survivors.
No memory of the day that changed my life
by Michelle #jumbledbrain
2y ago
First of all, thanks to everyone who showed their support of me in 10th Wego health awards. You nominated and endorsed me for a whole host of categories. I’m humbled and touched by this, and it lead to me winning the “Best in show: Twitter award”.  These awards aren’t just a popularity contest. In each category the 3 nominees with the highest endorsement numbers automatically become finalists, and 3 finalists are chosen by Wego’s  judging panellists. I think this strikes the balance between listening to what the patient community are saying, and recognising work of those who are ..read more
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How I explain what living with a brain injury feels like
No memory of the day that changed my life
by Michelle #jumbledbrain
2y ago
There are so many names for a brain injury; TBI, stroke, brain damage, brain tumour, concussion, PCS… and yet actually describing what it’s like to live with THE most important organ in your body not working the way it used to, is exceptionally difficult. As most of the people we are conversing with haven’t had the bad fortune to experience a brain injury themselves, it’s hard for them to put into context what we are trying to outline. So often I hear from other survivors who feel totally misunderstood by their family and friends who unintentionally continue to diminish what they are having ..read more
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How ego makes accepting support after a brain injury challenging
No memory of the day that changed my life
by Michelle #jumbledbrain
2y ago
There’s so many things about a brain injury which are difficult to deal with, but probably the most fundamental is accepting that you can’t do things as easily as you did before. We often can’t even recognise what we’re struggling with to begin with until we look back at an event with hindsight.  I’ve mentioned before in Lack of insight when brain injury strikes how this can affect me in strange ways, and quite frankly, can leave me feeling a little ashamed at my abnormal behaviour. Maybe that’s why I sometimes find it hard to accept that I need help with certain things because i ..read more
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Why you’re wrong if you brand a brain injury survivor as toxic
No memory of the day that changed my life
by Michelle #jumbledbrain
2y ago
Social media is full of ideas and there are a lot of people who try to remind others to look after themselves. That is an important message as we can’t pour from an empty cup, i.e. if we have used up all our energy and not replenished it we have nothing else to give. I think we all can appreciate this sentiment. But what I get more concerned about is when I see people throw around words which have become the latest trend to use that encourage people to brand others as something rather than try to understand them. The word I’m particularly concerned about is toxic. How easy it is for the bra ..read more
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When raising awareness becomes TBI victim blaming
No memory of the day that changed my life
by Michelle #jumbledbrain
2y ago
There is still a lot of misunderstanding about traumatic brain injury and the long term effects. One area which is starting to be better appreciated is concussions in sports. In a number of sports it has become protocol to take a player off the field the moment a concussion is suspected to minimise the damage and maximise recovery. This is an important culture charge and I hope that improvements in attitudes and treatments continues in this vain. Thankfully, I have yet to see people blame a sports person for a TBI they sustained whilst competing in a sport. It seems to be accepted, and righ ..read more
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