Reddit - Epilepsy
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The mission of Reddit Epilepsy is to provide a community forum for people that are effected by epilepsy. To share ideas about the direction of research and available treatment regarding epilepsy, seizure disorders and SUDEP, and overcome the challenges created by epilepsy through discussion and support.
Reddit - Epilepsy
2d ago
I started saying Sh‘ma Israel (short Jewish prayer you say before going to sleep) and then realized I have no idea what are the next words. My mind just had a weird block. I tried to continue automatically jumped to another prayer that uses the same sentence. You are not supposed to stop in the middle but I didn’t even say anything that made sense so I tried to start over a bunch of times and just couldn’t get it right. I’ve been saying this prayer daily ever since I remember myself. It’s not something you forget - even when I can’t focus, I mumble it quickly and perfectly. That’s a very scar ..read more
Reddit - Epilepsy
2d ago
diagnosed with TLE in 2019 and i’ve weaned myself off of keppra after taking it for a little over a year because i couldn’t handle the way my body image was affected by the weight gain (that my doctor never told me about, who also knows i have a history with eating disorders) and it was making my already declining mental health that much worse.
had a breakthrough seizure a few weeks ago at my boyfriend’s house just a little while ago (in front of all of his friends to my dismay) and since then I’ve been thinking about talking to my doctor about topamax since i’ve heard one of the side effects ..read more
Reddit - Epilepsy
2d ago
After so long looking for work, I finally have an interview!
It's not hardcore engineering but I'll be able to draw again. I meet all the requirements and then some.
submitted by /u/Doc-Brown1911
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Reddit - Epilepsy
2d ago
My pharmacist filled my prescription for 182 tablets of Lamotrigine with 42 tablets, and my neurologist had no idea so she ignored me when I asked for a refill last week. A nurse got back to me today to finally ask if I had received the right amount, but at this point I've already missed two doses and will likely miss two more waiting for the prescription to be filled.
I'm especially frustrated because I've been titrating onto Lamotrigine for four weeks now, and I may have lost all that progress, which would mean four more weeks on Keppra, which is making me angry and suicidal.
I was also fir ..read more
Reddit - Epilepsy
2d ago
I know it's mostly coping. I don't know anyone I could talk to about it. I know I feel this way because my seizures are well controlled and I'm not suffering too much from it. I imagine if my case was bad I wouldn't find it special. It's just a quirk in my brain.
submitted by /u/madaboutlit
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Reddit - Epilepsy
2d ago
Looking for stories or advice.
My husband has 10-20 tonic clonic seizures a day and is on the highest dosage of Keppra. His doctor is recommending him to go to the ER for an evaluation due to how long it will take for him to be seen by the neurologist. He is on a waitlist to be CALLED by the neurologist to make an appointment and this will take at least a month according to the customer service reps.
Has anyone done this before? Any advice or stories is super appreciated. Very nervous for my husband and want some idea of what we will be looking at.
submitted by /u/Resident-Sympathy-82
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Reddit - Epilepsy
2d ago
Around August of last year, I lost my ability to taste things completely, even strong things like onions and hot sauce. I started Keppra about a month prior to this. I also lost my ability to smell things, and my sense of smell slowly coming back but there are still a lot of things I can't smell. This was never a problem before for me so I think it could be medication related, and my neurologist has no appointments available for a while so I can't ask him about this yet. It's definitely nowhere near my worst side effect, but it's just annoying to not be able to taste anything I'm eating.
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Reddit - Epilepsy
2d ago
I had my first seizure almost 3 years ago and got in a bad car accident, I’m happy no one else was hurt but I was badly injured. I was put on Vimpat and I thought it was working great until this morning. I was running on the treadmill and started to hear ringing and voices. I realized what was about to happen and was able to crawl to the floor and find my way to the couch. I woke up a few mins later very confused and sweaty. I’m just scared and discouraged, I thought the seizures were over. The PTSD from the accident might be fueling a lot of the fear. Thank you so much!
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Reddit - Epilepsy
2d ago
Hi guys,
I have a question and wanted to see if anyone here has any experience with taking Depakote ER. I had my first seizure at 16. I'm now 28 and had about five or six seizures since then. They all happened during sleep and I never had any issues while awake, like absence seizures or sensitivity to flashing lights. Even though my epilepsy seems to be pretty tame, I take 1000mg of Depakote daily. I never had any serious side effect from it, except that It increases my appetite TREMENDOUSLY. I don't know how much weight I gained from it, but it seems nigh impossible to lose it while having t ..read more
Reddit - Epilepsy
2d ago
I have absence seizures and I haven’t been taking my ethosuximide lately, and whenever I don’t take it I get this feeling that I’m moving really fast all of a sudden when I turn my head and things seem spirally.
I’ve been having these moments while I’m awake where I slip into this state of mind where my thoughts are unorganized and I come to these weird conclusions about things. It feels VERY similar to how I am before I sleep. Today I was thinking about politics on my way back to my dorm, and then as I approached the door I thought “I need to open this door so I can give my speech”. There’s ..read more