2022 ANNUAL SCIENTIFIC SYMPOSIUM Abstract Booklet
Beyond Vitiligo
by Digital
2M ago
MARCH 2022 2022 ANNUAL SCIENTIFIC SYMPOSIUM Abstract Booklet BOSTON, MA USA Thursday, March 24, 2022   CO-CHAIRS Samia Esmat, MD; Davinder Parsad, MD   INVITED ABSTRACTS   No. 89 Mental Health and Psychosocial Burden Among Patients Living With Vitiligo: Findings From the Global VALIANT Study   No. 94 Vitiligo Adverse Events and Associated Medications as Reported in the Us Food and Drug Administration’s Adverse Event Reporting System From 2016 to 2021   No. 99 Differential Diagnosis of Hypopigmentation Disorders in Children: A Retrospective Study of 1,785 Children   ..read more
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Exploring the natural and treatment history of vitiligo: perceptions of patients and healthcare professionals from the global VALIANT study
Beyond Vitiligo
by Digital
2M ago
Br J Dermatol 2023; 189:569–577 https://doi.org/10.1093/bjd/ljad245 Advance access publication date: 26 July 2023                                                                                               Outcomes and Qualitative Research   Iltefat H. Hamzavi,1 Kristen Bibeau,2 Pearl Grimes,3 John E. Harris,4 Nanja van Geel,5 Davinder Parsad,6 Mukta ..read more
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South African Vitiligo Patient Experience 
Beyond Vitiligo
by Digital
2M ago
Introduction   This report, titled “South African Vitiligo Patient Experience,” investigates what it is like for people with vitiligo – how they first notice it, how much it affects their lives, how they get help, and what could be done to improve things. Vitiligo is not just a skin problem; it can impact a person’s life in many ways, both seen and unseen. This report aims to explore these impacts and suggest ways to support those with vitiligo better. The report aims to raise awareness about vitiligo and improve the lives of those affected by it. We will explore the experiences of S ..read more
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“My mother thought it was an allergy”
Beyond Vitiligo
by Thando Ngwenya
2M ago
I started to have vitiligo in 2009, and my mother thought it was an allergy. She took me to all different kinds of doctors because she was scared. Years later, I started to research my skin, and I found out that it is vitiligo. I was in high school at the time, and I was scared people were going to laugh at me or maybe discriminate against me. I planned on being a loner until I watched videos of people sharing their vitiligo stories. Then I started to accept myself for the way that I am. I started appreciating myself. I managed to socialize and saw that some people really loved my skin; they d ..read more
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Henry Ford Health Publication List – July 2023
Beyond Vitiligo
by Digital
2M ago
This bibliography aims to recognize the scholarly activity and provide ease of access to journal articles, meeting abstracts, book chapters, books and other works published by Henry Ford Health personnel. Searches were conducted in PubMed, Embase, and Web of Science during the month, and then imported into EndNote for formatting. There are 118 unique citations listed this month, including 106 articles and 12 conference abstracts. Articles are listed first, followed by conference abstracts. Because of various limitations, this does not represent an exhaustive list of all published works by Henr ..read more
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Prince Jackson says his father Michael Jackson felt insecure about his vitiligo
Beyond Vitiligo
by Thando Ngwenya
2M ago
CNN —  Michael Jackson was very much concerned about his skin, according to his oldest son Prince Jackson. The 26-year-old was a recent guest on the podcast “Hotboxin’ with Mike Tyson,” where he talked about his late dad. Tyson mentioned that people thought the elder Jackson, who was African American, “was changing his skin because he wanted to be white, he was changing it because he wanted to glow. He wanted to be a light, he wanted to shine.” “He told you that, did he tell you that?” the younger Jackson asked. Tyson nodded and responded, “I remember right in the year, he ..read more
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Mental Health and Psychosocial Quality-of-Life Burden Among Patients With Vitiligo Findings From the Global VALIANT Study
Beyond Vitiligo
by Digital
2M ago
Research JAMA Dermatology | Brief Report Mental Health and Psychosocial Quality-of-Life Burden Among Patients With Vitiligo Findings From the Global VALIANT Study Kristen Bibeau, PhD, MSPH; Khaled Ezzedine, MD, PhD; John E. Harris, MD, PhD; Nanja van Geel, MD, PhD; Pearl Grimes, MD; Davinder Parsad, MD; Mukta Tulpule, MBBS; Jackie Gardner, BA; Yan Valle, MSc, MBA; Gaone Tlhong Matewa, BBA; Christine LaFiura, BA; Anouk Lindley, MBA; Haobo Ren, PhD; Iltefat H. Hamzavi, MD     IMPORTANCE Patients with vitiligo often have impaired quality of life (QOL) and experience substantial psychoso ..read more
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“I had Vitiligo some years ago and my self esteem got affected”
Beyond Vitiligo
by Thando Ngwenya
2M ago
I had Vitiligo some years ago, and my self-esteem was affected. Young kids were afraid to be next to me, and I remember the other one saying, “Sorry, I see you got burned.”. I am cured, meaning that for those who need help, I am here.   The post “I had Vitiligo some years ago and my self esteem got affected” appeared first on Beyond Vitiligo South Africa ..read more
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Hope for the future a World Vitiligo Day Special by Nobuntu ‘Qhawekazi’ Morake
Beyond Vitiligo
by Alvintaffy
4y ago
Children, research and hope for the future Representation is very important when it comes to raising awareness for conditions such as Vitiligo, it is very essential to society and those living with Vitiligo. It is powerful to those living with Vitiligo because it gives them sense of belonging, it shows that society has come to […] The post Hope for the future a World Vitiligo Day Special by Nobuntu ‘Qhawekazi’ Morake appeared first on ..read more
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Beyond Vitiligo | The Twitter Thread
Beyond Vitiligo
by Alvintaffy
4y ago
Beyond Vitiligo | The Twitter Thread So this past week #finepeoplefromSouthAfrica was trending on Twitter and as vitiligo change agents we decided to jump onto the hashtag. @Gaonetlhong requested our favorite Twitter doctor @sindivanzyl to do a  twitter thread of which she obliged and asked her friend @DrOlufunmilayo For those who didn’t get a chance […] The post Beyond Vitiligo | The Twitter Thread appeared first on ..read more
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