Hello from these two weirdos! Its been a while, so here are some highlights (and not-highlights) from our past year. Last winter we spent some time in Scottsdale, AZ. It was the first time I had flown since 2020, and it brought some real anxiety as we planned/prepped for the trip. My health is less robust since the last time we flew, and the prep brought up some grief related to that. Only mentioning that here to say that it isn’t easy breezy for me to travel these days. It’s multi-faceted. Thankfully we had a lovely time in AZ! Although – I did come home with a cold and required antibiotics ..read more

The annual CF Foundation fundraiser that we normally attend is coming up in 5 days (it’s virtual this year). I wanted to mention it because some of you faithfully participate every year. You even covered for me last year, when I dropped the ball entirely. As you may have seen in my blog post before this one (end of 2020), the research done by the CF Foundation is life-changing work. This has been dramatically true in recent history with the work that led up to Trikafta. It’s the reason that we give and ask you to give; thank you in advance for being so generous! Here is the link to donate or ..read more

Hi! It’s me! We’re nearing the end of 2020 and like many of you, I’m trying to figure out a good way to give you an update on our lives. So, this got long – like, obnoxiously long. FYI this post is skewed toward health updates related to my Cystic Fibrosis, since I am asked frequently about that these days. As challenging as this year has been for all of us, 2019 was more difficult for me. I was sick early in the spring and could not gain back the ground I lost. We decided to take a spring break trip anyway and went for a relaxing trip to the FL Keys and Miami. I made a little video from that ..read more

I’ve been done with all of my antibiotics now for 5 days, so why not do a little update? In general it’s hard for me to know how much to talk about when it comes to Cystic Fibrosis because really it’s an every day thing. But it isn’t every THING every day. I don’t want people to only hear from me when I’m in the trenches with a lung infection but that seems to be where we are with this blog for now. So, thank you for allowing imperfect glimpses, and thank you for caring and praying for me (us) so thoughtfully when we need it most. Coming off these intense meds is always a physical adjustment ..read more

Hi everyone, We’ve changed our plans for the Great Strides walk this coming weekend. We are not going to physically have a team there this year. I’ve been sick/on oral antibiotics for a couple of weeks and we just haven’t had the “oomph” to honestly put any time or effort into the walk. Thank you for caring about this cause, and of course donations are still appreciated! Here is the link to my page ..read more

Hi everybody. I’m fresh off (okay almost a month off) a sunny trip in the Florida Keys/Miami, swinging around a pole to remind you of the Cystic Fibrosis Foundation’s Great Strides walk coming up. I’m pretty late posting about it here (maybe you saw it on Facebook already?) but wanted to cover all the bases. I appreciate the generosity of so many of you who give to this cause year after year. The research the CFF funds has brought new treatments to our lives over the years, and the next one in the pipeline has our doctor very excited. I hope you’re not offended with my tardiness in getting th ..read more