M3 Global Research is looking to hear from patient advocacy group members, based in the USA, to provide their insight on the treatment journey of patients living with bronchiectasis, or looking after someone who has bronchiectasis, to take part in a paid ($119.00) 60-minute telephone interview. Here is the link to this survey opportunity if you would like to participate,,https://,,hub.m3globalresearch.com/in/, or additionally please reach out to Petra Fueller PFueller@M3Global.com ..read more

The Mental Health Advisory Committee of the Cystic Fibrosis Foundation (CFF) is seeking participation from individuals with cystic fibrosis, 18 years and older, who would like to provide input on mental health concerns, beyond depression and generalized anxiety, that may impact daily functioning.  In the first part of the study, we will be collecting information via interview on your experiences of mental health concerns in adults with CF, using video conferencing (zoom).  The total time commitment for the interview will be about one hour. Participants who complete the interview will ..read more

Two incredible students living with CF have been selected as recipients of AbbVie’s CF Scholarship Thriving Student Awards. Grace and Jacob (pictured below) were each awarded $25,000 in their pursuit of higher education. Grace, the 2023 Thriving Undergraduate Student, is a talented artist and freshman at Grace College where she is studying graphic design. Jacob, the Thriving Graduate Student, is a medical student at the University of California San Francisco School of Medicine. Although pursuing two very different career paths, both students have shown immense strength, resilience, and determ ..read more

To honor the life of Isa Stenzel Byrnes & Ana Stenzel, please watch The Power of Two documentary for free. Since Isabel Stenzel Byrnes’s passing in July, hundreds of her friends and fans have reached out to her family about how much Isa meant to them. Thank you so much. In gratitude, through October 15, her family is making “The Power of Two,” the award-winning documentary film featuring Isa and her twin sister Ana, free to stream on Vimeo. Just go to https://vimeo.com/ondemand/thepoweroftwo and enter the code "ISA2023 ..read more

Online and mobile voting is open to the public now through September 27 to help determine this year's two Thriving Students 40 students living with cystic fibrosis (CF) received $3,000 scholarships earlier this year based on their academic excellence, creativity, and community involvement Two deserving students will be awarded scholarships totaling $25,000 each NORTH CHICAGO, Ill., Sept. 13, 2023 /PRNewswire/ -- AbbVie today announced the start of its two-week public voting period for the 2023 Thriving Undergraduate and Graduate Scholarships. Following this voting period, scholarships totali ..read more

Kathy Russell April 17, 1944 - May 13, 2023 It is with great sadness that we share the passing of Kathy Russell at age 79. Kathy was so many things, aside from being a founder of USACFA and CF Roundtable. She was a loyal friend, a licensed practical nurse, exceptional cook, canner of her own grown tomatoes and vegetables. She had a clever sense of humor and could make a statue chuckle. She imbued her empathy and caring to share her stories of her own CF experience on the pages of CF Roundtable, but also edited other people’s submissions so that their voices shone through. Kathy was also part ..read more

Anagram Therapeutics Launches to Advance Orally Delivered Enzymes to Treat Malabsorption Syndromes and Nutrient Metabolism Disorders Dr. Preston Campbell, former President & CEO, CF Foundation, joins Anagram Board of Directors FRAMINGHAM, Mass., April 4, 2023 — Anagram Therapeutics Inc., a clinical-stage biopharmaceutical company dedicated to improving the lives of people with cystic fibrosis (CF) and other rare diseases, today announced its launch. The company, formerly Synspira Therapeutics, will focus on its core enzyme expertise and accelerate the development of ANG003 (formerly SNSP00 ..read more

Online and mobile voting is open to the public now through September 28 to help determine this year's two Thriving Scholars Forty students living with cystic fibrosis (CF) are in the running for the two $25,000 awards based on their academic excellence, creativity, and community involvement/extracurricular activities This year’s scholarship program marks 30 years of AbbVie’s commitment to students with CF pursuing higher education NORTH CHICAGO, Ill., Sept. 14, 2022 – AbbVie today announced the start of its two-week public voting period for the 2022 Thriving Undergraduate and Graduate Schola ..read more

>> The night of my going away party, for my upcoming move to Colorado which I had been dreaming about since my early teens, I became extremely out of breath. No amount of Duoneb, which is a super form of albuterol, was doing a damn thing. It was time to go to sleep, but I just couldn’t catch my breath. I was worried and anxious that this was happening. Luckily, I had a portable oxygen concentrator, but even that wasn’t helping much. I had one of my friends wake up my sister, Laima. We immediately planned for me to go to the ER in Boston. When I got to the hospital, I was put on a high am ..read more

By Sonya Ostensen Like CF, life can be complicated and messy. While my squirrel mind was going in a million directions of commitments and to do’s, my body felt like a cement block at the bottom of a lake. During the last 4 months, my energy exertion has been at maximum capacity, and thus I have said yes to most everything while neglecting the delicate balance of self-care, which finally caught up to my cellular health. As I laid on the couch unable and unmotivated to move, memories of my sickest days and nights came flooding in[MT1] [MT2] . That’s when it hit me; I have once again forgotten t ..read more