Does unrelated illness bring out CP issues? My son has the stomach bug- it quickly resolved after vomiting on/off for 12 hours but now he can barely walk because his foot and legs hurt so bad. I had to carry him, do massage, and give him an epsom salt bath. Just wondering if this is common because I think this is the 2nd time something GI has caused increased spasticity? submitted by /u/Ok-Pea2708 [visit reddit] [comments ..read more

I wonder if anyone's been diagnosed with fat pad atrophy as an explanation for foot pain? It's so far the only thing I've found that matches my "bruised and black and blue" widespread sensation of the soles of my feet when standing more than like 2 minutes or walking more than like 30 mins in a day. I have a podiatrist appointment in a month but so far all the doctors have just been convinced it's a bone thing...but to me, it feels 100% like soft tissue pain. All the sources say this is more common in people with pes cavus (which a lot of people with CP have), common in people with orthopedic ..read more

Hey everyone! My toddler has CP and a range of other neurological and muscular issues and when stressed (tired, bored, pain, etc.) they will bite their lip. The lip is now fat and has split open. Because of issues with the respiratory system and handling secretions we’ve been told by PICU doctors that we wouldn’t be able to use a mouth guard for fear of aspiration. I was wondering if anyone had any tricks other than being on constant, high alert to pull the lip out when my child bites? The biting happens overnight as well when no one is in there to pull the lip out until after we’ve woken up ..read more

So my 4 month old is going for a MRI , he was seen by a physiatry doctor for his leg stiffness, arms staying locked to his chest and him not opening his hands they are always in a fist so he said maybe something didn’t develop or form properly in his brain, on his notes he put this “hypertonic posturing of extremities with possible spasticity” Should I be worried? I had concerns about CP and really have a feeling that’s what it is but want to get this MRI done first to see if anything comes up . He goes on Monday May 13th for MRI . He also has torticollis on his left side and his right side i ..read more

Bit of a weird question but do you any of you hold your breath when you're exerting yourself or doing exercises, it's something that my physiotherapist has noticed that I do when I'm doing exercises, she has to remind me to breathe which is kinda frustrating and she said the other day that it can make my spasticity harder. I don't know or think that this is a CP thing or just a me thing, I think it's probably just a me thing but Just wondered if anyone else noticed that they did the same submitted by /u/boredofwheelchair [visit reddit] [comments ..read more

I was getting bullied and the bullies said that I could not defend myself so they thought they could take advantage of me. In what ways can I with right sided hemiplegia and Cerebral Palsy defend myself? submitted by /u/LeftyRex22 [visit reddit] [comments ..read more

Hello Has anyone here went through a DSA or Disabled Student allowance needs assessment for university with cerebral palsy What kind of equipment and software did you get? submitted by /u/Reasonable-Quote2960 [visit reddit] [comments ..read more

I (F,24) live in the U.S (in Ohio) and I had went to my Primary Care doctor brought up an issue that I was experiencing bladder issues which was bladder Incontinence. She prescribed me oxybutynin. And said that it is caused by my Cerebral Palsy. I then brought up my hands shaking and a couple of other things. However, the appointment even tho it was scheduled for only 15 minutes, I feel like it went kind of fast. I wanted to bring up another thing which was the possibility of a mobility aid. When it’s cold weather (raining & snowing), when I enter cold buildings, and when I walk long dist ..read more

Hey guys 27 yo male with spastic diplegia here, I have been in a depressed state since my Opa had died when i was 9 years old. Looking bad through the ballooning of my weight my body was quite visibly skinny, and i'm on the shorter side but mass wise i'm heavy this seems to be in line with what i've researched. About 3 months in on depression meds (finally been asking for years) and on vacation to my aunt and uncles, I noticed my body feeling lighter and my fat started to recede. I did some research and apparently depression and stress can cause hormones to stop being produced and imbalances ..read more

My son is 10 years old and level 4-5 CP He’s been diagnosed with Autism 2 years ago (I was also diagnosed at 7 with PDDNOS). We have recently started him on Baclofen and while it’s helped a little with his pain and spasms, it’s definitely impacted his mood, and dysregulation (as well as thirst and bowels). While I understand that there can be a crossover with CP and ASD, just wondering if others have a dual diagnosis and can tell me a little more about what symptoms they feel are linked to CP vs Autism, and if medication has worsened any of the symptoms? Just trying to see how best we can sup ..read more