Australian Cerebral Palsy Register announces decline in cerebral palsy across Australia
Cerebral Palsy Alliance | News
by tbenjamin
3y ago
Sydney, Australia – 4th December 2018 – Last night at a reception at Admiralty House, hosted by His Excellency General the Honourable Sir Peter Cosgrove AK MC (Retd) and Her Excellency Lady Cosgrove the key findings from the 2018 Australian Cerebral Palsy Register (ACPR) were released.  Among many notable findings, the report has shown the emerging trend of a decline in cerebral palsy (CP) across Australia over the last 10 years from around 1 in 500 children (2.0 per 1000 live births) to 1 in 700 children (1.4 per 1000 live births). In addition, findings show that the severity of cerebral ..read more
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YOUR INVITATION
Cerebral Palsy Alliance | News
by Abigail
3y ago
Please join us   Rob White, Chief Executive Officer, Cerebral Palsy Alliance, invites you to hear the latest updates from world leaders in cerebral palsy research, with a focus on neuroplasticity. We will also be launching Australia’s first early diagnostic clinic – a breakthrough in specialised multidisciplinary care in high-risk babies.   Event details Tuesday 13 March 2018 5.30pm for 6.00pm Clayton Utz Level 15, 1 Bligh Street, Sydney NSW 2000   Proceedings 5.30pm-6pm                  &n ..read more
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A randomized trial of the Program for the Education and Enrichment of Relational Skills (PEERS ®) for teenagers with acquired brain injury or cerebral palsy
Cerebral Palsy Alliance | News
by Abigail
3y ago
A randomized trial of the Program for the Education and Enrichment of Relational Skills (PEERS ®) for teenagers with acquired brain injury or cerebral palsy.   For teenagers with acquired brain injuries (ABI) or cerebral palsy (CP), making and maintaining social networks can be a challenge. This study aims to determine if the PEERS® program can improve their social skills and their ability to make and maintain friendships.   Who can participate? Teens who: Are 11 to 17 years of age and attend mainstream high school Have a diagnosis of acquired brain injury (at least 12 months post A ..read more
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Seeking participants for brain training intervention
Cerebral Palsy Alliance | News
by Abigail
3y ago
If your baby is less than 6 months old and has cerebral palsy or is at-risk of cerebral palsy, they could be eligible to participate in a new brain training intervention for infants called “GAME”.  We are trying to find out whether the intervention improves movement, neuroplasticity and intelligence. This early brain training intervention (“GAME” Goals Activity Motor Enrichment) is based on the key neuroscience principles of activity dependent plasticity and enriched environments and on successful training interventions known to work in older children with cerebral palsy and adults post-s ..read more
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Researchers seeking participants for parechovirus study
Cerebral Palsy Alliance | News
by Guillaume
3y ago
We are calling for participants aged 3 – 3 ½ years or more who had parechovirus infection in the first 6 months of life resulting in a hospital admission. The long-term effects of early HPeV infection are poorly understood. New information from our research and others has identified that some infants have developmental issues and cerebral palsy (CP) after early life parechovirus infection. We are undertaking a follow-up study to understand more about the role of HPeV as a cause of CP.  For more information about joining this study visit our website’s Taking Part in A Study page ..read more
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Australia first: cord blood research may unlock future treatments for cerebral palsy
Cerebral Palsy Alliance | News
by Renee
3y ago
Australia’s first clinical trial of stem cell infusion from cord blood as a possible treatment for cerebral palsy (CP) is commencing in Melbourne. The safety trial, led by the Murdoch Childrens Research Institute (MCRI), will recruit patients nationally and take place at The Royal Children’s Hospital. Expected to take two years, the study is being funded by the Cerebral Palsy Alliance Research Foundation and Cell Care, Australia’s largest private cord blood bank. It is the first step in a promising process that eventually aims to find out whether cord blood infusion is both safe and efficaciou ..read more
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Stem Cell Intervention Presentation
Cerebral Palsy Alliance | News
by Jodie Collins
3y ago
Join Fulbright Scholar and winner of the University of Sydney Award for Professional Achievement, Professor Iona Novak, to hear the latest research information and exciting advances on stem cell interventions for neurological conditions, and ideas for supporting families considering stem cell tourism. 1 in 3 people may benefit from regenerative medicine in their lifetime – and stem cells are unquestionably the new frontier. With numerous stories in the public domain of “cures” (hype) but also of tragic circumstances where hopeful patients (including children) have lost their lives after buying ..read more
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Better Care Reduces Cerebral Palsy
Cerebral Palsy Alliance | News
by Jodie Collins
3y ago
A study by the Murdoch Childrens Research Institute has found that improved interventions to reduce brain injury and improve lung function at birth can reduce the severity of cerebral palsy. The article is one of 13 studies featured in a special Australian CP Register supplement for the prestigious Developmental Medicine and Child Neurology journal. Read more ..read more
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PhD scholarships – expressions of interest welcome
Cerebral Palsy Alliance | News
by Zoe Burrell
3y ago
Centre of Research Excellence in Cerebral Palsy PhD scholarships The Centre of Research Excellence in Cerebral Palsy (CRE-CP) is a five year NHMRC funded project that brings together leading researchers, clinicians and consumers in a concerted effort to improve the health and well-being of children with cerebral palsy and their families. The CRE-CP aims to attract and train doctoral and postdoctoral researchers to create the next generation of highly skilled clinical researchers in cerebral palsy. A number of Scholarships will be awarded, comprising valuable opportunities such as the CRE-CP be ..read more
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Grant Applications for 2016
Cerebral Palsy Alliance | News
by Jodie Collins
3y ago
Since 2006, the Research Foundation has awarded more than $20 million into supporting 179 Cerebral Palsy research projects in Australia and internationally. The 2016 round of research grant applications will open from 1st July to 31st August. Find out more here The Research Foundation has a strong on-going commitment to funding high quality research into the prevention, novel treatment and cure of cerebral palsy. Two types of grants are offered: Projects Grants Career Development Grant ..read more
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