Hello everyone, Once again spring is dawning in my neck of the woods, save the 5 inches of snow yesterday. Winter’s last grasp. It reminds me of how we with OT, or at least me try to move forward this time of the year. But just like Winter tries to hold on, I believe our past does the same. I often reflect on the past to allow myself to move forward. The old saying “two steps forward, and one back”, I think that’s how it goes, definitely applies to me. Certainly in life, but absolutely with my OT. Less activity in the Winter months sets back the progress or maintenance of my health. Exercise l ..read more

Hello, It’s me again. It’s hard to say why I am writing today. It’s hard to say why I stopped. Life is hard. Harder than it was before, maybe, maybe not. New Year, new me? Definitely not. I remember when I started to write, when I was 40 and going to change the world in regards to OT. Provide information, inspire people to get the word out in regards to this terribly frustrating and debilitating illness. Somewhere along the way, I became side tracked and started to write about my personal life more and more. Of course it’s all related I guess. So, the WHAT. What is OT? Orthostatic Tremor, Shak ..read more

Hello, I know it’s been quite a while since I have written anything of use, but today something caught my attention in the OT world that I had to sit and get my thoughts out on “paper” so to speak.  I happened to see a post on Facebook from someone with whom had a recent encounter with Dr. Diego-Torres.  I myself met Dr. Torres almost 2 years ago and this question or post jogged my memory to his discussion of possible causation of Orthostatic Tremor.  The suggestion was that OT could be a mental type phobia of a fear of falling.  I’ll repeat that:  The Facebook posting suggested that Dr. Torre ..read more

Do you believe that you have to have faith in god to be positive? Many people have told me that their faith in religion and god has gotten them through the tough times of disease, death, pain, fill in the blank. Does that mean that if you don’t have faith you might as well pack it in and prepare for misery? Absolutely, 100%, not! Positive vibes and thoughts are flowing throughout the universe. You just have to be willing to step back, take a deep breath and soak it all in. These things are just as important, maybe more so, than traditional therapy. A good friend in the Primary Orthostat ..read more

Nobody really asks me what a day in the life of my OT means for me. Everyone’s experience is different, so I’ll try to stick to with what I know on a one day experience. No better day to start with than yesterday. I wake for work and instantly feel fatigued and sore. I never sleep well, unless I take sleep aids prescribed or other. If I do take something, I feel more groggy, or that “hungover” effect. Once my body realizes that it’s standing up, the tremors begin. The morning routine is probably the hardest part of the day for me. Brushing teeth, showering, shaving, dressing and all that ..read more

I have struggled personally quite a bit in the last few months, year.  I have struggled in all phases of my life.  Physically, emotionally, spiritually.  OT can take so much out of you and take so much away from you. As I grew into a young man, from high school to college, spiritually I moved far away from my Catholic upbringing.  I moved farther and farther away as I kept moving through my phases of life.  Graduating college, becoming a Pharmacist, getting married and having children.  My scientific mind would not, could not fathom a higher power in control actively or passively in everyone’s ..read more