The Cerebral Palsy Research Network in partnership with Cerebral Palsy Alliance Research Foundation (CPARF) will present the results of its study of priorities in adult cerebral palsy (CP) research in a webinar next Tuesday, September 10 at 8 pm ET. Principal Investigator Cristina Sarmiento, MD and her collaborators Jocelyn Cohen, JD, Mary Gannotti, PT, PhD... The post Results: Priorities in Adult Cerebral Palsy Research appeared first on Cerebral Palsy Research Network ..read more

The Cerebral Palsy Research Network, United Cerebral Palsy and CanChild are excited to present and discuss what it means for community members – people with lived experience and their caregivers – to engage in the research process. Engaging in the research process is not about being a study participant though that is a great way... The post Webinar: Community Engagement in Research appeared first on Cerebral Palsy Research Network ..read more

The Cerebral Palsy Research Network partners with the Cerebral Palsy Alliance Research Foundation (CPARF) to raise money for groundbreaking research through CPARF’s annual corporate and individual fundraising campaign called STEPtember. You can raise money to benefit the CP Research Network by joining as an individual, forming a small team (up to four people) or making... The post Join Us in Raising Money for Cerebral Palsy Research appeared first on Cerebral Palsy Research Network ..read more

Participants in the National Eye Institute’s expert panel gather for a group picture on Sunday, June 23. Cerebral Palsy Research Network Chief Executive Officer Paul Gross and Scientific Director Kristie Bjornson, PT, PhD were invited to participate in an expert panel to provide guidance to the National Eye Institute (NEI) in its effort to develop a registry for cerebral visual impairment (CVI). This event was held on Sunday, June 23 at the Perkins School for the Blind in Boston, MA. The attendees included NEI program officers, leading clinicians and researchers in the field of CVI and paren ..read more

Ed Hurvitz, MD, Mary Gannotti, PT, PhD, and Jodi Kreschmer, MSW will present on pain and functional changes in adults with CP The Cerebral Palsy Research Network is excited to announce that this month’s webinar will be on Monday, June 24 at 8 pm ET and it will focus on functional changes in adults with cerebral palsy (CP) and research findings about functional changes and pain. The webinar will be presented by the CP Research Network adult study group co-chairs Ed Hurvitz, MD, Professor, Physical Medicine and Rehabilitation and Mary Gannotti, PT, PhD, along with researcher and CP Research Ne ..read more

Dr. Gannotti stands among three of her five scientific posters explaining her work to community members who attended our annual meeting. The Cerebral Palsy Research Network congratulates Dr. Mary Gannotti on her recent publication, “Cerebral palsy research network community registry adult surveys on function & pain: Successes, challenges, and future directions” in the Disability and Health Journal. This article is the third in a series describing the preliminary results from surveys gathered under her leadership in the network’s study of wellbeing and chronic pain in adults with cerebral ..read more

Today, March 25, is the federally recognized Cerebral Palsy (CP) Awareness Day! We are excited to announce the winners for our third annual CP Awareness Month photo contest. In February, we began accepting submissions in three categories that we thought were important to represent our community: around town, diversity and celebrations & holidays. Each of the following submissions were selected by being the top three photos in these categories in votes out of 14,236 counted: First Prize Winners ($100 each) Around Town Diversity Celebrations & Holidays Levi taking big boys step ..read more

Join the Cerebral Palsy (CP) Research Network in our activities to celebrate National CP Awareness month. This recognized month is a great opportunity for us to create awareness about living with CP for the general public to help fund research, support disability policies, and to promote inclusion. There is so much you can do to help the community: In February, we launched our 3rd annual CP Awareness photo contest for your favorite picture in each of three categories on our website. We will be awarding a total of $1,300 in cash prizes to the winners on national CP Awareness Day – March 25th ..read more

  Dr. Vesoulis will be leading the webinar on the use of Artificial Intelligence in Cerebral Palsy research. Next Monday, March 4, at 8 pm ET our MyCP webinar features Zachary Vesoulis, MD, MSCI who will describe the Cerebral Palsy Research Network’s initial exploration into using artificial intelligence (AI) to make new discoveries in cerebral palsy (CP). Dr. Vesoulis will discuss how we are planning to apply the AI concept of “deep learning,” a model that processes information similar to the human brain. This method would be applied to both our CP registry and brain images to predict ..read more

Congratulatoins to Dr. Allison whose research, funded by the CP Research Network, was recently published in the American Journal of Speech-Language Pathology. We are thrilled to congratulate Kristen Allison, PhD, CCC-SLP on her recent publication, “Relation of speech-language profile and communication modality to participation of children with cerebral palsy,” in the American Journal of Speech Language Pathology on January 12, 2024. This is the twelfth publication for the network and, is the result of research funded by the CP Research Network for its Research CP grant program in 2019. It pr ..read more