Introduction The Norfolk and Suffolk Patient /Carer Group welcome the rewritten NICE Guidelines (NG206) for people with M.E. and CFS (Myalgic encephalomyelitis and chronic fatigue syndrome) which have finally been released today, 29 October 2021.  These are the Guidelines that should have been issued in 2007. The significant shortcomings of the 2007 Guidelines were apparent from the time that they were released. Of significant concern is the widespread reports of harm following Graded Exercise Therapy (GET).  Work of the Norfolk and Suffolk Patient / Carer group For many yea ..read more

The Quadram Institute on the Norwich Research Park held a public meeting last week to talk about their ongoing research into ME.   Barbara Robinson kindly attended on behalf of the Patient / Carer Group and has produced a one page summary which can be found here. Participants for the research are to be recruited from past and present patients of the East Coast Community Healthcare (ECCH) ME & CFS Service.  Recruitment will be coordinated by Jo Wiggins and Louise Halliday who are Occupational Therapists working within the ME & CFS Service. 10 February 2020 ..read more