I started LDN 2 months ago and didn’t notice any improvement, even on 4.5mg I didn’t get any bad side effects I couldn’t deal with either, neither positive I could read around 20 pages prior to starting LDN and the exact same amount during LDN but what’s odd is that 3 days off LDN I can barely read a paragraph? My brainfog, fatigue and everything else got worse and I felt like I was in a bad crash, did this happen to anyone? ps. I know I haven’t been on LDN that long, I just stopped to experiment and see what would happen after 2 months with no significant improvement. I will go on it again f ..read more

For the past 10 months, I was adding in things gradually. A little bit of remote work, school, etc. I was able to drive to appointments, make my own food, watch shows, be on the computer for hours, etc. About a month ago, I took on more work and projects, kept thinking it would all be fine. Then had a bunch of family stuff, other stressors, and a funeral. I ignored the signs of internal vibrations, pain, insomnia. I kept going and just wanted to get through those two weeks. Well. At the funeral, it all hit me. Thought I wasn’t going to be able to walk out of there. It was scary and my first t ..read more

When I used to drink alcohol, I remember I would sometimes be in PEM (didn’t know what it was at the time) where my body would be so achey and sore and my mind would be so cloudy. However, if I drank, I’d feel better even after one drink, and if I continued to drink, I’d have energy to do things, like I was pressing a pause button on PEM. The hangovers afterward were awful, though, and would last for days. Just curious if anyone else experiences this? submitted by /u/AllDucksNoRows [visit reddit] [comments ..read more

Hi there! I have been experiencing severe fatigue for over 15 years, with no known cause. I used to suffered from anorexia so I was always tired. I recovered years ago, but even though I gained weight and ate enough, my energy did not return. It felt like I was gonna die, but then I had b12 injections. It got rid of many of my symptoms. But what I am left with is persistent fatigue. I always feel tired, and irritable from being so tired, very little physical or mental energy. Everything is a huge chore. If I rest, it doesn't improve. I don't seem to "crash" if I push myself to do things, it's ..read more

I mean constant paranoia over dumb things and fearing that you’re becoming psychotic and that ends up consuming all of your energy so it takes really long to recover i notice that after a long rest these thoughts ease up and i stop feeling like im losing my mind but it was definitely traumatizing, i was 100% normal before it happened with no apparent trigger besides a crash submitted by /u/HeavyMenu3391 [visit reddit] [comments ..read more

I am nearing the end of severe (I think) but it's only been this way the past two months. housebound, bed and couch bound most of day other than to eat lunch and dinner (someone else makes), bathroom and once a week bathing. I can socialize and be on phone and sit outside on back patio sometimes. anyways.i have 3 doctors appointments coming up next week back to back. I made these appointments months ago when i was moderate. these cannot be rescheduled without putting me back another 6 or so months. two are in person (one tue and one wed) the other one is a phone apt I'm not worried about that ..read more

On a trip to Atlantic City in August, our hotel refused a reasonable disability accommodation and refused our reservation at the hotel for the rest of the weekend leaving us stranded hours from home and attempting to find alternative lodging in the middle of the night. I have a number of health issues including myalgic encephalomyelitis and immune system dysfunction resulting from EBV/mono and exposures during my time in the military. As a result, I have severe chemical sensitivities and food allergies. I have only been able to eat 12 foods that don’t trigger reactions for the last 4 years. A ..read more

Anybody managed to find a good doctor in Europe who wouldn’t gaslight and could help with Candida etc. “treatable thing s” submitted by /u/Such-Wind-6951 [visit reddit] [comments ..read more

So at this point I have done every test to rule out everything (SIBO, Celiac, Allergies, Crohn, Lupus, Sleep Apnea, etc). Im experiencing 30 to 20% of my symptoms still, but they are very mild. I consider myself 70-80% recovered. However, something still doesnt click with the idea that I had Longcovid. I had very mild case of covid in January 2023, and it was my second infection (not the first one as the majority of longhaulers). Also, my first symptoms started 4 months after that COVID infection. Longcovid first symptoms usually start between 6 to 8 weeks (1.5 months to 2 months), with some ..read more

CFS is one of the worst things that can happen to a person, but it can still be funny and so can life. Today was a good day....that is, until I picked up a 15kg watermelon and immediately felt like I was about to die. Probably going to crash, but I find it funny that the disease is basically an ultra-sensitive, irrational toddler throwing tantrums at the smallest/most random things XD Side note: it tasted amazing. ​ https://preview.redd.it/vq3rdl3v9gwc1.jpg?width=564&format=pjpg&auto=webp&s=330155a58217eb8f1e82a6b871450f10d2256734 submitted by /u/Glittering-Golf8607 [visit re ..read more