You may have heard of the rare blood clotting disorder, Antiphospholipid Syndrome, but did you know that it isn’t ‘just’ about the blood? This article is part of the Antiphospholipid Syndrome (APS) resource library that I’m building up on my site from a patient perspective. It consists of findings from research journals, as well as over 20 years of my personal experiences with APS. This post will focus on how does Antiphospholipid Syndrome affect the body, beyond the blood to major organs. I won’t deep dive into each medical condition, or the post will never end ? (Also, I have found anatomy t ..read more

This article is part of the Antiphospholipid Syndrome (APS) resource library that I’m building up on my site. In this post, we will focus on medications and Antiphospholipid Syndrome. In particular, warfarin is a key medication for the management of APS, especially if you’ve experienced blood clotting events in the past. We will also take a look at what DOACs (direct oral anticoagulants) are, how other medications such as NSAIDs (non steroidal anti-inflammatory drugs) can interact with warfarin, and exciting new drugs in the pipeline. If there are specific terms or topics in this post that you ..read more

This post is part of the Antiphospholipid Syndrome (APS) resource library that I’m building up on my site for patients, as a patient who’s lived with it for more than two decades myself. This article in particular will focus on all things related to the female sex and women’s health in Antiphospholipid Syndrome. It will cover topics such as pregnancy, miscarriage, menstruation, menopause, risk factors, birth control and other general knowledge. I have taken the time to research relevant medical journals, and also share my personal experiences where appropriate. I hope you find it useful, wheth ..read more

This post is part of the Antiphospholipid Syndrome (APS) resource library that I’m building up on my site for patients, as a patient who’s lived with it for more than two decades myself. This article in particular will focus on all things related to the female sex and women’s health in Antiphospholipid Syndrome. It will cover topics such as pregnancy, miscarriage, menstruation, menopause, risk factors, birth control and other general knowledge. I have taken the time to research relevant medical journals, and also share my personal experiences where appropriate. I hope you find it useful, wheth ..read more

The bad news about Antiphospholipid Syndrome (APS) is that it’s chronic. The good news is that there are quite a number of exciting new treatments in the works. This article is part of the APS resource library that I’m building up on the site for patients, as a patient who has lived with it for more than 20 years myself. This post will focus on the latest research on Antiphospholipid Syndrome as of 2024, and I aim to update it as frequently as I can. The ultimate A – Z resource guide on Antiphospholipid Syndrome is taking me longer to compile (years, in fact!), and will be out soon. I thought ..read more

This post is part of a series on my knee surgery and recovery journey, and how I coped with all that down time. I spent a good part of a year bed bound, in pain, and also bored. Afternoons were the toughest, as it felt like a state of limbo, where the world was speeding on by… without me. When I was in less pain, I wanted to channel some energy into being productive, apart from watching Netflix all day. (P.s. Nothing wrong if you want to Netflix all day either – healing takes top priority, after all!) This entire series of posts covers different activities you can do, whilst stuck in bed or at ..read more

This post is part of a series on my recovery journey from a spontaneous bilateral patellar tendon rupture, which left me bed bound for nearly a year. In this article, I will share some uplifting activities to do while recovering in bed. You can also find more tips, resources and fun suggestions at the end of the post! Pin to Your Recovery & Healing Boards: Disclaimer: Knee injuries and surgeries, or any surgery for that matter, varies widely from person to person. Your age, lifestyle, weight, circumstances, medications, comorbidities, allergies and other issues can impact your recovery ti ..read more

This post is part of a series where I share my recovery journey from a spontaneous bilateral patellar tendon rupture. Both my knees were broken, and I was bed bound for almost a year, with the first 6 weeks spent trying to keep my legs as flat I could so as not to incur further injury. If you’re in a similar situation as I was, then you know that spending that much time in bed can be boring, frustrating and depressing. Here is a list of fun things to do while recovering from surgery. This part of the series in particular focuses on hobbies, crafts and games that you can engage in whilst in bed ..read more

Apart from the immense pain and lack of mobility, being stuck in bed after any major surgery can leave you bored to tears. I personally suffered from a spontaneous bilateral patellar tendon rupture due to Lupus, and the steroid therapy that I’m on. Being bed bound for an entire year meant that I not only had to endure the physical discomfort, but also the mental battles. This post is part of a series on activities and things you can do post-surgery to keep boredom and restlessness at bay. This article in particular will focus on things to do on digital devices after knee surgery. (Check out th ..read more

In the previous series all about knees, I shared resources for my recovery journey after a major knee surgery. In this new series, I will be sharing things you can do to help keep boredom at bay, because the recovery process for any major surgery can be a long, painful and tedious one. The pain and lack of mobility is frustrating, and limits your access to things you can do to pass the time. Minutes pass by like hours. ‘Recovered’ seems a lifetime away. I will begin with depression after knee surgery and how to cope, as I believe that mental health is of utmost importance. When you feel anxiou ..read more